Hi Tina,

I have had quite a few dizziness attacks over the past four years, similar to your experience after a sudden move or burst of energy. I can't directly recall if they occurred after coming off treatment but they tended to be a series of 'one offs' rather than a continuous bout.

I have always blamed my medication but if your attacks…[Read more]

Hi Amelie,

I subscribe to the newsletter for the information regarding new drugs and treatments but I have not tried to engage with their members board because we are always a year to eighteen months behind and so there is no dialogue that we can share on an equal basis. 🙁

The most interesting concept to come from the USA is there belief…[Read more]

Morning Tina

First it wasn't with me I never had dizzy spells at all, I would get that checked today at your Dr's

Hope it turns out to be nothing.

Love Tom "Onwards and Upwards" xx

Hi Kevin

Well for my ten pence I think you are going the corect way you had a good remission with it first time around so it should work this time againn and hope it gives you a longer remission, Like I tell my Kids "Save some till you aint none then you will never be without"

I done CDT ion Feb 09 SCT Dec 09 and am still in remission and if…[Read more]

Hi Jo and welcome home 😀 am pleased you had a great time and am sure you made sure that Adam had the best time of his life (till next holls) And I thank you for chasing that sun our way also

Love
Tom (now you start to plan next one he he) xxx

Hi Jo
Never been to the IOW but looked at it across the bay,have some friends who have lived there for years,they chose there because of the sailing.

Glad you had a great time with your grandson,I bet it,s home for a rest now.I just love to hear about you planning your next holiday,I am sure it,s not too far away. Love Eve

Gill
How are you doing???

Have had you in my thoughts did you get to France for that holiday Eve

Hi Kevin
Let us know how you get on,it is interesting that you are having CDT again!!!. I suppose the fact that it was 2006/7 since you had it last time.might make it work again.As you say it will leave you Velcade for another time.

Slim used up CDT plus Velcade just to get to SCT.At the moment waiting for BMB,to see if it has worked.

As…[Read more]

Dear Sue

I am so sorry to read about your partner going downhill so fast.
Please accept my deepest sympathy to you and yours at thia sad time

Love Tom xxx

Sue
It,s the other way round,everyone on here will be thinking about you,It is so hard to accept and it should have been your consultant telling you there was no hope,it might have given you time to accept and come to terms with his death.
I hope you both had a time to yourselves and a peaceful end,accepting that some times,there has to be an…[Read more]

Hi Helen
I think a lot is post code lottery,in one way we are lucky because we do have the trials in SEK.and there are lots of trials going on from here at the moment.As a cancer patient Slim has the usual 24 hr number to ring,They in turn ring doctor and everything goes from there.So no problem:-P

If you look in the carers section subject 100…[Read more]

Hi Beverly
Sorry that I am late in replying but a very big and warm welcome although I wish we could have met in a different way.

I was diagnosed with smouldering myeloma in 2005 and did not require treatment (other than for anemia) until 2010. After chemo and a stem cell transplant I am still getting stronger every week and am now…[Read more]

Hi Mike

Sorry you have had to join us but a very big welcome to you (and your supporters). I´m sorry that I don´t know anything about carrying etc. but did just want you to know that I was diagnosed in 2005 at age 54 and after chemo and a stem cell transplant I am still horseriding and have just come in from painting the outside of the h…[Read more]

Hi Jo,

Sounds like you had a good time, even if some of it was through your grandson's eyes. I have only visited the IOW once, for a three day stay when my then Brother-in-Law was a prison officer at one of the high security prisons. I said in 1978 that I would definitely go back because what I saw of the Island was very attractive… but…[Read more]

Ouch!!!! 4 hours??? I'd be writing a horror story, never mind a letter. Slim's veins must be akin to optic fibres. When is he due to have it out? At least that shouldbe much easier. If it looks like being a rough job I'd ask for a sedative at the very least.>:-(

I had mine (badly as itturned out) fitted by a radiologist Doctor whohad the…[Read more]

Hi Mike

Well am In Scunthorpe and was treated at Scunthorpe and Castle Hill in Hull.

Keep us informed Keith and dont forget this is now your forum so use it as often as you need.

Tom "Onwards and Upwards" x

Hey Tina have a great time Girl and Try to forget about it all (cept us lot)

Love
Tom "Onwards and Upwards" xx

Now Eve you Know I blush Easy Lol.

And I gave that angle when I filled form in as it asks When would you like to apear on Deal or No Deal if you get through? I wrote as soon as Possible as I have a Terminal Cancer (well if you have it flaunt it I say Lol) ye no probs just do a Character referance and E mail it to t.lappin1@ntlworld.com and I…[Read more]

Well done Mari and Stephen great going and am sure you will kkep it up through the Transplant

Love
Tom "Onwards and Upwards" as we say 😉 xx