Hi Tony
Just wanted to send a word of welcome although so sorry we have to meet here.
You must feel pretty rattled at present so hope this helps. I was diagnosed many years ago (2005) and after chemo and stem transplant last year I am now doing really really well.
Keep calm, keep your chin up – I was on the myeloma trial too and it does ensure…[Read more]

Hello Mari

glad Stephen is doing well I know my hospital Lister in Stevenage is not licenced but I have regular visits to UCH and they do so lets hope its soon run out all over the country
Regards Jo x

Hi Helen its a mine field and it should be made simple for those of us that have a Terminal Illness 🙁 I mean how bad do you have to be to get good Money of the state, money that we have paid in :-S

Good Luck with it all 😎

Love
Tom "Onwards and Upwards" xx

Hi Sue

Yes Bridget has been fighting a chest Infection and does not feel like getting on computer as often, I leave Bridget messages on Face Book and when she feels up to it I get an answer 😎

I will send one and tell her you were asking about her. failing that come on over to face book we have a few from here on it 😀

Love Tom…[Read more]

Hi Jean

Sorry to hear Frank's blood's are not right :-/ as for me I aint a clue to be honest just wanted to wish you and Frank well.

Love
Tom "Onwards and Upwards" xxx

Hello Sue

I have been in touch with Bridget and she is not well with a bad chest infection I am sure we all wish that she will be better soon
Love Jo x

hello Jean

sorry Frank is having trouble white cells and neutrophils are all to do with fighting infection it looks like Franks white cells are to low so the doctor is worried about infection he may be brewing a cold. I think 8 weeks is much to long to wait for a scan that needs hurrying up, when you go to spain you will have to try and keep…[Read more]

I must admit to being a tad over protective, even a little paranoid about picking up an infection while I am on this 3 Cycle 'probation' period with Rev & Dex. I will stay on anti-biotics for this period as a 'just in case' scenario but I want my bloods to be a true reflection of where I am with the treatment and don't want them clouded by…[Read more]

Helen
You just go and have a wonderful time,if you have not seen your sister for a long time you are going to find it very emotional too.Love Eve

Hi Helen
Looking at Elaine,s reply,I cannot help but think she has it just about right,we would all like to think that people will get a good run of collecting there pension,but it does not work that way.!!
As for the fact they are more concerned about your blue badge,well every company has to fill there disabled quota,you will then tick one of…[Read more]

Hi Stephen. So sorry to hear your loss. Not as articulate as the others but wanted to say my thoughts and prayers are with you and your children. Day at a time stuff. kay x

Hi David. My thing is sore throats. Get them regularly but clear up after couple of days. Scared me the first time but when it went, like everyone else said, it proved my body can fight infection or viruses sooooo grateful. Glad u got your plumbing sorted 🙂 kay x

Thanks to everyone. Have slowed down a lot and feeling much better. Joints still painful but I have acceptance now. Wishing you all well kay x

Hi tony lovely to meet you. I too was on trial. SCT last September and doing well. Keep in touch with the people here. They will either have been through or going through similar stuff and are supportive and knowledgeable of this illness. Good luck one day at a time kay x

Hi Helen,

A phased return sounds like a good bet… that way you can assess your fitness and your desire to work full-time. 😎

I sent off my form to the ESA today and I hated doing it. I want to work but I have been self-employed since 1994 apart from a year as a part-time project leader with the Probation Service and a local FE College…[Read more]

My brother kindly passed on to me a Sony reader which works exactly the same as a Kindle but I do like the feel of a book in my hand when I am either in a waiting room or a car. But for home I use the downloadable Kindle on my laptop. I read a lot (but not as much as I used to) and I buy most of my books hard copy and Kindle from Amazon. I have…[Read more]

Hi Michele
How are things going,did your husband make any decisions concerning whether to go for SCT??
How are things going in general.Eve

Hi Andy
I have the same problem,and I am not the patient,cannot blame the Dex:-P
Wake up, and just cannot get back to sleep,usually play scrabble with my daughter in NZ but she is not always available as its 3pm over there.

How did the visit to the hospital go,??? Eve