Sorry after such a lengthy post I forgot you asked about side effects. I think Steve's side effect were made worse by the shock of suddenly going from a fit healthy man to someone who was totally dependant and incapable. He got pretty depressed and anxious, totally out of character, but he had a wonderful counsellor who helped with that. He found…[Read more]

Dear Mavis,

Yes Steve had his op on 7th Jan 2010. His consultants decided not give him any radiotherapy as they felt the chemo would deal with any of the tumour that was still left behind. He came out of hospital end of Jan and started CDT in mid February. At the time we were told this was the 'gold standard' in treatment but things are moving…[Read more]

Hello Susan,

My husband had a simliar experience to your Dad's. His myeloma was diagnosed last January when he lost the use of his legs and underwent emergency spinal surgery. You mention taking your Dad to your physio. He should get physiotherapy on the NHS from a specialist neuro physio. You may have to push for this, we certainly had to, but…[Read more]

Ah Blooming, now i like that, I just might have to adopt it. My grandmother used to use it, along with 'Dash it' with considerable irritation when things did not go her way. This is the way forward for me I think!

Hi Debs,

Not heard of myeloma XI trial, what does it involve? I hope it goes well for you,

Love and best wishes,

Mari xx

Good luck David

I hope all goes well on Monday and in the weeks to come and you are home in time for a relaxed Christmas,

All the best,

Mari x

Message received and understood, but i think i learned my lesson last time!

Hi guys,
I am home alone tonight because Steve is out at his first band practice since his SCT. The first sign of him feeling better was the sound of the guitar in the house again. I am chufffed that he is back with the boys again, as are they.

I am sure he would be interested in doing something musical with everyone if there was a…[Read more]

Dear Fran,

Good luck for your SCT next week. You sound so positive I am sure you will come out well on the other side. I have not experienced one myself but only been with my husband as he went through it. I think everyone will agree that it is a tough thing to go through but very worthwhile. Steve is now 8 weeks post SCT and his blood levels…[Read more]

Good luck Debs, I am glad you know where you are now and can go forward with the CTD positively.The one thing I can say from my experience of seeing Steve on CTD is that the time goes by very quickly and when you come off it the side effects disappear very quickly.

Thinking of you and wishing you well,

love Mari xx

Dear Stuart,

Most of the people who post on here are living with myeloma themselves but there are are also a few of us here who are husbands, wives, partners, sons and daughters. Maybe there could be a topic for them, i hesitate to use the term carer, i have used it in the past but I am no longer happy that it it is appropriate. What do others…[Read more]

Dear Sarah,

Literally just got back from KCH. Today it is 7 weeks since Steve had his SCT and four week since he was discharged. We saw Steve Schey today, not sure if he is your consultant but I always find him very positive. He was telling us that some people in Little Rock have had as many as four SCT's! He said that it shows people can take…[Read more]

Thats beautiful Lee, gonna be a tough one to follow!

I agree, it would also be nice to have a BACK button that takes you back to the discussion topics like there is on the old site,

Thank you,

Mari

PS and can we also get rid of the subject box on replies, I sat here for ages wondering why my post would not work before I realised! Silly me, but sometimes there just isn't a subject for a reply.

Dear Roz,

I have been reading your posts over the last few months, but sometimes dont reply as I dont have as much to add as the more experienced people on here. I know you have had a really tough time recently. My husband Steve has just had his SCT and has been home from hospital for 3 weeks. I am so lucky that I still have my daughter living…[Read more]

I would not be too sure David, that drug they showed at the end working on the replication process of the cancer cells looked pretty good. There are some mighty clever people out there working on this and that gives me great confidence. I hope your SCT next month gives a good remission. If you go in on 22nd Nov, then you might just get your cells…[Read more]