Lolly posted an update 6 years ago
Hi everyone
My husband Steve got diagnosed in March 2013
He has recently been in extreme pain in his right shoulder. MRI revealed
Avascular Necrosis … we are now waiting to see a orthopaedic surgeon
Has anyone else had this condition in the shoulder ?
Thanks lolly
Lolly and 
janw are now friends 6 years, 8 months ago
Lolly replied to the topic Myeloma XI Trial maintenance in the forum General 6 years, 8 months ago
Hello Debbie
My husband steve is also on the XL trial
The vorinstat also was stopped , with no notice
Very little information from hospital
We have never received s letter from the trial office
Steve really struggled when it was stopped , mentally he found it really difficult
Lorraine.
Lolly replied to the topic Side effects in the forum Side-effects 9 years, 4 months ago
Hi jan
Good to hear from you 🙂
Steve is on lenomide can’t spell it and vorinstat
His sensations come and go , and says it a cold feeling from deep within
Also I notice his voice is weak at certain times in the month
Did you read the article, in the mail on Sunday about mm
Are you taking drugs at the moment ?
Xxx
Lolly started the topic Side effects in the forum Side-effects 9 years, 4 months ago
Hi everyone
My husband Steve got diagnosed in march 2013
After treatment and SCT he is in remission and currently on a drug trial
What I like to ask you all is , Steve often says he has a sensation of coldness coming from within his body
Does anyone have these symptoms ?
We have spoken to consultant but he did not seem to know what Steve…[Read more]
Lolly replied to the topic Worried in the forum General 9 years, 4 months ago
Hi Vicki
So sorry to read your posts .. As others have said really hope Colin can come home soon..
Thinking of you both
Lolly xxx