Morning Harmony
Hey you have seen my post am not easily offended nor easily upset, a prayer or three is good I am getting them from all faiths to be fair I have brothers that are Catholics and Protestants and one that is a Mormon so I have all bases covered like us all we need more he he onwards and upwards is a great ending to the post like all…[Read more]

Morning Andy

Yes as you know I stalk you on face book and at times on twitter (don’t use that one much) and I am pleased you are sorted this darn Mm keeps throwing unknown and unwanted infection at folk that have other things to be getting on with, those infections really should be having a word lol.

Stay well and yes everyday is that gift, we…[Read more]

Double post again

Hi all

Had my 2nd Velcade injection today and my Dex this morning, no bloods today but I got my bloods wrote down today so take a look and let me know what it means lol

20/01/14
HB 13.4
WBC 4.9
Plts 2.58
Neuts 2.58

27/01/14

Hb 12.5
WBC 4.2
Plts 237
Neuts 2.47

Now I ain’t sure if decimal point is in the correct place lol.

Tom onwards and upwards x

Hi Sarah

Yes you are my “posh” stalker lol. Ye I know I can do it it’s just giving me an iccle bit of a curve to be fair and we all need curves lol.

Love iccle ole me onwards and upwards xxx

Ps tell the Old Boy well done and no wrinkles or creases in the clothes lol xx

Hi David
hope you are well not been able to get on this forum for weeks since they changed the system
sorry not answered your posts before now I would get your leg checked for DVT it sounds like similier
symptons to some one in my clinic they had DVT
Best wishes JO

Hi Peter

I try to look for positive than negative ,We have all been were Dusk is angry and confused,I think your story Peter is a an excellent example,over 10 years,not great remissions and bone damage and you are still here.

Information and hope is what this forum is about,but there also has to be space for people who need to air there…[Read more]

Hi Jo and welcome back to the forum, it’s still playing up with me at times not posting half postin and blooming double posting, hope your ok Jo and it’s not too cold for you

Love Tom onwards and upwards xxxx

hi Eve

the velcade really worked for me o paras at the moment the kidneys got worse AFTER I finished chemo funny that so much so they fitted a fistular in my arm any way I must be an ornery b*gger as they have improved at the last visit to the clinic My consultant told me of the new improved velcade which is supposed to be even better than the…[Read more]

Hi Jo

Lovely to hear from you,I have been thinking about you and wondering what was going on specially with the Damocles falling a little bit.

Thank you for information on Velcade I did not know about the second batch of Velcade only that it can be used again on patients who have responded well first time round,all good news.

How are you Jo??…[Read more]

Hi Eve

sorry slim is still unwell did you know there is Velcade 2 a follow on which is supposed to be even better than the first one I have just or three months ago finished velcade didn’t need platelets at all but had several blood transfusions not been on this site for weeks could not get on every way I tried my son in law did it for me
Love Jo x

Hi Tom
BACK ON JOHN HAD TO DO IT FOR ME yippee
big hug
Love Jo xxxx

hi Scott

how are you doing keeping fairly well I hope I don’t know what they did to this site I have not been able to access it for weeks had to get my son in law to do it My Velcade treatment has worked but my kidneys got worse once the treatment had finished they don’t know why so much so they fitted a fistuler in my arm fortunately had a bit…[Read more]

Just wanted to say good luck to everyone,although it’s a big thing for the individual having this procedure ,ita an every day thing to the staff,expect to be emotional and do not worry if you have an odd accident,nothing they have not seen or done before.

It’s a bit lonely in isolation,so make sure you have home comforts around you,this is the…[Read more]

Dusk if you are a Myeloma person,please think about putting you name plus picture,and explaining your story,because that,s what this site is about,helping people!!!!

Stop trying to scare people,this Myeloma is scare enough,specially for people who do not prefer to know a lot about it,it’s there choice,educate yourself by all means learn as much…[Read more]

Hi. Dusk

Well I would not call my husbands journey great,far from it,I also do not think being late diagnosed determines how long you will live,it just means that you have far more damage to your bone structure,it’s getting the Myeloma under control that is the hard one and that depends on what type of Myeloma you have and how aggressive it…[Read more]

Hi Judy
Welcome and sorry to hear about your pain with Velcade but am pleased they soon sorted you out. Where are you now in your treatment Judy ??.

Maureen just to let you know am still on the vodka and red wine lol.

Liz Elaine is doing great ta and ye she has hawk eyes ha ha, but am pleased about that as am sure I would miss something out he…[Read more]

Can I join in this post,as a few on here realise what my husbands position is at present .

I think more could be done by GP to get a quicker result,and yes I know it is rare plus back ache could be a number of things!!!!,but a simple blood or urine test should be done as routine!!

The facts concerning treatment,NICE has 3 treatments on Board…[Read more]

Hi Peggy

Thank you very much for replying and specially for the information,Slim is a little bit different from you but I am assuming you had platelets every time you had Velcade?????

We are going to the Royal Marsden in Sutton this coming Tuesday,Slims consultant has arranged a second opinion,
The problem Slim has is that after 3 recommended…[Read more]

Hi Mandy

You must be feeling awful at the moment,but it sounds if you were just waiting for your worst fears to be confirmed.

I think you are doing the right thing getting a second opinion,check if your consultant is a myeloma expert rather than just a haematology expert,in theory you are going to be an unusual case,you do not mention your…[Read more]