Myeloma Forum | LynneWaters | Activity https://forum.myeloma.org.uk/members/Lynnie/activity/ Activity feed for LynneWaters. Mon, 06 Apr 2026 08:38:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 d1235a8f48c8d1f565a3e95363dab6c8 LynneWaters replied to the topic Couldn't bear to share this until now! in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/couldnt-bear-to-share-this-until-now#post-107724 Wed, 15 Aug 2012 22:17:35 +0100 Dear Gill and Tom – I'm glad I helped. My John was also very laid back but the last year in particular he did get the grumps sometimes. I'm sure it was the medication but also frustration, tiredness and the uncertainty of it all. Near the end he told me he wasn't afraid of dying but was not ready to leave me and others in the family that he…[Read more]

]]> 13b1d9789fc41f21928463a6360854c0 LynneWaters replied to the topic Couldn't bear to share this until now! in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/couldnt-bear-to-share-this-until-now#post-107720 Sat, 11 Aug 2012 20:20:56 +0100 Oh thank you so much Eve, Eliz and Sarah, your kind messages are so helpful.

I do have two caring sons, their wives, two beautiful granddaughters (another on the way) and some good friends …. but, of course, I can't expect them to be here all the time, after all they have their own lives.

I went for an extremely long walk today. I have…[Read more]

]]> bb3ece7d0a2b9df7bbbdbb8aa3a480bf LynneWaters replied to the topic Couldn't bear to share this until now! in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/couldnt-bear-to-share-this-until-now#post-107715 Fri, 10 Aug 2012 21:45:52 +0100 Dear Tom, Jean and Dai
Thank you all so much for your kind and wise words of comfort. I shall bear them in mind during the coming weeks.
Even though John had been ill for such a long time, it was still a shock when he passed away – strange really.
All I can say to anybody caring for someone with this terrible disease is ….. cherish each…[Read more]

]]> fc79e0306a72c63b93b07129ff98e395 LynneWaters started the topic Couldn't bear to share this until now!. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/couldnt-bear-to-share-this-until-now Fri, 10 Aug 2012 13:31:25 +0100 I'm so sorry I haven't been on here for some time but have been so wrapped up in caring for my husband John who sadly passed away 4 weeks ago today. Many of you have helped me over the last couple of years so it's only fair that I now share this with you.
Myeloma ruined John's kidneys and he had been having dialysis 3 times a week for nearly 2…[Read more]

]]> 5cea41a2f9833eeeff6f7c99fe725488 LynneWaters replied to the topic HERE WE GO AGAIN !! in the forum Treatment http://www.myeloma.org.uk/forums/topic/here-we-go-again-/page/4/#post-98795 Fri, 02 Mar 2012 16:17:19 +0000 Dear Bridget
I was very sorry to read your last post. It's not fair that you, who has given so much time, help and comfort to others, should be told this news. Just to say that I very much hope that they find something else for you to try and to send my best wishes and love.
Lynne xx

]]> d1ffcb82e712db945ac9eb5b14998e1f LynneWaters replied to the topic Mum has passed away :-( in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/mum-has-passed-away-#post-107353 Wed, 30 Nov 2011 14:11:26 +0000 Hello Gina
I also have been following your posts and would like to add my condolences. My thoughts are with you and your family at this sad time.
Lynne x

]]> bfc6be86d162185e43675250299037ad LynneWaters replied to the topic Where Are You ? in the forum Off topic http://www.myeloma.org.uk/forums/topic/where-are-you-/page/3/#post-109968 Thu, 24 Nov 2011 16:13:15 +0000 Hello Tom
I just wanted to say how very lovely it was of you to answer each one of us. I don't often write on here but do read everyone's threads regularly and your smiley face and bright outlook on life always brings a smile to my face. That's just what we all need. Thank you.
Best wishes, Lynne

