Lolly posted an update 6 years, 8 months ago
Hi everyone
My husband Steve got diagnosed in March 2013
He has recently been in extreme pain in his right shoulder. MRI revealed
Avascular Necrosis … we are now waiting to see a orthopaedic surgeon
Has anyone else had this condition in the shoulder ?
Thanks lolly
Lolly and 
janw are now friends 7 years, 4 months ago
Lolly replied to the topic Myeloma XI Trial maintenance in the forum General 7 years, 4 months ago
Hello Debbie
My husband steve is also on the XL trial
The vorinstat also was stopped , with no notice
Very little information from hospital
We have never received s letter from the trial office
Steve really struggled when it was stopped , mentally he found it really difficult
Lorraine.
Lolly replied to the topic Side effects in the forum Side-effects 10 years ago
Hi jan
Good to hear from you 🙂
Steve is on lenomide can’t spell it and vorinstat
His sensations come and go , and says it a cold feeling from deep within
Also I notice his voice is weak at certain times in the month
Did you read the article, in the mail on Sunday about mm
Are you taking drugs at the moment ?
Xxx
Lolly started the topic Side effects in the forum Side-effects 10 years ago
Hi everyone
My husband Steve got diagnosed in march 2013
After treatment and SCT he is in remission and currently on a drug trial
What I like to ask you all is , Steve often says he has a sensation of coldness coming from within his body
Does anyone have these symptoms ?
We have spoken to consultant but he did not seem to know what Steve…[Read more]
Lolly replied to the topic Worried in the forum General 10 years ago
Hi Vicki
So sorry to read your posts .. As others have said really hope Colin can come home soon..
Thinking of you both
Lolly xxx