tom replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Hey you tear maker's Yep I have tears a big strong Docker with tears and am proud of them Like I am with Bridget to have known her (online) has been a blessing for me.
Her strenth her wisdom and her unselfish manner in the way she helped not only I but many many others, and am sure that those quality's that Bridget had in abundance has been…[Read more]
DaiCro replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Well I had my bottle of Guinness and I raised it up to Bridget and said farewell.8-)
I think I'll leave it at that for today… but I know her influence will be a lasting one and her approach to life and death will always be a comfort to me. xxx 🙂
Dai.
DaiCro replied to the topic Of Carfilzomib… in the forum General 14 years, 1 month ago
Hi Jo,
It's good to see and hear from you… on Bridget's funeral day I like to see that all my friends are out and about and as good as can be. 😎 🙂
As I understand it, after being corrected by Ellen, Velcade is a cousin of Carfilzomib and not, as I erroneously posted earlier, a cousin of thalidomide. (But I'm still going to check that…[Read more]
DaiCro replied to the topic Tiredness /Fatigue in the forum Treatment 14 years, 1 month ago
Hi Helen,
Now ain't that the truth.:-D
I have had some of the most painful and stressful times of my 'journey' while sitting on the toilet with a constipated blockage… now normally a few quick successions of Movicol does the trick but can still wipe me out… then there are the liquid pessaries, saved for emergencies which can be quite…[Read more]
DaiCro replied to the topic Tiredness /Fatigue in the forum Treatment 14 years, 1 month ago
Hi Keith,
I meant to come back to your earlier post and Helen has just reminded me but I too sometimes get stomach cramps which are a signal to head west… it can get quite uncomfortable before it gets sorted but I don't just get the cramps in isolation.:-|
Dai.
BADGER replied to the topic Of Carfilzomib… in the forum General 14 years, 1 month ago
Hello Dia
This is good news for me if this drug is in the velcade family it will be prccessed through the liver which is good for me as my kidneys will not take all kinds of other drugs:-)
Hope you are feeling well;-)
Love Jo
DaiCro replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
She would indeed Eve, she would indeed.:-)
And perhaps she is.:-D
Dai.
eve replied to the topic Question time in the forum General 14 years, 1 month ago
Hi Andy
Well good luck for Friday,either way I think it will be a great relief.You will know what you are fighting so you should be able to take part,and do some research towards that treatment,you have jumped so far ahead with different treatments in so little time.
All treatments need time to work Velcade they say 6 cycles and like to know…[Read more]
eve replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Dai
I would do it now,but my dead mother in law use to tell people i started the G&T at 10am,but you have no excuse enjoy one then have a snooze,Bridget would be laughing at that, Eve
DaiCro replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Hi Eve,
Janet bought me a six pack bottles of Guinness in the New Year… I have five left. But I too will raise a bottle to Bridget's memory tonight… and enjoy it thoroughly I will too.:-D
All the very best to all of the very best.8-)
Dai.
eve replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Hi Dai
Bridget amazed me,as I know from the amount of pain relieve she was on and still in pain,how hard it must have been for her,they gave her another hurdle to jump and she put her self forward.
She had the will to live,thinking always about her daughters and her mum,always there for them,Grandchildren as well,she has left her own goodness…[Read more]
DaiCro replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Hi Jean,
I too took inspiration from Bridget's posts to other people, As a writer I soon spotted her 'style' which was quite natural but very, very effective.8-)
Bridget would open by accepting her correspondents problem and sometimes agreeing with it. But she would always pick up on the slightest positive and accentuate it before…[Read more]
DaiCro replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Hi Eve,
One of my first reactions on hearing about Bridget's passing, when Janet finally got me to stop crying, was to thank God that at least she was no longer in pain.8-)
Bridget went into melt down from 12 months out… relapsing from her SCT she had 3 months on Velcade, followed by 4 months on Rev & Dex, then 3 months on Bendamustine…[Read more]
eve replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Hi Everybody
Just got in,I have been down to the sea front walking and thinking about Bridget.
I hope she is there with her family looking on,I hope her daughters are strong.
They say things happen for a reason,and this is one of the times you think life is so unfair,Bridget is no longer in pain and to me this must be the blessing in her…[Read more]
DaiCro replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Hi Helen,
I think that part of her secret was in always to sound cheery and postive without sounding too cheery or over positive..
[quote]Hi Nigel welcome to our merry little band!
It is the best place on the net for answers regarding myeloma as it is based on individual experiences, however if I have learnt one thing about mm it's that…[Read more]
DaiCro replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Hi Liz & Kevin,
I would like to think that Bridget will rest in peace but not if she has anything to to with it she won't.;-)
I can imagine her now, pain free and whole, wandering around the streets of heaven, making friends and keeping an eye out for anyone looking a little glum… where she will stop and sidle over, sit down and start on…[Read more]
DaiCro replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Hi Helen,
Looking back at some of Bridget's posts over the last few years, sometimes several a day, with a word of advice here and a word of comfort there… and somewhere in the middle, often as a response from one of her 'friends' she would let slip about her own situation and it sounded, especially for Bridget, quite grim but never a clue…[Read more]
DaiCro replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 14 years, 1 month ago
Hi All,
Below is Bridget's last ever post… sent on the 26th of May, only 3 weeks before she passed and at a time when she was plagued by infections and fatigued beyond measure… but of all that? Not a Dickybird. 🙂
I am using this post because it is typically Bridget… even at her very worst (health-wise), she is shown at her very…[Read more]
DaiCro started the topic Of Carfilzomib…. in the forum General 14 years, 1 month ago
[quote]The positive recommendation by the FDA Cancer Drugs Advisory Committee brings carfilzomib a step closer to being licensed and marketed as a treatment for relapsed and/or refractory myeloma patients in America. A final decision by the FDA is expected by the end of July 2012. The FDA approval of carfilzomib should hopefully be followed by its…[Read more]
DaiCro started the topic Bridget… 10:30am today and beyond. in the forum End of Life and Grief 14 years, 1 month ago
[i][b]Bridget's funeral will be held at 10:30am this morning (4th July) at Stopsley Crematorium, Lut[/i]on.[/b]
I was planning to be there but a shadow of Janet;s bad cough and fighting a mid 37's temperature for 3 days has caused me to err on the side of caution.:-/
But… Instead, I will be on forum for 30 minutes or so from 10:30am this…[Read more]