]]> be0031af57d968856abb8a34cb061f33 LynneWaters replied to the topic Where Are You ? in the forum Off topic http://www.myeloma.org.uk/forums/topic/where-are-you-/page/2/#post-109964 Thu, 24 Nov 2011 10:12:27 +0000 Hello All
My name is Lynne, I'm 57 and I'm a carer for my husband John who is 64 and has Kappa Light Chain Myeloma (originally thought to be non secretory). We live in Whitstable, Kent and John is treated in Kent & Canterbury Hospital by Dr Lindsey. John's myeloma destroyed his kidneys last November and he's been on dialysis 3 times a week…[Read more]

]]> f7d46efc1f8b67afa0e17e21e791bf46 LynneWaters replied to the topic Hello All, Michael's garden is done in the forum Off topic http://www.myeloma.org.uk/forums/topic/hello-all-michaels-garden-is-done#post-109519 Wed, 17 Aug 2011 16:14:34 +0100 Hello there Roz

I think Michael's garden is lovely – well done! It's the ideal place to speak to him.

Lynne x

]]> cce0fe3defc4ba5b583b327a0278cbd1 LynneWaters replied to the topic Gordon in the forum General http://www.myeloma.org.uk/forums/topic/gordon/page/2/#post-90956 Wed, 10 Aug 2011 16:25:53 +0100 Dear Sarah
Just read your very sad news today and wanted to let you know that even though I don't often 'talk' on this forum – I do read and take an interest. You are all wonderful, caring people. My thoughts are with you Sarah, at this sad time.
Lynne x

]]> 39dc880f419d7acdcb85808aa8280803 LynneWaters replied to the topic Keep your fingers crossed for me please. in the forum Carers http://www.myeloma.org.uk/forums/topic/keep-your-fingers-crossed-for-me-please#post-105834 Fri, 07 Jan 2011 14:27:54 +0000 Dear Min
Oh that sounds wonderful and why shouldn't you do some things for yourself for a change. I'll certainly be looking to do the same thing when our mortgage is paid. So good luck with that and I hope you get accepted.

Lynne x

]]> 0cb869bf3d939e7705f8773feb5f505e LynneWaters replied to the topic Second hurdle starts tomorrow in the forum General http://www.myeloma.org.uk/forums/topic/second-hurdle-starts-tomorrow/page/2/#post-89396 Tue, 04 Jan 2011 15:59:14 +0000 Dear Roz

Will be thinking of you and your girls on Friday and hoping that all goes as smoothly as possible. I'm here for you, along with your other friends, whenever you need to talk.
God Bless you.

Lynne x

]]> d8bf255c00c4dd09ddc68549f3f5b420 LynneWaters replied to the topic Thank you in the forum General http://www.myeloma.org.uk/forums/topic/thank-you#post-89360 Sun, 26 Dec 2010 11:11:49 +0000 Dear Roz

I've just logged in for the first time since before Christmas and was so so sad to see that you have lost your darling Michael. You have been so brave and I'm sending you my love and thinking of you at this sad time.

I'm not entirely sure about donations but I think the funeral directors will also offer to arrange donations to be…[Read more]

]]> 7c64f2febbd37c6bb0d0d8ad2c2d0cf5 LynneWaters replied to the topic Michael is dying in the forum General http://www.myeloma.org.uk/forums/topic/michael-is-dying#post-89193 Thu, 16 Dec 2010 16:50:53 +0000 Thinking and praying for Michael and you, Roz.

Love

Lynne x

]]> 64d4e78e3e745444437e83eb419788e1 LynneWaters replied to the topic Needing some reassurance here please in the forum Carers http://www.myeloma.org.uk/forums/topic/needing-some-reassurance-here-please#post-105810 Fri, 03 Dec 2010 13:05:57 +0000 Thank you so much Bridget and Gill – John phoned earlier today to say that they are taking a biopsy via his sternum next Monday. It's not viable through his hip as he's recently had a hip replacement. I think he's a bit worried about it. I must admit it does sound gruesome – do you know of anyone whose had this done?

