Myeloma Forum | LizWaller | Activity https://forum.myeloma.org.uk/members/LizzyW/activity/ Activity feed for LizWaller. Wed, 15 Apr 2026 05:36:14 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 d44b74fdecb65dd0d42be2b3e80184b2 LizWaller replied to the topic New with a tale to tell already! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-with-a-tale-to-tell-already#post-86913 Mon, 12 Nov 2012 16:08:09 +0000 Hi everyone – they have kept my Mum in as the 'septic' tongue is actually a thrombosis. She has to have an MRI scan and then depending on how deep it is, she has to either have it scraped of or dug out (sorry for the graphic language). It seems to be one thing after another. Has anyone heard of this sort of thing happening to anyone else at all?

]]> 12531c470a9eb29092f1e8cc1e73c4bb LizWaller replied to the topic New with a tale to tell already! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-with-a-tale-to-tell-already#post-86912 Sun, 11 Nov 2012 20:38:04 +0000 Hi everyone – thank you all so much for your comments. It really does mean a lot.
She is going back to hospital again tomorrow as she has a septic tongue. It started last week and prompted the decision that she was allergic to the Revlamid. However, her consultant said that the steroids should flush out any infection but it doesn't seem to have.…[Read more]

]]> f0155c55e8385e2faa337733d9c4f169 LizWaller replied to the topic New with a tale to tell already! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-with-a-tale-to-tell-already#post-86906 Fri, 09 Nov 2012 13:15:42 +0000 Hi Mavis – she is 61. I asked about different pathways and was assured that there were many different options, it was just a case of finding the correct one.

Hi Jill – I am thinking that maybe she is allergic to both – a double whammy! She won't be taking either again and is feeling better today so fingers crossed everything should be ok.

]]> 1336d28038d7213ec3da38cff6459e4f LizWaller replied to the topic New with a tale to tell already! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-with-a-tale-to-tell-already#post-86903 Fri, 09 Nov 2012 10:07:49 +0000 Hi Tom and Michele

Thank you so much for taking the time to read my post.

She is being treated at Rotherham Hospital in South Yorkshire. She is feeling a bit better today which is a good sign. The drugs have clearly worked as the Myeloma is now at only 5%, it has just been a rough time due to the allergy – but who would have ever known she…[Read more]

]]> 936b84e34fa21be923e03686ba9ca532 LizWaller started the topic New with a tale to tell already!. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-with-a-tale-to-tell-already Thu, 08 Nov 2012 15:28:47 +0000 Hi everyone – I am so glad I have found this site. Been reading this forum and feel so much better. It isn't me who has been diagnosed, it is my Mum. She was diagnosed on the 14th of September and we already have a tale to tell!

She agreed to take part in the trial, and so the week after diagnosis started on the RCD combination and also with…[Read more]

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