tom replied to the topic Kappa Light Chains on the Up in the forum General 13 years, 12 months ago
Great news all round me thinks, And Happy Birthday Stems you have a great host so look after her xxx
DaiCro replied to the topic Calling Dai -re proper fed up mark 111? in the forum Side-effects 13 years, 12 months ago
[quote]Hi Dai
1. Where has your post gone?
2. Are you better?
3. Did you go on holiday?
Love Helen
[/quote]
Hi Helen,
1. No idea… It's happened before to other posts but a first for me. 😐
2. Hopefully… Yes. It's been a week since the 'Flagyl' kicked in (finished course last Sunday) and so far, so good but my…[Read more]
tom replied to the topic Has any one been on EPO in the forum Treatment 13 years, 12 months ago
Aww bless Jo I hope it works and with not too many side effects 🙂
Love iccle ole me xxx;-)
tom replied to the topic My Mums SCT in the forum Treatment 13 years, 12 months ago
Thats great news Alison, give her plenty of Hugs from us all as we know what your Mum has and is going through, but honest it is well worth it Alison.
Is you Mum still taking the anti sickness pills? I was taking them for a few months after My SCT it was worth it.
Love and Loads of Hugs to you all
Tom "Onwards and Upwards" xxxx
BADGER started the topic Has any one been on EPO. in the forum Treatment 13 years, 12 months ago
Hi Everyone
Has any one here been on EPO because of the aneamia caused by poor renal function the consultant has decided to put me on it as my bloods are usually about 9.5 so this should boost me (good job I am not going in for the tour de France!!!)
Keep well everyone
Love Jo x
tom replied to the topic Couldn't bear to share this until now! in the forum End of Life and Grief 13 years, 12 months ago
Dear Lynne
Am sure John was laid back and am sure all of us with the MM are grumps at times of stress so your John wasn't on his own.
And Lynne Dai's posts always gets to my tear ducks dont ask me why they just do.
Stay strong Lynne and always remember the good times as am sure their were plenty.
Love and Hugs
Tom xxx
tom replied to the topic mgus check up in the forum Newcomers 13 years, 12 months ago
Hi Sue am pleased your check was OK 😀 you cant beat that fealing long may it last.
Love Tom "Onwards and upwards" xx
eve replied to the topic mgus check up in the forum Newcomers 13 years, 12 months ago
Hi Sue
Nice to hear from you,glad you have settled down and are coping with your diagnoses,many people on here are still at this stage for many many years,so lets hope as time goes by,your check ups will seem a bit easier.Although i know you must worry when the time comes round to be checked.
I do not think this worry leaves any one even…[Read more]
tom replied to the topic Right thing?? in the forum Side-effects 13 years, 12 months ago
Same as My sheat Jean time is important I think and jope the Dex is soon sorted 😎
Love Tom "Onwards and Upwards" xxxx
tom replied to the topic Good luck Tom! in the forum Off topic 13 years, 12 months ago
Jean I think am getting too x-cited am not sure if I can sleep tonight, so thoght i would have a vodka tonight. cant wait to tell you how why or what and as for the "Have to kill you" think it will have to be have to tickle you" Lol.
Love Tom mxxx
tom replied to the topic Withdrawal? in the forum Side-effects 13 years, 12 months ago
Hi Tina
Well that surly isnt your bestest moan?? and as for the weakness I went on sick after my second round of CTD and stayed of for a year I still dont feel a 100 % but am happy with that do as much as you can and rest your body has been poisoned with the drugs, still do as your body tells you and rest when needed but we do need exercice to…[Read more]
tom replied to the topic My Mums SCT in the forum Treatment 13 years, 12 months ago
Hi Ali
Am sure your Mum loved that sneaked in Hug 😉
😀 Your Mum is realy doing great 😀 I bet your fealing better after the chat with the Nurse, those devils do make us poorly but they sure know how to make us better and be "Onwards and Upwards"
Another sneaky Hug for your Mum
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic MM and Travelling in the forum General 13 years, 12 months ago
Hi Elfriede
A warm welcome to you.
I have been on a plane many times since my SCT and would do again yes my body is weaker and I get tired but hey I was put on this Land to party and Holiday (work is a bit of a bore)
I say if your fit and the Dr says its fine get yourself off and Enjoy it 😎
Tom "Onwards and Upwards" x
tom replied to the topic Good luck Tom! in the forum Off topic 13 years, 12 months ago
Hi Folks Thanks for that I cant wait (spose am gonna av to though 😛 )
Jo you know how to make a man Blush I can tell you he he
Etta its getting control of my nerves for the camera tomorrow 😉
Eliz Elaine and I are going to newcastle to have fun and it just happens I will have an audition for Deal or No Deal 😛 and whilst I am doing that…[Read more]
BADGER replied to the topic Good luck Tom! in the forum Off topic 13 years, 12 months ago
Good luck Tom
we know you are a star any way even if you dont get on it
Big hugs Jo x
BADGER replied to the topic MM and Travelling in the forum General 13 years, 12 months ago
Hello Elfriede
I have travelled a bit since being diagnosed in Jan 2009 I do not have bone damage but my kidneys are only about 15% We have been to Jersey Ibiza
grand Caneria and Skiathos I always get doctors permission to travel and full health insurance from MIA travel and take some anti B's with me I am always careful while on holiday we have…[Read more]
eve replied to the topic Good luck Tom! in the forum Off topic 13 years, 12 months ago
Hi Tom
Thought you were kidding when you said you needed character references,lol:-) fancy that if I had known you were serious I would have given you a glowing reference.
Any way good luck Tom although you do not need it,I hope you have ordered your mm tea shirts,if I am correct the show is based in Bristol lots of mm members around there…[Read more]
tom replied to the topic Good luck Tom! in the forum Off topic 14 years ago
Hi Michele
Am sure we could fill the room from MMUK he he xx
tom replied to the topic Right thing?? in the forum Side-effects 14 years ago
Hi Jean and Frank
Well I have done well I found my spread sheet when i was having my CTD and it has times I should take the tabs on a day as follows :::::
1) Granisetron, 1tab at 8 am and one tab at 8pm every 7 days
2) Cyclophhosphamide, 10 tabs at 8am every 7 days
3) Dexamethasone, 10 tabs at 8am and 10 tabs at 11 am dyas 1to 4 and…[Read more]
tom replied to the topic Right thing?? in the forum Side-effects 14 years ago
Hi Jean and Frank
Cant answer the Q you asked but Frank just might be like me and Loves to sing when first awake He he.
Love one singing "Onwards and Upwards" xx