Hi Eve

Please give my condolances to Jenny and tell her Prayers have been said.

And may The lord help Mike Davis rest in peace.

Regards Tom xxx

Hi Dai

Those hours asleep post Dex is pretty good, going back to when I was on treatment I got sleepy Pills (just after SCT as i could not sleep only took about four and Elaine pushed me into it 🙁

Yes we have had a lot of Bad news on the site but looking at our nearest and dearest how they have and are beating all odds and now are "Onwards…[Read more]

Just a quick Hi to all the youngsters – I hope you are all doing reasonably well and finding life bearable with joy in the morning and a quick smile as you fall asleep. 😎

Regards to all.:-)

Dai.

Hi Viv,

Recalling my CDT experience I was very similar to your Dad. All I can advise is to tell your Dad not to despair… its early days and the CDT is very actively fighting and killing off the cancer cells… but its also killing more than a good few ordinary but vital life cells… so its no surprise he is feeling absolutely drained of…[Read more]

Hi Eva

I am putting so much down to 'Chemo Brain' these days… Tom tries to convince me its just old age but I like to have an excuse. Thanks for the info… its been noted and stored away safely for as or when needed.:-)

Regards

Dai.

Hi Tom…

I had a 3:15 moment… and stayed awake for an hour or so, just catching up… but the good news is I had 4 hours before and 5 after… not bad for the night following a 'DEXDAY TM' and without any form of sleeping draughts (I don't bother because I know it won't do any good)… so I left it to nature and nature obliged.8-)

With…[Read more]

Hi Viv

I was hoping you would get some reply,s from people in your dad,s position,so I am boosting this to see if some people can help you.

People do get very tired,but you have to make the most of the times you have some energy,and make plans to go out even if its a walk round the block,all doctors will tell your dad to excise ,they chemo…[Read more]

Hi Eve,

That's a very interesting point, conformity.

Once mm enters our lives everything changes, forever. After we have come to some sort of terms with the illness and its treatments etc., we try to fashion some sort of new reality, some sort of new 'normality'.

We have to conform to this new normality and then what? In with new and…[Read more]

Hi Eve and Slim

Wel am chuffed for you both as dai says "We all, every one of us, deserve to have the same" (and Dai I notice you are up early 🙂 )

Good Luck with the Harvest and hope Slims ccompletes all in one day 🙂

Lov Tom "Onwards and Upwards" xx

Hi Eve,

When I think of some of the hoops you two have had to jump through and the barriers, administrative, medical and staff related, that you had to take on, address and beat down… all of which should never have been put in place or, on a couple of occasions deliberately erected… well, suffice to say I am delighted that at such a…[Read more]

Hi Dai
You are doing what you do best!!

I have a time it,s 4am don.t ask what I associate it with,but sure enough when it strikes 4am,I look at the clock and know the time without looking!!!

I do think about a lot of things and often wish I took a pen and paper to bed,my daughter does this every night,so you keep on with your writing time…[Read more]

Thank You Everyone
For your good wishers,very very impressed with Kings Chemo unit,it took us be surprise,after local hospital,the staff were very impressive,not one walked by looking down at the floor,and everyone kept checking all monitors.

Gives us more confidence in SCT.

Slim sleeping after busy time,next stage is harvest,so date…[Read more]

HI CAROL

great news about your SCT i hope all goes well enjoy your break in Spain come back fit and healthy:-)
Love Jo x

Hi Paul,

When I had Dex as part of my frontline CDT I was wired – during the Velcade adventure I felt foggy… early indications (Week 4 Cycle 1) of Rev & Dex seem to be pointing to wired – I'm writing an album's worth of songs for February/March (9 of 14 completed) as well as getting on with my 2nd novel. My problem is trying to get some…[Read more]

Carol, thank you… I only take Dex once a week, so I have to make it stretch.:-D I am keeping notes of its effects during the week to see if any patterns develop. Tuesday is my nominated 'DEXDAY TM' so I imagine that Tues/Weds/Thurs will see the strongest effects with a tapering off towards Monday… but I will not be surprised in the least if…[Read more]

Hi Carol

Thats great news 😀 evrything is moving along nicely 😎

Good Luck with the pre test.

Love Tom "Onwards and Upwards" xx