Hi Charlie
Doing great thanks, I am now on (today) my third cycle of the Velcade and the dex and to be fair it has been a bit strange to me ?? .

The first few weeks after taking my Dex (take that every Monday ) I lost my sleep pattern for four days then Friday hit the preverbal brick wall then normal for the week end to start all over again…[Read more]

Hi Andy

I had a good sleep last night,Slim was a usual,up most of the night,but occasionally my body fails me,I make up for all the sleep I loose. It is the Chemo brain that causes,the inability to retain information,he can not do complicated crosswords any more.

Has anyone said how the Pomilidomyde is working?????and how do you feel about it in…[Read more]

Hi Andrew
Well done and yes you should be pleased I had mine done in 2009 and at the start it was 100 but as the months moved on I got the all clear and spot on and am under the impression it’s near the norm, stick with it with a big grin and a skip in your step.

Good luck you are well on the road to remission

Tom onwards and upward x

Sorry Andy

Taking over post again!!!!women pirates.
You can have a Dex fuelled rant lol.Love Eve

Hi Dick

That’s a good one,cannot even blame the booze as it’s morning,!!!!

I use an I pad all the time now,and know it looks like a slip of the finger because F and D are next to each other,but I honestly believe it’s predictive rather then slip of the finger,I am so lazy I do not read it again unless it,s red lined for unknown word.

I bet…[Read more]

Hi Andy

Did you notice it’s all women that turned out as pirates,I think it was Maureen and the sex bit???? Or some are not posting there own thread but when they come on to comment on some one else’s post,it’s so nice to here from them.

As Slims not much into a TV ,and his memory is not great on Chemo,so reading is out,except for papers,we have…[Read more]

Aww bless you Frank well I can’t help as yet but just wanted to wish you luck with it Frank I hope someone will pop up and give the advice you both need.

Love Tom xxx

Hi Liz

Some people have been on Revilimid for years and doing well,so let’s hope Kevin gets a good length of time,I think most of these drugs leave patients prone to infections as they batter all the cells not just the Cancer cells.

Well Slim has started second cycle,from now on it will be every week,he is holding on well,tired and all the usual…[Read more]

Hi
At least your hospital are on the ball last time I had pneumonia at the clinic visit I told them I was struggling to breath they told me to take a few paracetamols in hospital for two weeks after that
good luck with the pomaliamide I do hope you make Greece in may
Try to keep well
regards Jox

Hi

Well I can only think it must vary around the country.

Never had any problems getting any results bloods or diagnostic test,if fact on the odd occasion like this morning doctors have asked me can they photostat results they have not had!!!!.
I do carry a large red file,up to date and in order,so if Slim has an emergency admission,or like…[Read more]

Carol I award you an “A” also well done you, it’s great news, and as for your consultant be like me Carol if he is happy am happy.

From one onwards and upwards to another have a great week

Love Tom onwards and upwards xxxx

Hi Andy

38.1 a bit of back pain and they took you in!! Now that is service,not taking any chances with you,!gSF injections as well.all good Andy,then a couple of pints at the local,real ale plenty of iron in it!!!,and to top it up the lovely Dex,all good.
You have now passed muster for the next round!. I call that a good service Andy. No one…[Read more]

Hi Maureen

Thanks for that, yes I am doing pretty good on it the sleep I think has come back to me and near next to normal pattern so that’s good.
Am sure Ian will cope with the Velcade and it’s good to get away before treatment starts pewee went away before I started treatment all booked I a weekend lol.

Good luck to you two and enjoy your…[Read more]

Hi Frances
I take it the doctor Came to that conclusion after MRI,plus full body x ray!!

My husband has had a resent pain in shoulder unable to lift his arm in and out of clothes,did have fully body x ray,no change,told not every pain is MM,since then he has had a MRI Scan that can track new Myeloma,As you can guess the pain was new Myeloma…[Read more]

Hi every one
I am now on second cycle and just done third week of that cycle and kast week I lost sleep on Monday as normal but after that I could sleep for England ? Fall asleep on sofa wake up and go to bed it was wayyy too easy to sleep, so let’s see how this week falls.
Went to Scunthorpe General today and talked for a few seconds to a couple…[Read more]

Ji Jeff

This site is about helping one another,and I know sometimes I come a cross very blunt and straight to the point,but no offence is intended,I can just tell you we have been there so know exactly how you feel,and not to give up!!!!
Lots of people on here have and still do help me,I suppose in many ways I have learnt to ride the roller…[Read more]

Hi Jean

She is coming the start of NZ Easter break with Kiwi kids,husband arriving on business a couple of weeks late,and yes something to look forward to,the whole family back together again for a short time.
So all good at the moment!!
Sorry to hear about the dreaded shingles!! So so painful even when spots are gone,Slim has been on the anti…[Read more]

Hi Everyone

Thought as I am on would keep you up to date,

Slim has had his first month of treatment,after being told there was nothing they could do!!

Well we have had a good month,the weather in are little corner of the world has helped,most days out and about,lovely to see the daffodils in bloom,the sunshine helps even thou the south wind is…[Read more]

Hi Jeff

I do not know much about your present state to comment on it,feeling if you have been abandoned ,I can understand,your PP are going up,but your tiredness is I would say because of your bloods!!!,even if they have given up on you,you are entitled to have a quality of life plus may be second opinion. I can only tell you my husbands…[Read more]

It sounds a bit like a situation that has developed which is not in the best interest of patient or hospital !!!

Instead of possible making the situation a big issue,why not go to the patient service that is in the hospital PALS????
My understanding is you want the blood results that you are entitled to for your own peace of mind ????