Now thats the way to go dai 😀

I know and you know that we are all behind each other 😎 we have (unfortunately) got a great gang all rallying for each other, and that for me Dai is a great thing 😀 .

Am Pleased you are 70% better. I know what you say you can have too much pain and if its only now and then we learn to live with it but the…[Read more]

Hello Dia keep being chirpy:-) 😀 😎

so glad the rev and dex seem to be working perhaps this will be the ones for you:-) so many people for who Velcade didnt work seem to get on well with this regime I do hope your readings stay good and you shoulder stops hurting you are in my prayers
Love Jo x

Thank you Tom & David… it's good to know that you are behind me and I hope it stays that way for all of us for a good while to come.:-)

My shoulder is easing each day… I'd say it is about 70% better than at its worst point last week. Continual pain is wearing, it drains you physically and mentally… but knowing that the pain has settled…[Read more]

From the beginning I had a mantra that carried me through my frontline treatment, harvest and SCT… [b]'Whatever It Takes'[/b]… I still hold fast to that mantra although these days it is more than often a softly spoken reminder, rather than a defiance spat through gritted teeth.

Tom's has been [b]'Onwards And Upwards'[/b], David's South…[Read more]

Hi Janet

Yes I park outside the hospital on double yellow lines 😀 and i can do that for three hours.

Hope your Cough is soon better I have just got over Flu and that turned into a chest infection so had to have some anti biotics, cleared me up a good un, never felt better for years so lord nknows how long av bin poorly lol.

Ps My Young…[Read more]

Hi Andy

And a well done you 😎

Hey you aint gonna have "Bad Times" its Onwards and Upwards for you M8 😎 saying that all us MM'ers need to keep an eye on our temp 🙁

Keep strong and fit

Tom "Onwards and Upwards"

Hi Pete,

Thank you for the excellent breakdown of your Dad's disease… but unfortunately this site is concerned with Multiple Myeloma and its related diseases and procedures. I do know of your Dad;s disease but I have never seen anything related on here in the past three years. I would ring the site admin – clinical nurses included for best…[Read more]

Hi Janet

Yes they did that at my hospital Scunthorpe General 🙁 but when I had my SCT I had that in Castle Hill in Hull and that had free parking at the Onc/Hem dept but you had to be on and early app as it soon got full.

As for me I park outside the hospital in a bay that says "30 mins parking no return for two hours" I asked a traffic…[Read more]

Now Dai
Am I the one that said "If anyone can do it you can" Good Lord am I pleased I am correct way to go Dai you are nearly up and running 😀 .

As you say the list has grown a lot that hang on to your Tail and follow you. I know you will keep strong and have the mental being to go as far as it needs.

From One "Onwards and Upwards" To…[Read more]

Hi Tina
Another Delay :-S well I hope they dont move it again and you soon get the pain relief you deserve 😎
And you know you can moan as often as you want 😀 it lets off a little bit of steam and makes us feel better .

Love Tom "Onwards and Upwards" xxx

Hi Tina,

I have been there, re: back, spinal tumour, so I have great sympathy… but IMHO the medics have got it right. I had several high doses of radiotherapy a year before I was diagnosed with mm and stlll, a year later my stem cells had not recovered and I struggled to raise 2.1 million cells after 5 intensive, expensively boosted days in…[Read more]

Thanks Paul,

As always I'll keep in touch with progression for those that follow behind… and that list has grown an awful lot in the past three years.:-D Unfortunately.:-(

Dai.

Hi Bridget & Andy,

My shoulder is improving daily, so I am assuming that the Rev is doing its work. Now the the sharp pain has gone I have been left with a dull ache that pulls if I stretch out and up – so I try not to.;-)

Yesterday was a real boost… very, very early days but the indication is that I am tolerating the treatment with no…[Read more]

Hi Tina,

What exactly is your treatment plan? Is this your initial frontline treatment and have they mooted radiotherapy for your spine tumour?

Dai.

Hi Dai I am so pleased for you It is such a boost when test results are good and as you said now you know Rev and Dex are getting on with the business of getting the beast back in its lair!! I hope it gets rid of your shoulder pain quickly , no wonder you were feeling down pain like that is so unrelenting Heres to the future Dai its looking good…[Read more]

Hi Viv

Welcome,this is going to be a big learning curve in your life ,and many times you are going to wish you are not here.There is no cure for Myeloma but it is treatable,how long a person lives depends on how they view there world,there hopes and dreams.

You have had Cancer yourself so you know the problems,We live in this world of…[Read more]

Hi all

And I third that, I used to like the cold and hate the warmth but since my SCT I find I am the otherway round, Cant get warm in winter and cant get enough heat in summer, I was always the one that said Gosh its Hot today Lol.

I have taken your Wine Bridget (hope it was red?) and also drinking your Vodka Lol.

I raise my glass for…[Read more]

Hi Eve and Slim

Gosh all that traveling you tell us about makes me bloomin tired (bless you both)

And you are correct all that could be done local its all on computer so your other Dr's can see it anywhere.

Hope you have a good nights sleep.

Love Tom "Onwards and Upwards" xxx

ps I was told no flying away prior to SCT and none for 6…[Read more]

Hi Janet

Sorry you have got a relapse am sure it was a shock but their is many a new thing out on the market today to put you back into remission 😀

As for parking fee's dont you have a Blue Badge ? if not thats one thing I would be getting into it helps a great deal having one of those.

Good Luck and stay strong

Tom "Onwards and…[Read more]