Hey Sally you aint alone now you have joined our motley crew. and am sure we all know how it feels too many Q and too many forgot to ask its? put it all down on paper as the days go on and add as you come up with something you feel you need to know.

And Trust me That "Old Sal" will soon be back with a vengeance.

Love

Tom "Onwards and…[Read more]

Well mine looks Ok ? BUT is it ? Thanks Dai.

Hope ur doing OK 🙂

Hi Andy,

Glad to see you back and viral free.. I have had my share of these culture shy infections that refuse to be named… about four or five in the past two years… I have been told that the causes are very rarely found.;-)

I am on Cycle 3 of Rev & Dex and hoping for a long-term relationship… I hope it works for you in the short-term…[Read more]

Hi Vanessa and Philip

A warm welcome to the group.

Cant give advice on VCD as all I have had is CDT then SCT all done in 2009 and now am drug free.

Just wanted to say Hi 🙂

Love Tom "Onwards and Upwards" xx

Hi Duncan
Sorry for not replying.

You have a lovely dog,it will be a great help to you in your recovery,as you have to take the dog for a walk and this helps.

We are based in Deal Kent,but Slim knows Bovi Sands well based in Torpoint, in 40 and 42 commando units once upon a time
I have some problems not connected with myeloma,so will be…[Read more]

Hi Stephen

Sorry for not welcoming you to the site earlier,as I have had a few problems myself,its my husband who has Myeloma.

They say myeloma is such an individual illness and everyone reacts different to the drugs involved,I can only tell you about Slim my husband.
he was on CTD had 6 cycles and looked if he was in remission,bloods and…[Read more]

Hi Tina,

Welcome to the wonderful world of Dex [b]TM[/b]. Its the 'D' of your CDT… Dexamethasone.. a small but very powerful steroid that has a bit of a reputation for causing all sorts of small problems… from 'Moonface' to flushes and bad attitude to excessive sweating. But… it is also an excellent drug because it works. It boosts…[Read more]

Eve and Slim

I am so sorry for your loss, I send our condolances to Matty's Family and Friends.

Love and ((Hugs)) to you xxxx

Hi Tina

Dont worry about the sleep in the afternoon I do that and am only 56 and not on any meds these days Ha ha.

Keep strong and sleep often

Love and ((Hug))

Tom "Onwards and Upwards" xx

Hi Stephen
A Warm welcome to this forum, please take your shoes of and sit back and feel comfy.

Sorry I cant answer your Q as I have not been on that, but am sure some one will be along and be able to give you the advice you need.

Good Luck on your road to remission.

Tom "Onwa

Eve & Slim,

I don't know what to say… other than my thoughts and love and friendship are yours at such a terrible time. Please let us know what you can when you feel able.

Much, much love:-)

Dai.

Hi Sarah,

It's lovely to hear from you and life on the farm. I imagine Gordon is everywhere because he always was and even if he is only there in spirit his voice and his ways will be echoes on the wind and in the fields and yard… that I imagine, is inescapable.

I'm glad that Charlie has claimed his Dad's tractor and I am sure he thinks…[Read more]

Hi Pete

Well you know how good we are and how good YOUR Forum is, so use it and us for advice to have a moan and or a winge as am sure that you and Ann will want to use it to the max, dont worry about saying/asking a Q you think might be silly (av done it loads and loads Lol)

Good Luck for Tues as for Full X Ray I had no bone damage? hoping…[Read more]

Hi Stuart…

I just went into my profile picture and noticed it was not centred… i.e. I needed to scale it down. It has worked for me, so this is what might be the problem with the others profile picture… to use the scale down until the picture is smaller but centred.

Its worth looking at.

Dai.

I had several side-effects with CDT but nothing major… at that time nothing to compare to it either.:-)

Thing is, while it was a bit rough at the beginning I have to take into consideration the fact that I started treatment with a Kappa Light Chain reading of 3,500… so obviously the CDT was having to work hard… and work hard it most…[Read more]

Hi Stuart its not a problem we can cope with it till its sorted 😀 so many thanks to you and the rest of the team on doing a great job.

Tom

Way to go that young lady Well done Wendy am well chuffed for you.

Its great to read about some one getting good results and i know its just great to be told they are good 😎
Enjoy the next three months and put this MM out of your mind 😎

Love from One "Onwards and Upwards" MM Person to another 😀

Love Tom xxxx

Hi Sally

A Warm welcome to the site 😀

Sorry to hear you are back into MM and need more treatment.

I am not on any treatment I had my SCT in dec 09 but am sure people in the group are on the same as you and will pop in and give you advice.

Keep Strong am sure you will soon kick the MM back 😎

Love
Tom "Onwards and Upwards"…