Myeloma Forum | LynBurn | Activity https://forum.myeloma.org.uk/members/Lynda/activity/ Activity feed for LynBurn. Sun, 05 Apr 2026 15:01:06 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 7acfdbf3b62cfa5d589d721452dfb5ef LynBurn replied to the topic POSTBONED in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/postboned#post-107575 Mon, 30 Apr 2012 18:28:12 +0100 Hello Eve and Slim,
Only just caught up with postings and was so sorry to hear your sad news.
You and your family are in our thoughts and Pete and I send you our love.x
Lynda and Pete xx

]]> 3103e9f848eab731afc48b6f5982f7d2 LynBurn replied to the topic Latest results :-( in the forum Treatment http://www.myeloma.org.uk/forums/topic/latest-results-#post-98934 Mon, 30 Apr 2012 18:21:37 +0100 Hi Andy
Just caught up with this post after replying to your post on "general".
I am so sorry your results from you Rev/Dex havent been so good. I really do hope as its only after your first cycle that its just a temporary blip and further cycles will be successful. I will keep fingers and toes crossed for your meeting with the consultant on…[Read more]

]]> a9097b525253bf9e4751d336ecc769e6 LynBurn replied to the topic I'm back. in the forum General http://www.myeloma.org.uk/forums/topic/im-back#post-92618 Mon, 30 Apr 2012 18:12:37 +0100 Hi Andy
So good to have you back. Sorry you had to pay an unscheduled stay to the hospital but glad you are now feeling much better.
Good luck with the Rev/Dex. Lets hope it stops those little sods in their tracks!!!!
Love Lyndax

]]> b2b004494fdb2eb65f68b01a2e596c98 LynBurn replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma#post-85855 Mon, 30 Apr 2012 18:08:31 +0100 Hi Ann
A very warm late welcome to you and to Pete.It must have been quite a shock to you both and you probably feel like the rug has been pulled out from under your feet.There is an awful lot to take in but take each day at a time. As others say this is the best site to go on with so much support. You will have lots of new things to take in but…[Read more]

]]> 128a29d0432797c2a381e470a1995c99 LynBurn replied to the topic counselling in the forum Carers http://www.myeloma.org.uk/forums/topic/counselling#post-106391 Fri, 20 Apr 2012 15:06:25 +0100 Hi Sarah
I was so sorry to hear that you had meltdown at the Doctors and hope you feel better today. Eight months is a long time on this rollercoaster of MM and you probably feel physically and emotionally drained.
I too am carer to my husband Pete who was diagnosed with MM a month after Henrys diagnosis.I was told that my GP could refer me…[Read more]

]]> 9205c5e4e5610f674c1a579ed4c4e795 LynBurn replied to the topic Another delay in the forum Treatment http://www.myeloma.org.uk/forums/topic/another-delay#post-99208 Fri, 20 Apr 2012 14:36:11 +0100 Hi Tina
Please keep that chin up. I know sometimes you just want to get on with things with a view to feeeling better and when things dont appear to move fast enough it does feel frustrating.
Good luck for Wednesday and I hope that the chemo will work well and give you the best results towards having SCT.
Love Lyndax

]]> baf4c3b5e7fc41fd4ee6af203a5f231d LynBurn replied to the topic Bridget in the forum Treatment http://www.myeloma.org.uk/forums/topic/bridget#post-99190 Fri, 20 Apr 2012 14:30:03 +0100 Hi Tom
I might have missed the boat but I would be so grateful if you could also pass on my love and good wishes to Bridget when you next go on Facebook.
I am not very good on the computer at the best of times and Facebook is altogether another ball game to me!!!!
Thank you so much
Love Lyndaxxxxxx

]]> b17019c3abea5ac54cbeb9fd75c1b720 LynBurn replied to the topic Pesky Paraproteins in the forum Treatment http://www.myeloma.org.uk/forums/topic/pesky-paraproteins#post-99169 Thu, 19 Apr 2012 19:14:03 +0100 Hi Paul
Thank you so much for your reply. It certainly has given us some encouragement that the Velcade will work. I will keep you posted.
Am really pleased for you that things are moving well towards Stem cell in June. Hopefully we wont be far behind you!!!
Take care. Love Lyndax

]]> 8d43f012e977dc74059bb0a32713d713 LynBurn replied to the topic Pesky Paraproteins in the forum Treatment http://www.myeloma.org.uk/forums/topic/pesky-paraproteins#post-99167 Wed, 18 Apr 2012 14:12:48 +0100 Hi Tom,Eve and Dai
Thank you all so much for your replies.It was nice to have such support and to know that Velcade has done the job with Slim and Dai.I feel more optimistic that it will work for Pete now.
Eve- Pete too has his in infusion weekly. I can understand Slims's frustration!!!!. We will be thinking of you both next Monday. Please keep…[Read more]

