Hi Andy

You are getting their slowly am afraid but getting their non the less 😀

Keep them going the correct way and Trust me you wont need a brollies as I am told you dont get wet inside a Pub??? well I do but it is the inside 😀

Have a great Time and relax with a pint or two.

Tom "Onwards and Upwards" x

Hi Eve

Well am pleased you will be in contact so you can sort me out if I get Nawtry Lol.

You two have a great time and I promise I will behave (fingers crosssed he he)

Catcha Lata

Iccle ole me xxxx

Congratulations Wendy,

It is so good to see positive milestones show up on the board and especially by such a regular contributor with a positive attitude and such a helpful demeanour. 🙂

Let's look forward to September 1st, 2013 and your second anniversary… with a wonderful, infection free and healthy twelve months in-between. 8-)…[Read more]

Thank you Theresa,

The a-b's are working at the moment but I am still feeling washed out. I have had to put off a visit from my little sister and nephew at the last moment (tomorrow – Monday) because she is taking a-b's for a viral infection caused by a tooth access… I just dare not risk it with my Neutrofils down to 1.6 from 2.5. 🙁

I…[Read more]

Hi Andy,

It's a matter of slow, slow, drip, drip, slow for you at the moment but as folks have pointed out it's in the right direction. Your frustration levels must be extremely high but much better than the alternative.8-)

I am sure that Prof. Jackson will come up with something to get you onto the SCT programme but in the meantime enjoy…[Read more]

Hello Amanda and Bob
welcome sorry you have had to join must be a big shock for you both you will get all the help and information you need on this site with many friends to support you keep in touch
Love Jo x

Hi Amanda and Bob

Welcome, I hope you get out of this site what I have over the years 😎
Let us know where Bob is being treated as am sure we will have some in here that are have been treated their and can give you more advice.

Ask away and hope your road through the MM is a smoth one.

Tom "Onwards and Upwards" xx

Hi Bill

Just been catching up on site and noticed your posting.

I do not know about infections with Revlamid but I do in general once you start chemo,you do have more chance of infection as your body is at low ebb so more prone to infections.

My husband contacted Septic Pneumonia,that put him in hospital for 22 days 9 in ITU ans left him…[Read more]

Hi Jo
I was so fed up with not having a break,and waiting on the results,I thought good or bad we will do something.So we went to France in the Motor Home only down to Le Treport,came home Thursday,saw consultant Friday,had booked a last minute cruise last week to the Fjords in Norway,leaves Dover Sunday just 7 days,So happy days.:-D 8-)…[Read more]

Hi Amanda
Welcome to the site,this site can help in lots of ways,at the moment both of you must be in shock and information coming out of your ears.
As your husband starts this journey,my husband has just finished the first part after having a SCT and is in full remission.which we hope to enjoy for as long as possible.8-)

My husband is on…[Read more]

Hi Andy

keep up the good fight I am sure you will get there in the end I hope you enjoy your holiday in the lakes i hope you can relax for a time it will do you good
Love Jo x

Hi Eve and Slim

what wonderful news its just what we all want to hear so there is light at the end of the tunnel Have a wonderful holiday where are you criuseing
to somewhere warm I hope we have booked a holiday in Majorca going for 10 days. I hope you will keep in touch and not be a stranger to us
Keep well both of you
love Jo x

Hi Mari
I have not been on for a while and you soon loose touch with present day situations,so I did not know how things were going.its a pitty it was not done during the school term as this would have been far better for you,but who gives a s–t about the patients not the men in the grey suits,they do not even give a s–t about there staff,It…[Read more]

Hi Andy
I would love you to come on here and say my pp are down I can look forward to SCT,and I can understand your frustration,Slim has taken a long time to get were he is now.We have the added problem,that month by month we could not tell if it was working,only the BMB were giving us a true reading,with the experts telling us this is very…[Read more]

Hi Mari,

Post code lottery at work again? What heath board area are you in? But anger put aside for the moment I am glad that Stephen's got a date that you can work towards. A week on Sunday will soon roll along so don't leave the packing too late. Get your checklist drawn up this weekend and slowly put it together.

A quiet Sunday for the…[Read more]

Hi Mari and Steve

Well done on the collection 😀 but its a shame to hear that to help stay alive after the first fight you then have to fight for money? gosh I wish I could Spit on here Yes Spit as thats what I want to do, the money we throw across throw across the world for half of that money to end up in corrupt hands? oh Rant over :'-(…[Read more]

Dear Gill and Stephen

Well you Know I am truly sorry it has come to this stage, and as sure as eggs are eggs My young bride (Elaine) and I will have to go through this 🙁 I just hope as and when it comes we both can face it with the strenth and dignity that you and Stephen have and are facing Head on.

I admire Stephen for his decision and…[Read more]

Dear Gill
What can I say,drinking champagne last night,with are good news,that no Myeloma cells have been found in Slims bone marrow,and reading your news on Stephen,we are not so many worlds apart,I know you are my future,which I intend to leave behind as long as possible,and Min is your future,a year down the line.So this is are Myeloma World…[Read more]

Thank you everyone for your good wishers,we are so looking forward to going to NZ and going off in are motor home,and of course the cruise which will be a first.

When this Myeloma struck it took so much away from us,but I still felt lucky that we had done so much with are lives before Myeloma Land.
I always feel that some good must come out…[Read more]

My Dear Gill & Stephen,

May God bless you both with the strength to see this through to the end. Whether it is mobility or a little more time I hope that it is enough to say goodbyes and to let go with grace.

All us MM'ers know that our time is finite, that we will be claimed and moved on. Some, like Stephen, will just run out of options…[Read more]