I haven't seen John…[Read more]

]]> 01908b08421725356bfb581995f5866c LynneWaters replied to the topic How do you cope alone. Advice Loosing it in the forum Carers http://www.myeloma.org.uk/forums/topic/how-do-you-cope-alone-advice-loosing-it#post-105812 Fri, 03 Dec 2010 12:33:58 +0000 Hello Roz

I'm sorry you are feeling so lonely. Is there anyone you can phone for a chat? I'm also sorry to hear that Michael's arm is still very bad. What antibiotic is he on? My John was on Teikoplanin intraveniously for a couple of years on and off but mostly on, for osteomyelitis in his leg which was terribly infected. They finally got…[Read more]

]]> 598729bf954b39c789b1e2bd4d84b73f LynneWaters replied to the topic Needing some reassurance here please in the forum Carers http://www.myeloma.org.uk/forums/topic/needing-some-reassurance-here-please#post-105807 Mon, 29 Nov 2010 22:29:46 +0000 Hello Gaye
Thank you so much for your kind words and thoughts.
It is very hard. Today John was told that his kidneys are unlikely to repair themselves. He took this news badly, of course and phoned me at work, very down. I managed to leave early to visit him, give him a big hug and a good talking to. I told him that plenty of people go on…[Read more]

]]> a60e47e77395b0aee64ee2cf5d505715 LynneWaters replied to the topic Michael's nurse phoned last night in the forum General http://www.myeloma.org.uk/forums/topic/michaels-nurse-phoned-last-night#post-89086 Mon, 29 Nov 2010 21:49:03 +0000 Hello Roz

I'll be thinking about you on Thursday and hoping you get some answers. Wishing for some better news for you.

Lynne x

]]> 12a40523027306d5fd55a1591cda0eee LynneWaters replied to the topic Needing some reassurance here please in the forum Carers http://www.myeloma.org.uk/forums/topic/needing-some-reassurance-here-please#post-105803 Fri, 26 Nov 2010 21:46:39 +0000 Hello Roz

I'm so sorry I haven't been in touch lately but as you can see, John has been very ill since I last emailed you. I'm so sorry to see that Michael is still very poorly.

Thank you so much for taking the time to reply to my plea for help. You are quite right about taking one day at a time – you should know all about that.

All…[Read more]

]]> c2881f39a300c46b3470f502b509ecfd LynneWaters replied to the topic Needing some reassurance here please in the forum Carers http://www.myeloma.org.uk/forums/topic/needing-some-reassurance-here-please#post-105801 Fri, 26 Nov 2010 21:30:58 +0000 Hello Bridget
You are sooo kind. I've always read your posts and you are always there when people need you.

John had a kidney biopsy yesterday to see how much damage the Myeloma has done. Some results will come back fairly quickly but others will take some time,I'm told. John was a bit down yesterday after the doctors did their rounds – I…[Read more]

]]> 2334a2c352c238a69f9b3e7b2117d1e3 LynneWaters replied to the topic Needing some reassurance here please in the forum Carers http://www.myeloma.org.uk/forums/topic/needing-some-reassurance-here-please#post-105799 Fri, 26 Nov 2010 20:45:38 +0000 Thank you so much for that John. I read Desiderata and it is a beautiful poem – I've printed it so that I can read it when I get a bit down. I had a little cry and then read some of your back posts and your jokes made me laugh so that was good. It sounds like you and your wife have had your share of worries too, so thank you for taking the time…[Read more]

]]> 268b76c9d1d3e298595baba6d5629002 LynneWaters started the topic Needing some reassurance here please. in the forum Carers http://www.myeloma.org.uk/forums/topic/needing-some-reassurance-here-please Thu, 25 Nov 2010 12:29:25 +0000 Hello
I've posted on the old site a few times. I care for my husband, John who's had it quite tough over the last few years. Just a quick history – Rheumatoid Arthritis, several knee replacements due to Osteomyelitis, broken ankle, broken hip due to a massive Plasmacytoma and then diagnosed in 2008 with Non-secretory Myeloma. He had CDT for…[Read more]

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