Hi Mari
Good luck with the harvest and try to get that holiday in between,when we asked about gong away we were told no to going abroad,my daughter did say at the time,don,t let them rush you,but like all things,you just want to play your part,I think a holiday would have done us the world of good,i suppose with are added burden,it just took to…[Read more]

Na its only things My Big Bro taught me when I got my first Commie now he is the clever one 😉 click on this one its my you tube vids some of me and grandkids over the years 🙂

http://www.youtube.com/my_videos?feature=mhee

Love
Tom xxxx

Lol that was late for me lol normaly in just after 5pm on a thursday nite 😎

It was just a copy/paste from the search engine on your link. I can send you anywhere (should have been a travel agent lol)

Love Tom xxx

Hi Suea,

Good Luck and I also say get that second oppinion and if thats not good get a third and continue untill the start to treat you for getting better

Tom "Onwards and Upwards" xxx

Well done Stephen you sound as you are doing good 😀 keep it up and you will soon be out

Keep fit

Tom "Onwards and Upwards"

Glad to see that while you are going through the normal low points that they are running smoothly. Twelve days in? That's gone quick. In which case I'm predicting 0.1 for Tuesday am. Either way you must be getting near and then it will be home for recovery.

Keep up the good work, rather than going through the mill you have had the run of…[Read more]

Good work Keith… At least you know the plan and it does seem to be having a good effect.

I have my consult next Monday too… all I want is the okay to carry on – to Cycle 6. my ought chain reading should be back but I am not too concerned… I don't suppose it will have dropped too much but my body tells me that it hasn't't risen much if…[Read more]

The trouble is that while throwing large doses of Dex at the cancer can have magic results, it is a high risk strategy regarding side-effects.

The worst side-effect of Dex is not the range of beauties that we can see and feel but the silent one… the one that allows, protects and disguises infections. Infections appear, develop and grow…[Read more]

Okay, I'll be your Huckleberry.:-D

One of my all time favourites.

Dai.

The Mother Superior was waiting at the nearest railway station for her newest novice to arrive from London. The convent car was an ancient Ford with a large rounded bonnet but it looked good and worked fine and she had thoroughly enjoyed the twelve mile scenic drive…[Read more]

Hi Jen,

Re: Can he continue with the treatment the answer is yes, yes, yes. As long as it is not too unbearably painful or causes the inability to use his hands then they can reduce the dose which should ease the symptoms… but don't discontinue lightly. 🙁

Your Dad will need Velcade later on down the road and if he has abandoned it at…[Read more]

Hi Keith,

I've been on 40mg once a week from the start… the same dose as on CDT & Velcade. 🙂

I have a DexDay TM on Tuesdays, where I basically veg out with a book, Kindle, iPad and TV… with several changes of tops due to the excessive sweating (though I have to report that the ever observant Janet has noted that Cycle 4 had four…[Read more]

Hi Stephen

Found another song that is fitting,WE got to get out of this place,by the Animals,takes me back to my youth.Eve

and if you got here the link worked lol now off for a pint 😉 xx

I have found it here :::::
http://www.myeloma.org.uk/patient-services/discussion-board/general/hi-ho….-hi-ho…-its-off-to-work-we-go…/#17651

Hope the link works xxx

Ho ho I found it Helen and I hope it kicks it back to the top for you xxx

Hi Helen,

I typed hi ho into the search myeloma uk box and I found all the replies but they appear individually with no clue to where they are collected. sorry.

Dai.

Hi Eve,

I am taking great care… I'm due to be at a surprise 50th Birthday party for my youngest brother in Swindon on Saturday but at the moment it is not looking likely. I had planned to go, I want to go and I will make my final decision on Saturday am. My daughter and partner are due to travel with us but she has her car and satnav ready…[Read more]

Hi Sue
I think you have to ask yourself if it had been your own consultant would you feel the same.If the answer is yes,then ask for a second opinion this is your right.!!!!
The consultant is not yours and may be did not feel comfortable having to tell you,it is a decision that is usually made after consulting other people,You need to talk to…[Read more]

Hi Pennie,

The median for Rev & Dex is currently 30 months (2.5 years) possibly more (plenty of examples) but possibly less.

My advice would be to take the Carers Allowance for yourself, Attendance Allowance for Andy, housing benefit if needed, and all and any other benefits due to you. It may not buy you all you are used to but it will buy…[Read more]

Hi Suea,

I will echo all that Keith has said, demand a second opinion, it it yours by right and ask for the pomalidomide. I have had 3 plasmacytomas that were sorted by the treatments, so pomalidomide or even Bendamustine might help there.:-)

The very best of luck in such trying times, I wish you naught but well.:-)

Dai.