MarinaFrankel

Forum Replies Created

Viewing 5 posts - 1 through 5 (of 5 total)
  • Author
    Posts
  • #103071

    MF1
    Participant

    Dear all!
    Just a quick update on my post hoping it may help other anxious carers (and ultimately the MM sufferers) post the transplant.

    It has been a few days now since my last post. Hubby has been rapidly improving. The solution to the issue of food and fluid intake was in me making a conclusion that he needed to eat and drink to survive. In his state he was too weak to look after himself. However, he was also too week to constantly refuse. So the solution was in offering food and drink (constantly) and nagging (constantly). Perhaps even sneaking… constantly.

    Initially Hubby could not manage to keep in anything but a crushed ice milkshake and squash drinks. I added full ream ice cream and the same flavour protein supplements into his milkshake and diluted multivitamins into his squash. When Hubby asked what was the strange taste? Lied it must have been his damaged taste buds :).

    From the shakes he progressed to yoghurt and cheese. Then to smoothies (banana, mango, strawberry, etc). Then he could eat kids pods with mushed fruit. Then managed milky coffee. Then a chicken breast curry I made using the "from 6-month old" kids range mild curry paste.

    This progressed to him having a full plate of fish and chips and a cake yesterday and a big breakfast today.

    He is still weak but is now able to concentrate on TV and IT which I see as him truly returning to his old self.

    I know that every person is different and every sufferer's recovery is different. However, I have now read numerous postings about post transplant recovery and they are all the same regarding one thing: it gradually gets better. It does…

    #103069

    MF1
    Participant

    Thank you so much for your answers. They helped a lot to put me in the right frame of mind. I will be calling the hospital nurse today with my questions. (Hubby categorically does not want me to call them as he says he has all the pills he needs and does not wish to go back). A small update on my Hubby. He was drinking yesterday despite being nauseous constantly. He had managed an ice-cream and a milkshake (cold drink is easier for him), so I made him one out of full cream ice cream with added multivitamin complex protein powder.

    His temperature is still the same 37.4C. It does not seem to go down to 36.6C (which I see as normal). He does take Paracetamol but only sparingly as he says he can't keep it down. Not had blackouts. Managed to go upstairs to bed. He looks a bit better but just looking at him gives me a feeling that time is standing still… I would so much like to feed him a proper fillet steak with chips… :)!!!

    #101800

    MF1
    Participant

    Thank you Megan. I had actually demanded my husband being placed in seclusion. I presume I was not vocal enough… At some point I was told that they will do the bloods and then check the amount of white cells on which they will form their decision to put him in a single room – this is (looking back) rubbish.

    I am grateful to the chap who did me the Xrays disclosure. I am going to write to the Hospital with my thanks to him personally/to his management. Without him we would not have known how bad my hubby' hip really was… and to GP for seeing me…

    #101797

    MF1
    Participant

    Thank you. 🙂

    #101798

    MF1
    Participant

    Thank you, Tom 🙂

Viewing 5 posts - 1 through 5 (of 5 total)