[LizzyWParticipant]

Hi everyone – they have kept my Mum in as the 'septic' tongue is actually a thrombosis. She has to have an MRI scan and then depending on how deep it is, she has to either have it scraped of or dug out (sorry for the graphic language). It seems to be one thing after another. Has anyone heard of this sort of thing happening to anyone else at all?

[LizzyWParticipant]

Hi everyone – thank you all so much for your comments. It really does mean a lot.
She is going back to hospital again tomorrow as she has a septic tongue. It started last week and prompted the decision that she was allergic to the Revlamid. However, her consultant said that the steroids should flush out any infection but it doesn't seem to have. It is a yellow/green type colour with a foul taste and smell to boot. Has anyone ever had this or know anyone who has? Bless her.

[LizzyWParticipant]

Hi Mavis – she is 61. I asked about different pathways and was assured that there were many different options, it was just a case of finding the correct one.

Hi Jill – I am thinking that maybe she is allergic to both – a double whammy! She won't be taking either again and is feeling better today so fingers crossed everything should be ok.

[LizzyWParticipant]

Hi Tom and Michele

Thank you so much for taking the time to read my post.

She is being treated at Rotherham Hospital in South Yorkshire. She is feeling a bit better today which is a good sign. The drugs have clearly worked as the Myeloma is now at only 5%, it has just been a rough time due to the allergy – but who would have ever known she had an allergy to it!

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