Hi Roz

Well we have moved on aint we girl 🙂 and thats Good to read 😀 reading about your help do you now have some one working 16 hours and another working 24 ? well done you if you need it and its working keep on with it 🙂

And you are doing wonders 😀 but am sad you thought about suicide 🙁 am sure you are stronger than that and…[Read more]

Hi Gill and Stephen

There should be a few swear words in here but i will refrain from them (I hope)

I am sorry to read about it failing its a bloomin nightmare all this MM.
I do hope something can be done to throw the blooming MM into remission or slows it down a bit till something has been brought to the forefront.

Stay Strong and…[Read more]

Hi Jo

And a warm welcome home (but the weather is not as hot as Skiathos though)

And you are one "Onwards and Upwards" young Lady having good reading's 😎
Enjoy the two months of no hospital its great when you are going longer with no Hospital visit's 😎 but am not sure about giving myself injection's?? but hey ho if I had to am sure i…[Read more]

Hi Andy

Well only posted once so far Lol.

Great news on your Bloods and if it means you eat more banana well thats great.

Good Luck on your BMB am sure it will be Spot on, and am up for throwing this MM into submission 😎

Keep strong and fit

Tom "Onwards and Upwards" x

hi Andy
that sounds like good news you can put up the the terrible BM if it proves your treatment is working keep us posted
Love Jo xx

Well Dia

you never semm to do things by halfs all or nothing a!!! glad you now seem to be on the mend and with the care of nurse Janet will pull though ok its a shame really as you seemed to be doing ever so well upto now
Love and a big (((hug)) Jo x

Hi Mari

Slims on Waddington,had to change wards as beds have to be seen to be filled with bodies all about filling beds these days,after 3 hour journey made him sit round for 2hours,as you can imagine I lost the plot a little bit,it worked,next day was moved to have chemo,only given half does as kidney function not good,after not having much…[Read more]

Hi Gill So sorry about the news,can understand how angry you must both feel, Slim says if this SCT does not work he will not have any more as 6 months not being able to travel abroad and no guarantees it will work is a lot out of life,We are travelling to NZ once this is…[Read more]

Hi Peggy
Ouch ouch ouch I hate having the bone marrows had four so far and hate it every time I also have renal failure they say I will have to start on EPO not had it yet but my ferritin is very high now so its not good to keep giving me blood my blood pressure seems to go up and down I call it white coat sindrome keep well
Love Jo x

hello Sarah
so glad to hear Henry is feeling much better its good to know you are able to get out
Regards Jo x

Hi Carol

Yep Gremlins me thinks :-0 Plzd you feel better today and I hope the Nebz sorts you out better? saying that I have had a cough for years?? its the only way the young Bride can find me in a shop with the Cough Cough every now and then Lol.

Tina I think all of us that have had the "Dex" :-0 there av wrote it Dex feel the same but it…[Read more]

Hi Carol

First I dont know how your post has got hidden in the middle of here Lol.

And Second Welcome Home and I bet it feels strange? I know I did.
You know now that your strenth will recover it might just take a Month or two.

Keep strong and stay Fit.And long may the transplant work

Love and Hugs

Tom "Onwards and Upwards"…

Hi Sarah and Henry

Well its great to hear AND see you are doing great. Keep it up Henry

Love to you Both

Tom "Onwards and Upwards" xxx

Hi Ann and Pete

Well I strated My CTD in Feb 2009, all went well Except I got Out of breath that I had to go on sick in the may, I was that Bad that one of our neighbors came round to see me and lent me his shooting stick ( a walking stick with a seat on it) so I could still walk the dog but when I felt weary (and i did) I just popped open the…[Read more]

Hi Min
Lovely to hear from you,glad to see you back,you were missed:-(

I have watched Reiki being done,and for the life of me i do not understand what they do,but it did work for Matty,plus a friend of my daughter who,s husband died age 38 years,it has a very calming effect,so I think bring it on,if it helps.
Stress has a terrible effect on…[Read more]

Hi Mari
Did Steve have enough stem cells or will they do another harvest!!!
Rosie my husband Slim is 68 this year and is having his first SCT starting Sunday,i think it,s not so much age,it,s how fit you are,because Slim had pneumonia which left scaring on his lungs,we thought they would say no,but they have said he is fit enough.They did decide…[Read more]

Hi Gail
I think the 3 cycle was the hardest for Slim,mainly because he was ill and we just thought it was the effect of the chemo,because he did not have a temperature, it was not picked up by our doctor or A&E,he had pneumonia and the steroids masked the infection.
So this is were you have to be firm if you think he is ill make sure they listen…[Read more]