Myeloma Forum | MandyCauser | Activity https://forum.myeloma.org.uk/members/MJC1970/activity/ Activity feed for MandyCauser. Sat, 25 Apr 2026 22:37:41 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 1d5172e0c1049b595bc98684e364197a MandyCauser replied to the topic Velcade induced Neuropathy in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-induced-neuropathy/page/2/#post-104223 Fri, 03 Feb 2012 03:09:23 +0000 Hi Debs and everyone

I hope you don't mind me writing to you but I was wondering how your PN was doing? My mum, who was diagnosed with MM in Dec 2011 has now been hospitalized due to PN because she can't stand or walk and she can barely hold anything. She is in constant pain. (She had two weeks of Velcade and this is the result).

The…[Read more]

]]> f8fb8bc91050fa21c6ea1cfebd90050f MandyCauser replied to the topic My mum was diagnosed with MM in December 2011 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum-was-diagnosed-with-mm-in-december-2011#post-85492 Mon, 23 Jan 2012 02:36:49 +0000 Thanks for your response, Kay. I am hoping that the hospital will diagnose something for my mum when she has her appointment tomorrow.

I hope you are doing well, despite your PN.

Mandy x

]]> b670bbeb169d6886244925680564be43 MandyCauser replied to the topic My mum was diagnosed with MM in December 2011 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum-was-diagnosed-with-mm-in-december-2011#post-85490 Sat, 21 Jan 2012 20:37:12 +0000 Hi Eve and Tom

Thank you for your replies – it is hard to believe that 3 months ago, before my mum knew that she had MM, before she started chemo, she was living a normal, active life. At the the moment, she is is confined to an armchair and can't even walk to the toilet. She has an appointment with her consultant on Monday to discuss her…[Read more]

]]> 0198beb05b08860b3567d92f9cacb961 MandyCauser replied to the topic My mum was diagnosed with MM in December 2011 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum-was-diagnosed-with-mm-in-december-2011#post-85487 Sat, 21 Jan 2012 04:25:35 +0000 Hi Dai

Thank you so much for your quick response – I've emailed my mum with the name of Gabapentin and suggested she discuss this with the hospital and doctor. She really needs some relief from this as she has been positive up to this point, but this is debilitating and she sees no end in sight.

Hopefully she will join the forum – right now…[Read more]

]]> 80167e4d122068731b9040e9ab069b91 MandyCauser started the topic My mum was diagnosed with MM in December 2011. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-mum-was-diagnosed-with-mm-in-december-2011 Sat, 21 Jan 2012 00:10:47 +0000 Hi Everyone.

My mum was diagnosed with MM in December 2011. Since her diagnosis, she had two weeks of chemo together with Velcade, then contracted pneumonia so was hospitalized again. She was then released and is now suffering terribly from peripheral neuropathy to the point where she can't sleep, can't walk, can't hold a pen. 3 months…[Read more]

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