DOH sorry Tom, I had not read your post properly, that serves me right for sneaking a peep at the website during a break at work!

M xx

Hi Amelie,

I have heard of the M component but I dont have any idea of it's significance. My first port of call would be a call to Ellen on the infoline. I realise that may not be so easy for you as you are out of the country but maybe an email to her would do the trick and she would answer your question or point you in the right direction I am…[Read more]

Dear Gill,

I have not been around so much recently and I have missed quite a few posts. It seems that Stephen has been through a difficult spell of late, I know how hard this has been for you, although I know you support him superbly. I wish you both luck as Stephen goes in for his op and i hope that he will soon be feeling better…[Read more]

Dear Bridget,

So sorry you have been have such a bad time of late with all these horrid symptoms and side effects. I am glad you found a good way through your RT and I hope your next session goes well and brings some relief. Hopefully you can get on to the next stage soon and get a bit of peace again after that,

Much love Mari xx

More excellent news on the numbers Dai. Long may it last for you and Janet,

Love Mari xx

Hello Ivan,

Very pleased to hear your counts are down, as the others have said any drop in PP levels is good.

If would like any more information about what paraproteins are, and some of the other indicators that are monitored, have a look at the Myeloma Uk Infosheets. I am pretty sure that you can find them under the
'What is myeloma?' tab…[Read more]

I guess you will have had your RT by now, Bridget, i hope all has gone well and you quickly get some long lasting relief from your pain,

love Mari xx

I am delighted to hear your news Dai, its just brilliant, long may it continue,

Mari x

Dear Roz,

I am so sorry that you are not getting the help you need from your GP and social worker. If you feel strong enough you should pester them and make sure you have not been forgotten, this does have too often I am afraid.

Have you tried phoning Ellen at Myeloma UK? She was wonderful when Steve was first diagnosed and helped me a…[Read more]

Dear Gill,

I hope you had a great time at your class, we will be expecting posts in French from you now!

Love Mari x

Thanks for that warning Tina, I was not aware of that problem with Zometa, nor was Steve to my knowledge but its a very important point.

Hope you are well my dear,

Love Mari x

No he was not allergic to pamidronate, he swapped because of the way zometa has been shown to help prolong remission,

M x

Dear Amelie,

I am not sure but I think Zometa is considered to be the best option. My husband Stephen swapped from Pamidronate to Zometa and now has it monthly since he had has SCT. He has to have his calcium levels checked before he has the zometa infusion in case it brings his calcium levels down too far, and as they are often on the low side…[Read more]

Dear Amelie,

This is such a difficult issue. For some people being able to work and in our case provide for a family, are very closely related to their self respect and self esteem. All my husband could think of when he was so ill with the symptoms and treatment for myeloma was getting back to normal, he was obsessed with it and it became his…[Read more]

Dear Min,

I have not been here for a while and it was such a shock to hear of Peter's sudden passing. I am sending you and your family my deepest sympathy and you will all be in my thoughts as you say good bye to Peter on Wednesday and afterwards,

Much love Mari xx

My dear Sarah,

I was with utter shock that I read your post today. I am so so sorry for the your of your beloved Gordon. I cannot find words to express my sorrow at this news but my thoughts and tears with be with you at this time,

With love,

Mari xxx

Dear Gill,

So sorry to hear that Stephen has had such a tough time with his SCT. I hope that now you have him home he will start to feel better and regain his strength. I know how strong you are as well, but do remember to look after yourself as well. Here's to a long hot summer, anytime now(!), that you can both enjoy and re energise,

Love…[Read more]

So pleasd to hear you can play again, i know that must mean a great deal to you. It sounds as if you are responding marvellously, keep going.

Also good to hear you doctor is considering something approaching a 'personal dose' for you as well, you will surely tolerate it so much more

Best wishes for the rest of it,

Mari x

Thank you for your comments and words of encouragement everyone

[b]Roz[/b], it is so good to see you posting here again, I know things have been tough for you, but your rose garden sounds a lovely idea and I hope you are beginning to find things a little easier with time.
Dead right [b]Tom[/b], I did shed the odd tear but my daughter let on to…[Read more]

Dear Bridget,

I am so sorry you are having such a bad time and I hope you find a way to make things easier soon,

Love Mari x