Myeloma Forum | LizCornelius | Activity https://forum.myeloma.org.uk/members/Lizc/activity/ Activity feed for LizCornelius. Sun, 05 Apr 2026 20:30:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 2537094358afa54fcecaaf36be656a00 Lizc changed their profile picture https://forum.myeloma.org.uk/activity/p/52820/ Mon, 26 Mar 2018 15:31:17 +0100 0 f7def5c80b8aca3ff6b4bb4004a9e999 LizCornelius replied to the topic multiple fractures... in the forum Newcomers https://www.myeloma.org.uk/forums/topic/multiple-fractures/#post-137472 Mon, 26 Mar 2018 15:22:50 +0100 Hi
You have every right to think that your life will never be the same again, it wont be the same BUT that does not mean it is the end of life. Your life will be very different but you will come to accept all the changes over time and life will still be good. Like you I was diagnosed with mm and mutiple fractures of the spine, 9 in total and a…[Read more]

]]> 2e8acfabdf353e4d24d340644dee5140 LizCornelius replied to the topic Possible transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/possible-transplant/#post-121908 Sat, 25 Apr 2015 18:32:17 +0100 appologies for repetition in post it seemed to keep diasappearing as I was typing

]]> 29fe94a533f6836ee431259013d7ffa4 LizCornelius replied to the topic Possible transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/possible-transplant/#post-121907 Sat, 25 Apr 2015 18:30:01 +0100 Hi
I too had a high initial parraprotein level of 67 at diagnosis and after 6 months of treatment with cdt it came down to 8. I was 58 at diagnosis with several fractures in my spine and
kidneyproblems. I had to have operations to stabalise my neck and a tumour removed. I was stage 3. I could not decide whether to go for. the transplant or not.…[Read more]

]]> f84613b19598e197eb3d3f3b72d2e59d LizCornelius replied to the topic Date for SCT in the forum General http://www.myeloma.org.uk/forums/topic/date-for-sct-3/#post-121281 Sat, 14 Mar 2015 23:34:57 +0000 Hi Maureen
I don’t post on here very often,but always read posts and am so pleased to hear that Ian has at last got his date for SCT. I hope all goes well for him and he gets that longed for drug free remission. I had my stc just over 3 years ago and am still in drug free remisssion, after inital 6 months cdt. I had kidney failure at diagnosis…[Read more]

]]> b7ed93e84af0703fd0e0feacd4717508 LizCornelius replied to the topic screw stabilization in the forum Treatment http://www.myeloma.org.uk/forums/topic/screw-stabilization/#post-120039 Thu, 18 Dec 2014 21:10:11 +0000 Hi Heso42

In reply to your question re screw stabilistion, I had this performed on me approximately 3 years ago, just after diagnosis, as a tumour had eaten into the top of my spine making my head and neck becoming dangerously detached. So I had radiotherapy to shrink the tumour and then an operation to remove the remainder and then screws and…[Read more]

]]> 2ff1dc93ee626199ce3ca98a4f6e850c LizCornelius replied to the topic Help needed! in the forum General http://www.myeloma.org.uk/forums/topic/help-needed-2/#post-118350 Fri, 26 Sep 2014 02:35:00 +0100 Signed !

]]> f687c8083597f14322389c69e800eab1 LizCornelius replied to the topic my mum has myeloma. first time post in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum-has-myeloma-first-time-post#post-87428 Sun, 24 Mar 2013 00:29:23 +0000 Hi
Sorry to hear about your Mum, like your Mum I was diagnosed out of the blue with renal failure and a tumour on my neck, which if left any longer would have left me paralysed. So I had an emergency operation to stabalize my neck, head and spine with metal plates, which means my head is in a fixed postion, can't move it from side to side or up…[Read more]

]]> 430226062bce13fb5b75c1845116d376 LizCornelius replied to the topic Curly Hair after SCT. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/curly-hair-after-sct#post-105164 Thu, 14 Mar 2013 05:07:37 +0000 I am now a year post my sct and in that time I have had 4 haircuts because my hair came through very tight and curly and very course and dull. It is now just a bit wavey but still very course and dull. It is also darker in colour. On my hairdressers advice I purchased some morrocan oil to try to soften the texture and add a bit of shine. It does…[Read more]

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