[LouiseAParticipant]

Hi Peter,

It really is a small world. We moved to Hale in 2001 but we are both from Hull.

The doctor said that dad's results are an excellent response to the treatment. He started out with pp's at 47 and last week his pp's were undetectable after only 4 cycles of CDT. We are just waiting to get an appointment with Leeds for stem cell collection, the rest will be done at the new Queen's Centre for Oncology and Haematology in Hull. Currently dad is enjoying a rest from the treatment with antibiotics and antivirals for the shingles.

All the best for the 17th. Will that be Christies?

Best,

Louise

[LouiseAParticipant]

Dear Peter,

I'm so glad that the induction therapy worked and that you are ready for your SCT. I wish you the very best of luck and hope that you get through as smoothly as possible. I'm sure your positive attitude will help a quick recovery.

You may remember that you gave some advice for my dad (Garry from Hull) who was diagnosed in early October with Myeloma and was just about to start CDT. After 4 cycles and limited side effects his pp levels are now undetectable and he is now waiting for the SCT process to begin. We are so pleased with how well he is doing and he has been so brave, largely to do with reading all the contributions members make to this discussion forum. The only blip was when he contracted shingles which is quite painful but he is receiving treatment for that and is coping well.

Thanks again for your support and I shall be thinking of you when you go into hospital on the 17th.

Very best wishes,

Louise

P.S. I live in Hale, about 5 minutes away from Halebarns

[LouiseAParticipant]

Hi Everyone,

Dad has decided to opt for the MM 11 trial and was randomised to CDT treatment. He was in hospital for 5 hours today having had lots of prodcedures done (Bloods, bone marrow biopsy, treatment to protect his bones) and has come home with a sack full of tablets, needles, needle disposal box etc! He starts treatment tomorrow morning and has an appointment with doctors so that they can show him how to inject the anti-blooding clotting medicine. I was wondering if anyone had any tips for making sure he takes all the tablets etc at the right time? I thought maybe a spreadsheet with tablets, times to be taken and days of the week. He seems more upbeat about it all at the moment, I think he has been well looked after at the hospital and benefited from speaking to other Myeloma patients and nurses – I'm very proud of him!

All the best,

Louise

[LouiseAParticipant]

Thanks Jill, that's very reassuring to know.

Best wishes,

Louise

[LouiseAParticipant]

Thanks Nicola. I know what you mean about spending hours on the internet! I just wish I could find more about Myeloma IgM type – although I have just found something on the Myeloma US site. It sounds like your dad has been through a lot. It's reassuring to know that there are other once fit and healthy 70 year olds (plus) that have had treatment and are getting better.

The main problem for me is that my mum and dad live in another city which is a two hour drive away. I have two school age children (12 and 9 years) so it is impossible for me to offer day to day support other than to call them.

Thanks so much for your advice.

Best, Louise x

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