]]> 940ed0bec1339181f80e98d26a9bac45 LynBurn started the topic Pesky Paraproteins. in the forum Treatment http://www.myeloma.org.uk/forums/topic/pesky-paraproteins Mon, 16 Apr 2012 17:16:59 +0100 Hi Everyone
Just giving you an update on Pete. Diagnosed mm November 2011 after having really bad back pain. Put on CDT which worked well for a couple of months but now has plateau'd out on his paraproteins even when Thalidomide dose was doubled.
He had done really well gradually coming off morphine caps, diazepam and amitriptyline for his back…[Read more]

]]> 8445b31c6869de8c6e91ae771ab99e1c LynBurn replied to the topic SCT completed in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-completed#post-99106 Wed, 04 Apr 2012 18:16:36 +0100 Hi Sarah
What great news about Henry. So pleased he is home. 4 weeks is a long time away from home even if you see each other every day. Hope he will continue to improve and remission will be really, really long………….
Please keep us posted on how he is doing. Pete my husband is due for SCT in next few months if his paraproteins come down…[Read more]

]]> 7ba2e0ceaded60114cf18cf0ef5f2769 LynBurn replied to the topic Dexalicious... in the forum Side-effects http://www.myeloma.org.uk/forums/topic/dexalicious#post-104400 Sun, 18 Mar 2012 17:13:47 +0000 Hi Dai

Hubbie Pete has the tingling around mouth and lips since he started the Dex. No problems with passing water but does have hiccups most Tuesdays which lasted several hours. As you can imagine that was very tiring but he has found a great exercise which seems to now stop them. If needed I will gladly pass on to you. Also on Dex Day his…[Read more]

]]> 4cea7b66ba3217940f0c6333dc35971a LynBurn replied to the topic Starting CDT in the forum Treatment http://www.myeloma.org.uk/forums/topic/starting-cdt#post-98928 Mon, 05 Mar 2012 20:47:22 +0000 Hi there Mavis,
Sorry to hear you are having to join the CDT gang!

Hubby Pete was diagnosed with MM November 2011 and was started on CDT straight away and is now just finishing his 4th month. He has Cyclophosphomide 500 mg and Dexamethasone 20mg once weekly on Tuesday, and Thalidomide (originally 50mg) but upped to 100mg on third month every…[Read more]

]]> 4ad5527b7a83544653022c194ed017dc LynBurn replied to the topic 'Keep On Living On' (Song) in the forum Off topic http://www.myeloma.org.uk/forums/topic/keep-on-living-on-song#post-110175 Mon, 20 Feb 2012 17:43:00 +0000 Hi Dai,
Lovely song. Have printed it off computer and read it whenever I need a pick me up and it makes me smile and fills me with hope.
Love LynXXX

]]> 67a54706de48b836b99961460e101aec LynBurn replied to the topic Just to frighten you all!! in the forum General http://www.myeloma.org.uk/forums/topic/just-to-frighten-you-all#post-92229 Mon, 20 Feb 2012 17:30:55 +0000 Hi Mavis
Good photo with a nice smile. Havent worked out how to do that yet. Maybe thats a good thing as I could put quite a few people off. Ha Ha!!!!!
Love Lynxxx

]]> 8fa8dda6c9f529fb8fa6626e2d6852ff LynBurn replied to the topic HERE WE GO AGAIN !! in the forum Treatment http://www.myeloma.org.uk/forums/topic/here-we-go-again-#post-98760 Wed, 15 Feb 2012 12:35:02 +0000 Dear Bridget
Just saw your last posting and am really sorry you had such tough news.You have always been a tower of strength to everybody on this forum including me. You have to apply this strenghth to you now and I am sure that with all the love from your family and friends you will get through this as you are made of strong stuff you…[Read more]

]]> 02fd88af81918e647f6938d04e4f1673 LynBurn replied to the topic Info on SCT preparation in the forum General http://www.myeloma.org.uk/forums/topic/info-on-sct-preparation#post-92152 Sat, 11 Feb 2012 16:54:13 +0000 Hi Carol,
Just wanted to wish you luck for 24th February.My hubbie Pete will hopefully have his SCT April/May so I will watch out for your posts.It does sound an awful lot to go through but just keep thinking it will be worth it and you will be that much nearer to going to Spain!!!
Lyn

