[LindylouParticipant]

Thanks for your reply, wow your mum is managing MM well all things considered she's done well to go through all the Chemo. Just wanted to say that whilst it was the Specialist Nurse who first told us she didn't think my mum was well enough to cope with Chemo she did go and speak to the Consultant who then changed her prescription by omitting Chemo and lowering the dose of Thalidamide so it wasn't down to her sole decision but the Consultant definately acted on her recommendation, my mum didn't see him that day and we were up in the treatment area waiting for the changed prescription to come through before my mum could be given anything.

[LindylouParticipant]

Thankyou for sharing your information with me. I am amazed you have done so well with 5% of your kidneys working and I'm so pleased that they are improving. I'll speak to the consultant about your medication.

[LindylouParticipant]

Thankyou so much for your reply and PM…not sure if I've figured out how to PM back yet I've just had a quick glance but I've finished a 12 hour night shift at a secure hospital and I'm heading South to collect my youngest daughter from Uni. My mum is not well at all, first signs were last year with shingles but that's hindsight now. I'm not sure how she would cope with Chemo but I know she wanted to try. She does have pain though, not sure why her bones are not showing signs of damage because she was extremely ill with hypercalcemia. You look on here and see people in their 50's admitted because their bones are breaking and they don't know why, it's an unpredictable illness.

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