Myeloma Forum | LizMaywood | Activity https://forum.myeloma.org.uk/members/LizMaywood/activity/ Activity feed for LizMaywood. Sat, 11 Apr 2026 15:28:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 e96b0759d1bd444b94d76d1f7c4064f3 LizMaywood replied to the topic Keith's funeral arrangements in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/keiths-funeral-arrangements#post-108256 Fri, 10 May 2013 14:36:18 +0100 Thanks Andy

please pass on my condolences to his family- he was such a great supporter to many on this site.

Liz Maywood

]]> a3eee5a149195d38a6a67505f0f6f85a LizMaywood replied to the topic Long haul travel in the forum General http://www.myeloma.org.uk/forums/topic/long-haul-travel#post-95174 Fri, 03 May 2013 14:36:00 +0100 Many thanks for all suggestions- actually I made a typo- SCT was Oct2011- how time has flown! I see consultant on 17th so will be checking what vaccinations etc I should have. Fingers and toes crossed bloods still ok!

Liz

]]> cc57638a9234c6b6b8a7cae59e986022 LizMaywood started the topic Long haul travel. in the forum General http://www.myeloma.org.uk/forums/topic/long-haul-travel Wed, 01 May 2013 10:34:11 +0100 I'm currently in remission following CDT and STC Oct 2012. I know some people have ventured long distances- Helen and Wendy spring to mind! I am hoping to go to Vietnam and Cambodia late Sept/Oct, I've paid the deposit so it all seems rather real now!

Any tips on surviving the flights and any general health tips would be great- did your…[Read more]

]]> 0894c596211b6483e09103014dc4e688 LizMaywood replied to the topic Keith Hindmarch in the forum General http://www.myeloma.org.uk/forums/topic/keith-hindmarch#post-95102 Thu, 25 Apr 2013 17:20:43 +0100 My thoughts are with you both at this difficult time,
best wishes
Liz Maywood

]]> 8613173e8329592de4712982701cb1dc LizMaywood replied to the topic Stem Cell Treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-treatment#post-100993 Wed, 21 Nov 2012 15:16:03 +0000 Dear Sarah

as Helen says- it is a totally personal decision. For me I felt it would give me the best option for a long remission. Your Mum needs to talk to her consultant about the options based on her health and responsiveness to treatment so far. Your Mum can wait til CDT treatment is over before finally deciding which route to follow- the…[Read more]

]]> d99e422bc422dbf51d75eabf747cb574 LizMaywood replied to the topic Been Home for for about 3 weeks, in the forum Treatment http://www.myeloma.org.uk/forums/topic/been-home-for-for-about-3-weeks#post-101000 Wed, 21 Nov 2012 14:26:14 +0000 Dear Tina

dont be too hard on yourself! My transplant nurse said dont compare how you feel day to day, but week to week- which actually was really good advice.

As for eating I lived on tinned custard for a few weeks!! I found after 6 weeks I could actualy do things- I made my 1st Xmas cake! Do things at your pace- but just make sure you…[Read more]

]]> ab3673085539005aacfbca41e3085f5f LizMaywood replied to the topic Stem Cell Treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-treatment#post-100991 Wed, 21 Nov 2012 14:14:36 +0000 Dear Sarah

I had my SCT last Oct- in hospital about 3 weeks and now back at work full time- only on monthly zometa infusions. I too am on my own (I'm 53 now) and my Mum came to look after me for the 1st week, then I had friends popping in to do shopping for me and drop off cooked meals! One wonderful neighbour used to come in every morning for…[Read more]

]]> a373b9863455622e4f9dd5239bd43307 LizMaywood replied to the topic Sad news in the forum Under 50s http://www.myeloma.org.uk/forums/topic/sad-news#post-107006 Fri, 12 Oct 2012 15:27:32 +0100 Dear Rachel

I am so sorry to hear your sad news, take care, Liz

]]> ac00fab5e7ad378be6f5ef37ed67eb57 LizMaywood replied to the topic What to take in the forum General http://www.myeloma.org.uk/forums/topic/what-to-take#post-93590 Thu, 04 Oct 2012 13:24:18 +0100 Dear Tina

I am 1 year on from my STC (on Monday) and back at work full time now. I would recommend getting dressed every day- if you feel able- as I think it makes you feel better and more in control. For me plenty of pairs of pyjamas were necessary for when the side effects of mephalan kicked in! I took a computer and iphone- with radio as…[Read more]

]]> 0e3e74751d4c6cb10223b33f01fe91ca LizMaywood replied to the topic Hospitals in the forum Treatment http://www.myeloma.org.uk/forums/topic/hospitals#post-99553 Thu, 21 Jun 2012 13:23:29 +0100 Dear Rachael

I too am new to the forum- although was diagnosed finally in April last year and (spinal cord compression at T3 and lytic lesions in sacrum and iliac crest) had CTD then STC in Oct 2011. I am being treated at Addenbrookes, the treatment has been great but sometimes I find it difficult to speak to anyone about my concerns.

Love LIz

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