eve replied to the topic My Mums SCT in the forum Treatment 14 years ago
Hi Ali
This is the hard bit,you mum will sleep a lot,take a book to read,if the clothes are soiled just get the nurses to throw them away,this is were your mum will feel if she is loosing control,very emotional for her,the nurses understand,but expect a few tears,you keep your chin up,tell your mum she is through the worst,the nurses should be…[Read more]
tom replied to the topic Hereditary link???? in the forum General 14 years ago
Hi Michele
Resurect what you need to as am sure some of us Old Hands have forgot about them :-S I asked my Consultant about this as I have three grown up sons, I was told that no hereditary links have been found (at the moment) but I told My Son's if you have symptoms like mine or ones i talked about over the years keep your eye on your Dr as…[Read more]
tom replied to the topic Fundraising and Awareness Day in the forum General 14 years ago
Hi John
I shoved your link on Face Book am sure you wont mind ?? take a look here its my page http://www.facebook.com/tom.lappin.5 if you aint got a page you realy should open one up as your chip shop ?
Tom "Onwards and Upwards"
tom replied to the topic Fundraising and Awareness Day in the forum General 14 years ago
Na then John
Yes I do remember that song Lol and am sat here humming it now he he,well done with the Elvis theme 😎
I would watch those two Staff that are going to do a Tandem Sky dive as am sure they must be nutters lol (I dont do heights)
Its great for it all to happen and throw some money into MM and inform lots of people about MM and…[Read more]
tom replied to the topic Second opinion result in the forum General 14 years ago
Hi Andy and Steph
Its Looking good and even a plan if it starts to fail (but we know it wont) I hope its a long way off before you need the SCT.
Elaine (the young bride) and I are going to Newcastle next thurs (16th) for my Audition for deal or no deal 😎 scarey aint it Lol.
Good Luck with it Andy.
Tom "Onwards and Upwards" 😎
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 14 years ago
Well done Jo 😎 you just might get dai on the straight and narrow again (i can hear Dai saying "not before time")
Good Luck with it all Dai am sure you and yours are well and truly fed up to the back teeth with it:-(
The pain is bad enough but when you are that washed out its bloom harder to cope with but as i have said before you my…[Read more]
tom replied to the topic Fundraising and Awareness Day in the forum General 14 years ago
Hi John
And what a read, sounds great to me but you are gonna be very busy so good luck on that and a well done to all your staff that are giving the time and wage they would have collected (you must have some good un)
Good Luck John and stay well 😎
Tom "Onwards and Upwards"
tom replied to the topic Type 2 Diabetes in the forum Side-effects 14 years ago
Hi Keith
Well we get meds to make us better??? but those in turn make us Ill with something else (strange world this is)
BUT am pleased you have got somthing to help. good luck with the dex 🙂
Tom "Onwards and Upwards"
DaiCro replied to the topic Proper Fed Up Mark III in the forum Side-effects 14 years ago
My appointment with my GP resulted in a mutual agreement to test for a bug (Giardia Lamblia) an intestinal parasite that causes the exact symptoms I have noted). 😎
I had tried to be prescient by taking in a sample… but the test requires 3 stool samples from 3 different visits to the WC. So home we went with an appointment to see the…[Read more]
eve replied to the topic Proper Fed Up Mark III in the forum Side-effects 14 years ago
Hi Dai
I would agree with you about the infection,hope you are taking a sample when you see doctor,you have to find out which one it is.:-P
When Slim was discharged from Kings he was given 200 paracetamol,bit of a shock to be given so many,as you cannot buy more than 30 over the counter,get depressed enough,they might help.:-(, I do not take…[Read more]
eve replied to the topic Kappa Light Chains on the Up in the forum General 14 years ago
Hi Wendy
Good for you that's the way to go;-) Eve
tom replied to the topic Nearing the End? in the forum End of Life and Grief 14 years ago
Hi Gill and Stephen
Your man sounds like my man never seems to have a day off ? I know when I was at the start of mine he phoned me way past 8pm and gave me advice and came back to hospitla to take my femoral line out so I could go home.
I hope between him and the wizard soon sorts out the pain, you know we all have fingers crossed and…[Read more]
DaiCro replied to the topic Proper Fed Up Mark III in the forum Side-effects 14 years ago
Hi Eve,
I hope that by the time you read this Slim will be line free. I remember feeling whole and physically released after my Hickman Line came out.:-)
Who knows perhaps this freedom will boost his system and bring his platelets up to scratch?
I have had an awfully uncomfortable weekend… I rang in with a temperature of 38.65 on…[Read more]
DaiCro replied to the topic Nearing the End? in the forum End of Life and Grief 14 years ago
Hi Gill,
I am so, so sorry that Stephen is having such a rough time with these brain lesions. I have my fingers crossed that the 'Wizard' can pinpoint the main culprits, easing Stephen's pain and hopefully alleviating his double vision.
Are they offering any treatments or maintenance? Has your consultant actually said that Stephen has…[Read more]
eve replied to the topic 2 Months past SCT in the forum General 14 years ago
Hi Mari
Glad you had a lovely holiday,and Steve,s feeling a lot better,just what was needed,when we asked about going away it was a complete no no,but are own personal circumstances would have taken over any way.
So on Wednesday I will look out for a tall man who looks if he has moth eaten hair lol,you tell Steve to look out for Slim the…[Read more]
eve replied to the topic Proper Fed Up Mark III in the forum Side-effects 14 years ago
Hi Dai
How are things going!!!!
At least you have had some good sport to watch,why you are feeling off colour,I just hope it was in your own home and not in hospital with a high temperature.:-(
Slims in today in the day unit,they are taking his line out at last!!!although his platelets are only 50 I think it is a good thing. Eve
eve replied to the topic Second opinion in the forum General 14 years ago
Hi Andy
Slim says that why worry about it if you cannot change it,and he sleeps like a baby,it's me up in the middle of the night:-/
It,s the unknown that is worrying,I am sure once you go,you will feel more assured,have you far to travel!!!
Although Slim is on trials ,it was worrying to see no progress and very worrying,watching other…[Read more]
eve replied to the topic Nearing the End? in the forum End of Life and Grief 14 years ago
Dear Gill
You know we are all thinking of you in this bad time,so have a go all you like we do understand,you are in a position were no one wants to be in,and we all just feel for you Gill.
I hope the radotherapist can easy Stephens pain,I cannot imagin how you are coping with that,they can do wonders these days,they have machines that can…[Read more]
tom replied to the topic My Mums SCT in the forum Treatment 14 years ago
Hi Ali
Am pleased to read your Mum is doing Ok as for the sore mouth keep on using the mouth was more than they say (when its empty they will give your mum a new one ) when your mum has a spare min and or nips to the loo get that mouth wash used 😀 Oh and keep taking the anti sickness tabs often :-/ . The water intake I just couldn't do it…[Read more]
tom replied to the topic charity night in the forum General 14 years ago
Lol yes it would help if the details are posted also lol.
all great here Nicola thank You and yet again its sunny in Sunny Scunny 🙂
Tom xx