Hello Jean

How are you and Frank coping is it getting any better for him and you has it stopped raining in NI we have a fine day today for a change went for a little walk today got the kidney clinic tomorrow always a worry. Hoping to go to the IOW in a couple of weeks if all ok.
Love Jo x

Dear Judd
Welcome to this site
what an horrendous time you had I know the chemo will be difficult but neccessary can they do anything for your back I think when you feel a bit better there are certain operations you can have thank the Lord someone recognised your symptoms good luck with your treatment
Regards Jo x

I think you would be better putting your posting Off Topic as People on here are living with Cancer,not dying with it!!!!!!:-P

Hi Teresa

How are you coping ,this must be a very hard time for you,are you managing a little free time for yourself!!!!!
I take it you have told all the family the position now,and you and your girls are coming to terms with what is going to happen,but still looking forward,to the birth of your Grandchild.Also the walk down to the botton of…[Read more]

Hi Judd
This is just a welcome to the site,I have read your posting and cannot help you much,Its my husband with Myeloma and he had the usual treatment of CTD then Velcade with DC which is part of Myeloma X1 trials.

May I suggest you get in touch with Ellen the nurse and she might be able to put you in touch with someone who goes to the same…[Read more]

Thank you all
You have eased my mind,and my daughter tells me they will be able to take it out in Canterbury,so no long journey back to Kings.

I was worried about it coming out,as Slim had such a bad time of it going in,he said no way were they going to replace this one if it became infected,:-( It seems his vein thinned out and they had to…[Read more]

Hi Eve,

They left mine in for four weeks… at my first consultation after leaving hospital. I asked why then and was told that it was redundant… that they only left the line in if it was still in regular use. It took about twenty painless minutes from going in to the side room in the Daycase Unit with a doctor to coming out. The procedure…[Read more]

Wendy as a "mere Male" that is (well so am told) Bald on Top I am not in a position to advise on Curls or waves Lol.

Tom xxx

Hi Eve and Slim

Well I had a "Femoral" Line fitted and had it taken out on day 15 the day before I came home and all my bloods were OK, That said I was going to Castle Hill every week till my 100th day and some folk had the Hickman line in most of the 100 days that I attended? never thoght about asking why that thing stuck out the top was doing…[Read more]

Hi Wendy

Well this has got me thinking,!!!
Slims was put in on the 24 April,then my |Grandson passed away,so he came out of hospital and was readmitted on the 13 may,and came out on the 1 of June.

Officially he is under Kings for 100 days but having bloods and platelets at local hospital.
We have been back to kings to see consultant,but…[Read more]

Hi Gill

Welcome Home I bet you were fed up

You are correct its better for you when they find something ? anything to put a name to it:-/

I see your eyes have got bad? some times I feel mine aint as good as they were? Youing Bride (elaine) tells me to go and get new glasses but I aint due for an eye test till next year:-0

Keep strong…[Read more]

Morning Dai and all

Well done on the trip a double wammy 😀
But its a shame when you book time away and get or feel ill.

You now know you can do it so am sure its going to be the MM way? "Little and Often" 😎

Tom "Onwards and Upwards" x

Hi Girls

Eve keep your eye on Slim's facial hair when it grows back, mine sometimes I grew a Pencil tash like in the old movie's (or so am told lol) just a thin neat line grew all on its own, but my hair grew back darker with a lovely wispy curl Lol and gosh was I pleased to get rid of that lol.

Helen I wish you luck with the Blond bit but…[Read more]

Hi Helen
For your husband it must be great,waking up to a different woman beside him every week:-)Eve
Bald dark grey then blonde LOL
I usually have my hair very short,because I do not like sitting in hair dresses,last time they just were too scared to cut enough off,so now with this wind i look if i have been dragged through a hedge…[Read more]

Hi Vicky,

You have to remember that those of us who offer advice here do so with all the benefits of experience. We are looking back and recalling what it was like for us… we recall the procedures and the side-effects, and the processes… but we rarely tell of how we felt at the time… mainly because our fears and apprehensions have been…[Read more]

I built myself up for a holiday last September after a successful (while I was on it) but gruelling set of Cycles of Velcade. It was only a week back home in Fishguard, Pembrokeshire but it was a large house share with two sisters, two brothers and their spouses. The thought of the ten of us together for the first time… well, ever… thrilled…[Read more]

Hi Vicki,

I am in Tom's school… it is hard and at times unpleasant but ultimately it is worth it.8-)

I only got enough Stem Cells for one SCT and it relapsed after 10 months… we had a prognosis of 3 to 5 years after doing so well on CDT (from a very tenuous starting point of 3,500 Kappa Light Chains to full remission in 4 Cycles) but…[Read more]

Just seen Siobhan's post on Facebook…

Bridget's funeral will be held at 10:30am on Wednesday 4th July at Stopsley Crematorium, Luton (LU2 8DD).

Flowers from family only, but donations welcome to Myeloma UK.

Dai.

Hi Siobhan,

Can you tell us about the funeral arrangements for your Mum? I would like to know in order to have some quiet time during the service… To think about our friend and to share a smile and fond memories.

Regards

Dai.