Hi Teresa
It never ceases to amaze me how many carers cope for years,on there own,not just people who are away from their family,people who just seem to manage on there own.

I am not one of them,I found this forum last year and must admit if I have any doubt or do not feel things are going the way they should,I tend to come on here and gets…[Read more]

Hi Everyone
Well Tom it,s good to know I am not a deaf grey haired old lady and Slims not got a Complete chemo ,brain.my daughter came for the first meeting for a SCT and she confirmed to me its not panning out as explained.
Explained to us as 2 consecutive day of test,then decisions ,then cyclo and injections then harvest then SCT.

After the…[Read more]

Hi Terry,

This is the bit that we don't fully explain in the guide books. We usually offer a few homilies about taking it easy and letting it wash over you… grin and bear it, hunker down, go with the flow, etcetera, etcetera.:-|

You will get the advice and encouragements…' hold on for a little while longer', 'hang on in there', 'its…[Read more]

Hi Caz1
Sorry to have to meet you here but did just want to say Welcome!
Boy, you really are having a rotten time of it all at once and must be having quite a lot of pain.
Hope the chemo goes well and your leg mends quickly too.
Thinking of you
Love Carol xxx

Hi Janet
So sorry to hear your news – we all dread it and wonder how we will react when it comes.
Things have changed so much in five years and perhaps you could try lenalidomide or velcade – there are quite a lot of new things now.
Anyway, you try and look after yourself and make an appointment to ask your ever growing list of questions . I…[Read more]

I am so sorry for your loss Jean… I too am close to my brother (14 months) and I know that he worries about me constantly. I hope that you and the rest of your brother's family find solace and comfort in each other at this time.

Regards

Dai.

Dear Jean

I am so sorry to read about your Brother has been taken.

May I send you and His Family and Friends My Condolences and Prayers.

Love and Hugs to you all at this Sad Time.

Tom xxx

Hi Terry

Well they wanted rid of you or your counts shot up 13 days thats great going (I was 16) now then as for feeling crap, I still feel like that some days.
As for the feeling cold? since my SCT I have felt the cold more than ever before and I had mine done in 2009 :-/ I was always one to be out and about in a T Shirt but now av got a big…[Read more]

Hi Gill and Stephen

Like the ones afore me and the ones behind me I also cross fingers and anything els that can be.

Am sure you are correct it will be "Bugger" all (check spelling?)

Now here we are on the "Man" Thing he he Honest I dont know what to say apart from yep Ladie's you are correct we are Buffoons, Neanderthals the lot why??…[Read more]

AOK, normal, ditto, with knobs on… try not to sleep during the day… keep yourself awake with distracting things that don't encourage snoozing.:-)

I'm a fine one to talk… sleep, or rather the lack of it, is the bane of my life… Cousin Dex doesn't help but I know that a good night's sleep… a good seven hours or more without waking, is…[Read more]

Hi Gill,

My fingers are crossed for a false alarm, or at least something which may be unpleasant, needing whatever they can throw at it but not directly mm related and certainly not indicative of Rev failure. 😐

Stephen no longer has the strength and vitality of before but even so I could not manage to go to France doing little day by day…[Read more]

Hi Eve the media furore is what prompted me to be concerned I find it very disturbing that people can be misled by a few emotive headlines without looking at the facts Hopefully common sense will prevail before things get any worse love to you and Slim Bridget x

Dear Jean I am so sorry your brother has gone From your description he sounds like a lovely man Hang on to a lifetimes memories Jean he will always be a part of you . I hope Alex is able to celebrate her birthday too I hope you can take some comfort that you were able to be with him Jean . lots of love Bridget x

Dear Gill what a bugger!! I really hope it turns out to a minor blip ! Gill having been at the point Stephen is on more than one occasion my advice is dont panic yet ! Stephens doctors will be actively looking for the best possible trerment for him There is radiotherapy as one possible option , longer term there is Bendamustine which although it…[Read more]

Hi Bridget

Thanks for that tip,It has always been the case they are not obliged to tell you about all the help you can get,some things are very wrong with our society.

All this media attention,has increased attacks on disabled people,a couple of months ago,Slim was verbally attacked at the bank,he was on sticks and sat down,a man next to…[Read more]

Hi Gill
My fingers are crossed for you:-)
Why do men never tell you what,s going on ? Slim says it because I make a fuss and would cart him off to hospital!!!!,I call it caring !!

Lets hope its just a blip Gill,and you will get that holiday. I envy you,being able to get away,it is now 17 months since we came back from…[Read more]

Hi Jean

So sorry to hear your news,even if it is expected,you still feel the blow.
Do people take comfort that people they love are no longer suffering,or feel there is no justice that some ones life has been cut short,and they will miss so much of loved ones future lives.
You have your faith Jean,this must give you some comfort,I hope the…[Read more]

Hi Dai you are so right the lack of information to people who could be eligible for benefits is a disgrace Especially when there are politically engineered media campaigns to shop benefit cheats, the latest being anyone claiming DLA It makes my blood boil that they think we are all so gullible and stupid and could be conned by these manipulations…[Read more]

Thanks for that Bridget… as I have heard somewhere – 'Every Little Helps'.

The thing is, there are plenty of benefits, grants and bursaries available for long-term and terminal illness patients and their dependants but no central unit or help-point where you can go and find out what exactly is available and what is due to you. I find that…[Read more]