[LornaParticipant]

Hi Kerry

My goodness you have been handed quite a bad hand haven't you? I remember how overwhelmed I felt when my partner was given his original diagnosis, but I have come to realise over the last couple of years that we had it easy compared to others like you.

I'm not much help when it comes to certain aspects of the blooming disease but I am prepared to listen if you fancy a good moan.

I noticed you mentioned the QE in Birmingham. We live in Wolverhampton if it is any help.

Love Lorna x

[LornaParticipant]

Hi Gill

I am so sorry to read about your loss. I remember how much hope me and Mike gained when we first joined when we read about how well Stephen was doing.

I can only imagine how devastated you must be.

Love Lorna x x x

[LornaParticipant]

Hi Gil
From what I can gather on Facebook the news isn't good.

Lorna x x x

[LornaParticipant]

Hi Nicki

Great to hear Sam is doing well, long may it continue.

It's worth pointing out that green tea is a no no when on Velcade along with grapefuit in any form. I only mention it just in case.

Lorna x

[LornaParticipant]

Hi Andy

I do know of another person on DT-PACE, a young lady who attends the Royal in Liverpool. If you fancy reading about her experiences she has a blog:

http://feresaknit.wordpress.com/

Fingers crossed it does the trick for you too.

Lorna

[LornaParticipant]

Hi Wendy

This may be completely unrelated but after my hysterectomy my eyes became very itchy too. I know that Deb Gascoyne and Jet Black both mentioned post SCT menopause so possibly it could be that. Absolutely no help whatsoever I know. Wish I had an answer for you.

Lorna

[LornaParticipant]

Hi Eve

The first couple of cycles Mike would go up to the day unit for his appointment time, be sent down to get his bloods taken and then wait 4-5 hours for the results and Velcade to be made up in pharmacy. It was only when he started the 3rd cycle that he decided to go in at 9 to have his bloods taken and then come home. Even so, sometimes he'd have to wait for the Velcade and once he didn't get it until 7 in the evening!

Sorry if that doesn't help. 🙁

Lorna

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