]]> c1d018aaea7c4bd33d4d88b1b43af330 LynBurn replied to the topic New Carer saying Hello in the forum Carers http://www.myeloma.org.uk/forums/topic/new-carer-saying-hello#post-106227 Fri, 10 Feb 2012 15:54:16 +0000 Hi there Bridget
Thanks so much for replying to my post. I have taken on board what you have said. I used to work in a busy pharmacy seeing lots of people but most of all working with a lovely bunch of girls. I finished after 10 years there to spend more time with Pete in September last year only for him to be diagnosed with Myeloma 8 weeks…[Read more]

]]> 5e56f1063b83c43e1b27b47f6cb1016f LynBurn replied to the topic New Carer saying Hello in the forum Carers http://www.myeloma.org.uk/forums/topic/new-carer-saying-hello#post-106225 Thu, 09 Feb 2012 19:19:42 +0000 Hi Craig,
Thank you so much for your reply.Your encouragement and advice has lifted my spirits and I have dusted myself down,lifted myself up and am more ready for the challenges ahead!!!!
Etta certainly sounds as if she has been through the mill the last few months but I am glad to know that she is improving with all your love and…[Read more]

]]> 37ca042e5b56b291aa24b823a1dec098 LynBurn replied to the topic Grief in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/grief#post-107395 Sun, 15 Jan 2012 11:34:04 +0000 Hi Chrissie,
My heart goes out to you. I am so very sorry for your loss. I do hope you have family and friends who will give you lots of support. This forum as I have found out will also give you lots of support. Please do not beat yourself up about Davids treatments. He fought this his way with courage and sheer determination. He was a very…[Read more]

]]> a75797ad371c0e56e9db4999a892260b LynBurn replied to the topic The Holiday Is Over in the forum Treatment http://www.myeloma.org.uk/forums/topic/the-holiday-is-over#post-98638 Sun, 08 Jan 2012 17:12:38 +0000 Hi Bridget
Just caught up with your post and really hope this treatment works for you.
I will keep fingers,toes and everything else crossed for you!
Keep that head up and that ole glass half full or even overflowing!!!
Love Lynxxxx

]]> e3d0aceb83a43562a2f8af5b3af62199 LynBurn replied to the topic REMISSION. in the forum General http://www.myeloma.org.uk/forums/topic/remission#post-91978 Sun, 08 Jan 2012 16:54:55 +0000 Dear Eve
Sorry I have only just caught up on computer and saw your great news.I am so happy and delighted for you both. I am new to this site but have been reading your posts for a little while now and realise what battles you have been fighting. Enjoy that cruise. You so deserve it.
Love from Lynx

]]> df5be1e2715597b0b28783ec6e41ec58 LynBurn replied to the topic New Carer saying Hello in the forum Carers http://www.myeloma.org.uk/forums/topic/new-carer-saying-hello#post-106223 Sat, 31 Dec 2011 16:40:50 +0000 Dear Mavis
Just wanted to say Thank you for your message of support and good wishes.
I am blessed that we are a close couple anyway, but this has made us even closer and your message to value each day certainly rings true.
It certainly sounds as if you have had quite a year, but I sincerely hope that 2012 will be a good one for you and Gordon.
Lyn xx

]]> aa1de122c154afbd823399cb273178be LynBurn started the topic Huge Thank you to you all. in the forum Carers http://www.myeloma.org.uk/forums/topic/huge-thank-you-to-you-all Fri, 30 Dec 2011 17:42:12 +0000 I just wanted to say a huge Thank you to you all for replying to my post.
I was blown away that you had taken the time and effort to reply especially as I realise that everyone has problems of their own to deal
with. Your messages have given us so much support and most of all hope. I realise that we are not on our own any more dealing with…[Read more]

]]> a79f4ebc7725e1205c63ffdf75103109 LynBurn replied to the topic New Carer saying Hello in the forum Carers http://www.myeloma.org.uk/forums/topic/new-carer-saying-hello#post-106221 Fri, 30 Dec 2011 17:30:46 +0000 I just wanted to say Thank you to you all for answering my post. I was blown away by the fact that people had taken the time to reply especially when I realise that you all have your own problems to deal with.
All your replies have given me encouragement and most of all hope for the future. I realise now that we are not alone in trying to cope…[Read more]

]]> 91b9aee89e82db1038140b03f2124aaf LynBurn started the topic New Carer saying Hello. in the forum Carers http://www.myeloma.org.uk/forums/topic/new-carer-saying-hello Wed, 28 Dec 2011 17:01:09 +0000 Hello everyone. My name is Lyn and I am carer to hubbie Pete who was diagnosed with myeloma November 5th, 2011(a date we wont forget in a hurry).He had been suffering on and off with a bad back for 18 months and we went to GP as things were not improving. We happened to mention that Pete had been suffering with night sweats which must have rung…[Read more]

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