Meera replied to the topic Plasmacytoma in the forum Related conditions 12 years ago
Hi Adrienne
My symptoms were quite varied. I have severe bone pain associated with the sternum (except I didn't know that was bone pain). It was often excruciating but I felt it very difficult to describe. It was painful just to touch my chest area let alone apply light pressure. I also had muscular pain in my back, neck and shoulders. I found…[Read more]
Meera replied to the topic Plasmacytoma in the forum Related conditions 12 years, 5 months ago
Hi Richie
Sorry for the late reply, just seen this.
I understand about the frustration of being restricted, I am still struggling with upper body strength and mobilty.
Good luck with it all and hope things are getting better for you.
Meera
Meera replied to the topic Plasmacytoma – looking for good news in the forum Newcomers 12 years, 5 months ago
Hi Charlotte
I was diagnosed woth solitary bony plasmacytoma in my sternum in May 2011. I had steroids and 5 wks of radiotherapy. Following treatment there was no paraprotein trace but I still had high serum free kappa light chains. These gradually reduced at each blood test but it took until August 2012 for them to return to normal levels. My…[Read more]
Meera replied to the topic Plasmacytoma in the forum Related conditions 13 years, 4 months ago
Hi Suru
How are things going with you? Is you appetite any better?
At the moment I am having blood tests every couple of months, my kappa light chains have decreased but are still present, and I had an MRI at the end of Sept when they suspected the fracture. The tumour didn't look any different compared to the pre-treatment scans at that…[Read more]
Meera replied to the topic Plasmacytoma in the forum Related conditions 13 years, 4 months ago
Dear All
Thank you all for your replies. It's been 3 months since I completed my treatment. After that I then has a suspected fracture of the sternum, probably because it was weakend by the tumour. Well that made life difficult for a bit! Anyway things are getting better now. Fortunately my enery levels are picking up, as my now 13 month old is…[Read more]
Meera started the topic Plasmacytoma. in the forum Related conditions 13 years, 7 months ago
Hi. I was recently diagnosed with plasmacytoma of the sternum, for which I've just completed 5 weeks of radiotherapy and pulse doses of dexamethason. I was just wondering if there was anyone else out there who has had plasmacytoma? Do you have any words of advice-things to look out for, things to avoid. I have been warned there is a large risk of…[Read more]