MeeraShah

  • Meera replied to the topic Plasmacytoma in the forum Related conditions 12 years, 6 months ago

    Hi Adrienne

    My symptoms were quite varied. I have severe bone pain associated with the sternum (except I didn't know that was bone pain). It was often excruciating but I felt it very difficult to describe. It was painful just to touch my chest area let alone apply light pressure. I also had muscular pain in my back, neck and shoulders. I found…[Read more]

  • Meera replied to the topic Plasmacytoma in the forum Related conditions 12 years, 11 months ago

    Hi Richie
    Sorry for the late reply, just seen this.
    I understand about the frustration of being restricted, I am still struggling with upper body strength and mobilty.
    Good luck with it all and hope things are getting better for you.
    Meera

  • Hi Charlotte
    I was diagnosed woth solitary bony plasmacytoma in my sternum in May 2011. I had steroids and 5 wks of radiotherapy. Following treatment there was no paraprotein trace but I still had high serum free kappa light chains. These gradually reduced at each blood test but it took until August 2012 for them to return to normal levels. My…[Read more]

  • Meera replied to the topic Plasmacytoma in the forum Related conditions 13 years, 10 months ago

    Hi Suru

    How are things going with you? Is you appetite any better?

    At the moment I am having blood tests every couple of months, my kappa light chains have decreased but are still present, and I had an MRI at the end of Sept when they suspected the fracture. The tumour didn't look any different compared to the pre-treatment scans at that…[Read more]

  • Meera replied to the topic Plasmacytoma in the forum Related conditions 13 years, 10 months ago

    Dear All

    Thank you all for your replies. It's been 3 months since I completed my treatment. After that I then has a suspected fracture of the sternum, probably because it was weakend by the tumour. Well that made life difficult for a bit! Anyway things are getting better now. Fortunately my enery levels are picking up, as my now 13 month old is…[Read more]

  • Hi. I was recently diagnosed with plasmacytoma of the sternum, for which I've just completed 5 weeks of radiotherapy and pulse doses of dexamethason. I was just wondering if there was anyone else out there who has had plasmacytoma? Do you have any words of advice-things to look out for, things to avoid. I have been warned there is a large risk of…[Read more]