[MalParticipant]

Hi Andy,
Thanks for your invaluable advice! We seem to be getting most things right so far, which isn't far I suppose, eeverything that moves is disinfected and we have hand gel for anyone comming into the house to use, but at the sme time we are trying as much not to let it rule our lives completely, you may see by th times of my posts that I m the full night owl, at the moment I'm unable to sleep laying down as I have a fractured vertebra in my lower back so I'm camped out on a lounge chair mainy listening to audio books, Hendrix and Floyd on my ipod and tablet.
Funny how things seem to come to a complete stop after being in work for nearly forty years, this wasn't in my plans at all, I thought I had had my 'blip' when I had a heart attack two years ago but we jut have to take whatt is thrown our way.
Every day at a time !
Mal

[MalParticipant]

Hi Andy,
Thanks for your contact, as you caan imagine I'm just gettin to gripps with all of this and not up on the ternminology at all, dont even know what my PPs started off at , but ill be sure to ask at next appointment in a couple of weeks .
Any other tips I should ask about from your experiance ? Fortunately there is a good cancer centre just down the road here in preston and all the staff are really nice. I have been reading a lot of peoples journeys on here and they all seem very different, some seem to be doing really well and others are really having the toughest time , the risk of infections seems to be a really big priority, do you have to cut yourself off or just take a chance? I suppose just a common cold can put you in hosp? Karen, my partner is bein great about stuff and is givin me blood thinning shots and keeping the house like a sterile environment! I expect that's all we can do. Thanks again for your help. Mal

[MalParticipant]

Hello Andy,
Im new here and just started cycle 1 on thalidomide, you seem many times down the road, im told six cycles then bmt, who are you getting on with things ? As you can imagine, I have no idea whow things will go and what to expect , best wishes to you
Mal, age 59,

[Author]

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