Hi Kay

Well am afraid Dai is correct and he keeps his money am sorry to say.

I had my SCT in Dec 2009 and I still get tired and I mean Real Tired.
so a sleep when your body tels you to and not think am all done its been X number of months, take your time an no rush

Good luck with the hair Lol xxx

Love Tom "Onwards and Upwards" xxx

Hi Nicola

I am pleased that your dad had a great send off, over 300 folk now that a big gathering as you say your Dad was a great man and having 300 plus at the wake is a tribute to your Dad.
Keep strong and Good luck with your Fundraising
And Its Ok to carry on through the nite 😀

Love Tom xxxx

Hi Neelie,

Where is here? What's your Dad's name and where is he being treated?

Being nosey.:-D

Dai.

[quote]Am I pushing myself. [/quote]

In a nutshell, unless you are some sort of wonderwoman? Yes, bigtime.:-) 🙁 :-0

You may get away with it but if you body is suffering, including joint pain, then it is you causing the problems, not your body.:-P

Look at it this way Kay… during your SCT your body's capability to produce stem…[Read more]

Hi Sarah so pleased Henry is home. Patience is the key. Rest when his body tells him too. Eat when he wants. I found little and often was better. Wish you and Henry best wishes. Love kay x

Hi Neelie,

The positive is that your Dad is now in the right place with the right people to take care of him… and they should have been doing so for a long time before this. It makes their job a little harder (having to plot exactly where your Dad is with his mm and the appropriate treatment to bring it under control) and your Dad had to put…[Read more]

Hi Sarah I am so pleased to hear Henry has done so well You must be relieved he got through it so quickly The hard bit is having patience now and learning to rest when your body tells you to Hope Henry gets a verry long remission love Bridget x

Hi Sarah,

Tell Henry to take it slowly, to take it one-day-at-a-time, to take it easy… but to take it.8-)

Before you both know he will be up to speed… just in time for the Olympics.:-D

Dai.

BTW – his 2 bags now, 2 later deal keeps my genuine 'World Record' nice and safe. (14 Bags for 2.1 million cells). 🙂

Hi Fiona,

Thank you for picking up on the thread… I have copied your reply to Becky and I will be speaking (Skyping) with her tomorrow. Its her baby and I believe it will do her good to take the lead on this… I'll advise and sort out the entertainments and press releases etc.8-)

I will pass on all the relevant contact details…[Read more]

Hi Eve,

Like Slim I would love to cut back on the Morphine but I struggle with keeping the pain at bay as it is… so I'm legal too… but I'm convinced that the morphine is responsible for as much harm as it does good… especially after nearly 4 years of constant intake.>:-(

I have checked the Amitryptiline and its sell-by date is 02/13…[Read more]

Hi Susie

A Warm welcome to this great site, hey am the (one of them) man for the giggles if you need them as for the para thingie bob I aint a clue :-/ if My Doc is smiling then am happy 😎 so al leave all the techie stuff to the others.

Take it one day at a time and as has been said dont do too much rest when your body tells you, and…[Read more]

Hi NeelieAnd Dad

First of all That aint no rant trust me lol, and next a warm welcome into the site that now part belongs to you 😀 pull up a chair and have a seat as its gonna be a long ride am afraid.

Now your dad is confirmed as an MM sufferer am sure it wont be long before they stop his pain and get Dad sorted and into…[Read more]

HI Neelie
What terrible time your dad has had but it does not surprise me I went to my docter because I could barely stand up and could not breath she said just a virus take two paracetamols my husband took me into A&E NEXT MORNING WITH DOUBLE PNUEMONIA AND KIDNEY FAILURE I nearly died while in hospital I had 7 units of blood and after test…[Read more]

Yes I agree Dai

Slim never had pn when on Chemo ,but he has it now,people have recommended drinking a glass of milk,plus another thing from boots coco ??????,if the gentleman who recommended it is looking in.I would be grateful for the name again.he said it helps him.

Dai I think its because it,s an anti depressant,Slim was of the same…[Read more]

Hi Neeli as I read your post I found myself getting angrier by the minute There are several people who have had to wait over a year as has already been said gps are unlikely to see a case of myeloma Thankfully M.M.U.K is working very hard to make gps and other professionals aware of myeloma. I also had to wait over a year for diagnosis , many…[Read more]

Hi Neelie

Well I thought my husband was treated badly by his doctor,but I think your dad,s case beats it.the surgery will now bed over backwards and everything will be by the book from now on,you will have to take my word for that.I was lucky I found a young Canadian gp in the practice that listened to me.She is now are designated doctor,plus I…[Read more]

Hi Eve,

My GP gave me some Amytriptiline for my PN last year but I didn't fancy taking an anti-depressant (albeit a very small dose) I still have the packet, unopened… I'll check the sell-by date and if they are still 'live; I'll try them.

You can't beat a personal recommendation.:-D

Dai.

Hi Gill
It does come home to you when you realise children are fighting Cancers as well,My daughter spends an awful lot of time in different hospitals,in and around London,the conditions for care for very sick children needs improving plus it get worst the older you get 14 to 18 year olds are treated on a childrens ward or adult wards. They…[Read more]

Hi Susie
Welcome to the site,by the sounds of it,you are going to find more information from here,than your own doctor told you,did you doctor mention the word Myeloma??????
If you went to the hospital,without any knowledge,it must have felt like a boxers punch knock out!!!!!,its a wonder you managed to take any thing in.

Susie there is a…[Read more]