[MariParticipant]

Thats beautiful Lee, gonna be a tough one to follow!

[MariParticipant]

I agree, it would also be nice to have a BACK button that takes you back to the discussion topics like there is on the old site,

Thank you,

Mari

PS and can we also get rid of the subject box on replies, I sat here for ages wondering why my post would not work before I realised! Silly me, but sometimes there just isn't a subject for a reply.

[MariParticipant]

Dear Roz,

I have been reading your posts over the last few months, but sometimes dont reply as I dont have as much to add as the more experienced people on here. I know you have had a really tough time recently. My husband Steve has just had his SCT and has been home from hospital for 3 weeks. I am so lucky that I still have my daughter living at home. She is a Carer in a rest home and I have been able to rely on her a great deal. However she is off travelling to Australia a week tomorrow and I know we are going to miss her terribly. I know what you mean about needing someone else to talk to when you cant talk to your husband. There are just somethings you cant say to them. I work full time as a teacher and that helps me a great deal. Do you have any friends or family that you can chat to on the phone in the evenings, especially when things are especially difficult with Michael? Is there anyone close enough to just pop in even for a few minutes to see how things are going? I am really happy to be here for you as much as I can but I dont know if i am knowledgeable enough to help with some of the things you are going through but I am always happy to listen. I know you live 'up north' somewhere but I wish i could give you a big hug. I think you are doing a great job in very trying circumstances. Just give yourself some time and know you are doing the very best you can for Michael. Dont worry about not doing enough, we are all only human. I am sure he knows how much you love and care for him even though he is feeling unwell and battling with this awful disease. I have seen that in Steve sometimes when he has been very ill, almost that he has no time or strength for anything else but the battle. This has become a very long message but I hope you get some comfort from the fact that we are all in this together and we support you as much as we can and stand behind you in your difficulties,

Love and HUGS, Mari xxx

[MariParticipant]

I would not be too sure David, that drug they showed at the end working on the replication process of the cancer cells looked pretty good. There are some mighty clever people out there working on this and that gives me great confidence. I hope your SCT next month gives a good remission. If you go in on 22nd Nov, then you might just get your cells back on my birthday, 24th November. I hope that brings you luck, and who knows what might be available by the time you next need some treatment,

Hope you stay well until the time comes,

Love Mari xx

[Author]

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