Thanks Dia
I have just joined their web site its so interesting
Love Jo x

Hi Terry
I would agree with all your thoughts and what a beautiful picture of Scotland.
You have to keep positive,and enjoy every day.Eve

Hi Chris
A belated welcome to the site,one minute you have everyday living and in the next minute you have joined the club as a carer.

In my mind Myeloma is a dreadful thing,your life does get taken over by it,we do hear of some people who sail through treatment,and go on to live as normal as possible,but we all have the knowledge that one day…[Read more]

Hi Paul

Pleased your doing better M8

The thing that helped me when I was weak when walking was a "Shooting Stick" ? I was lent it by a Neighbor when he seen how bad i was walking it has a seat on it I just carried the scick and when needed popped open the seat and had a rest it was great, so if you can find one get it works a treat.

Good…[Read more]

Hi Paul
sounds like things have gone ok a little gentle walking should help with the legs I do hope you can get away for a few days
Keep well
Love Jo x

hello Jean
Nice to hear from you I am doing ok at the moment the next breath holding moment is in july when they check my para's the next app in June is just to check Hb levels etc to see if I need any blood. How is Frank doing are they giving him anything for the ribs although I expect the dex will help a bit although it will not help with the…[Read more]

Hi Andy
I know how hard it is to remain positive,but it has started to go down,very slowly but it is in the right direction.When Slim was on Velcade it was awful waiting,he had to have 4 cycles before they would take a BMB,as bloods and light chains were considered un reliable as they were not showing a true reading,and on top of that the…[Read more]

Hi Andy,

You are right, its not a big jump but it is going the right way and that's all the matters… it shows the medicines are winning and a couple more little jumps and you will be in the 'end zone'. When I was on Velcade I was told that the magic number was 18… 18 or below was the end zone… so at 35 you are not far off.

My Revlimid…[Read more]

Hello Chris
sorry you have had to join us here it must be a very difficult time for you and your husband dont be upset if your husband gets really grumpy and depressed this is the DEX talking I found it very difficult to handle I took mine in the mornig with yogurt which made it easier to swallow I took the last dose of Thalidomide before I went…[Read more]

Hello Jane

A warm welcome is extended to you and I wish you good luck for your ongoing trip with MM.

I also was on CDT as my first Line of treatment then had SCT and Zometa Infusion every four weeks for my Bones.

Hope to hear more from you soon

Love
Tom "Onwards and Upwards" xx

Hi Liz,

How did Kev get on with his Velcade injection?

Although the actual infusion only took five seconds we were often in the daycase unit for a couple of hours. Firstly we had to play 'hunt the vein' for the cannula and then start the saline drip.. then we had to wait for the Velcade to come down from the pharmacy and after two nurses…[Read more]

Welcome home indeed Slim… just think back a year to all that nonsense you had to put up with and the sense of 'where is this all leading to'? Well its led you to here… a place where you find yourself totally rebooted with brand new stem cells building up your energy centre and offering a whole new slice of life.

It is going to take time……[Read more]

A Warm Welcome Home Slim 😀 gosh now then when I got home I at first found it scarey being out of hospital and not having a Nurse with me But I got over that pretty fast.

And Good Luck in your road to recovery Slim, If I remember correctly I was about a good two months before I felt the "Gosh Am Better" feeling and that was one great great…[Read more]

Hi Everyone

Well he is home.Frail and bald with a good weight loss.so the time has come to build him up again,other wise buy a new set of cloths:-P

The journey down took 4 hours with a stop on the way,have to go back up on Thursday,and also have to go to Canterbury Hospital on Sunday and Wednesday.
He is busy writing his board out for all…[Read more]

Dear Happy Chappy 🙂

If your Consultant is Happy and you are Happy and more important if Janet is Happy then am Happy.

Its good to feel comftarble with your Dr and feel he/she is listening to you and your problem

Keep up the good work Dai

Tom "Onwards and Upwards"

When I was finally diagnosed with MM I raised the Q of hereditary links and my consultant told me that there was no evidence of MM being hereditary.

I have noted an American article about a link between MM and MGUS in families but we are talking about small numbers. As someone has already pointed out… if MM is so rare then the chances of…[Read more]

Hi Antoinette,

Welcome to the forum, if not to its reason for existing. As you can see for yourself this is a very welcoming and supportive place to discuss your diagnosis and the treatments and procedures you will be following down the years.

According to the leading MM medics in the USA (where most new research, innovations and drugs…[Read more]

Hi Ann & Peter,

Myeloma 101 – Nutshells – I suggest you look for a more detailed explanation elsewhere on the main site.

There are two main types of Myeloma… Heavy Chain & Light Chain.

Heavy chain Myeloma is measured by Paraproteins.

Light Chain Myeloma (Officially Bence Jones Myeloma) is measured by Kappa Light Chains.

Light…[Read more]