Myeloma Forum | Phelps Lorraine | Activity https://forum.myeloma.org.uk/members/Lolly/activity/ Activity feed for Phelps Lorraine . Wed, 08 Apr 2026 13:49:43 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 0edec39264fd0e9ce8c7c0aa802daef8 Lolly posted an update: Hi everyone My husband Steve got diagnosed in March 2013 […] https://forum.myeloma.org.uk/activity/p/54689/ Wed, 31 Oct 2018 20:00:34 +0000 Hi everyone
My husband Steve got diagnosed in March 2013

He has recently been in extreme pain in his right shoulder. MRI revealed

Avascular Necrosis … we are now waiting to see a orthopaedic surgeon

Has anyone else had this condition in the shoulder ?

Thanks lolly

]]> 0 8e5256d12305227a4dd0e46a29972b7b Lolly and janw are now friends https://forum.myeloma.org.uk/activity/p/52730/ Tue, 20 Mar 2018 20:02:11 +0000 0 2b99e348411cbec6cf831fdcf45bac87 Phelps Lorraine replied to the topic Myeloma XI Trial maintenance in the forum General https://www.myeloma.org.uk/forums/topic/myeloma-xi-trial-maintenance/#post-137420 Tue, 20 Mar 2018 19:48:45 +0000 Hello Debbie
My husband steve is also on the XL trial
The vorinstat also was stopped , with no notice
Very little information from hospital

We have never received s letter from the trial office

Steve really struggled when it was stopped , mentally he found it really difficult

Lorraine.

]]> 20f80c5bb8ecb99e1d57a7c44651e7d1 Phelps Lorraine replied to the topic Side effects in the forum Side-effects http://www.myeloma.org.uk/forums/topic/side-effects-2/#post-123150 Mon, 20 Jul 2015 20:27:43 +0100 Hi jan
Good to hear from you 🙂
Steve is on lenomide can’t spell it and vorinstat

His sensations come and go , and says it a cold feeling from deep within
Also I notice his voice is weak at certain times in the month

Did you read the article, in the mail on Sunday about mm

Are you taking drugs at the moment ?

Xxx

]]> 83a22533d8feddad322b1c5fb3ff8700 Phelps Lorraine started the topic Side effects in the forum Side-effects http://www.myeloma.org.uk/forums/topic/side-effects-2/ Mon, 20 Jul 2015 12:05:49 +0100 Hi everyone
My husband Steve got diagnosed in march 2013

After treatment and SCT he is in remission and currently on a drug trial

What I like to ask you all is , Steve often says he has a sensation of coldness coming from within his body

Does anyone have these symptoms ?

We have spoken to consultant but he did not seem to know what Steve…[Read more]

]]> 65728855b0609a49c6b64d6dce29c299 Phelps Lorraine replied to the topic Worried in the forum General http://www.myeloma.org.uk/forums/topic/worried/page/3/#post-123135 Sun, 19 Jul 2015 22:37:26 +0100 Hi Vicki
So sorry to read your posts .. As others have said really hope Colin can come home soon..
Thinking of you both
Lolly xxx

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