Hi Dai
Thanks for that info I have had a little bit of dicomfort on my shoulder but I put that down to doing too much and or sitting in a drafty room at work ?

And re your new? treatment I have said before if anyone can do it your the Man 😎

All the best Dai
Tom "Onwards and Upwards"

Hi Valerie
Not sure how I missed this post?

But am Pleased it is getting sorted out, have a great time in Venice (Am jel)

Love Tom "Onwards and Upwards" xx

Hi Chris

Pleased you are doing good (well as good as we can be) The blue badge is a godsend saves you money and park nearer to where you need to be (cept in Scunthope General Hospital).

I tried to get something from the State and all I got was £63 per week and when I went back to work after a few months I got told by tax man I owed them…[Read more]

Hi Chris great to hear things are going well Congratulations for your wedding, at least you should have some sunshine , you are so right it really helps to have something good to look forward to. Good luck wth the insurance company the older I get the more I think they are a bunch of crooks!! Stay well and happy Bridget

Hi Tom,

I was due to start Rev & Dex on January 9th but I was (easily) persuaded to hold off on the chance of getting on an active trial for Carfilzomib (of which I have heard nothing but praise). To qualify I had to have 0.5% myeloma present in my urine.. which I didn't manage to achieve over 3 x 24hour urine collection tests conducted over…[Read more]

Hi Dai

The frozen shoulder being a new area of MM can you throw more light on that for me please as I have discomfort rather than pain in my right shoulder (lol i hade to check which side it was on L/R lol)

I hope you dont suffer too much on the early days of your treatment.

I dont kow if you buy water I used to as our water aint that…[Read more]

Hi Sue

Yes am sure it is all down to the cost :'-( and that makes me angry.

Good Luck for the bloods next week

Tom xxx

Hi Terry

Re work ::::: I had my diagnosise in Jan 2009 was working still, I work on an Inland Dock loading and unloading Ships/Lorry's which is hard physical work and the treatment I had was CDT.
I had 3 cycles of that and was too tired to carry on working so went on sick may 2009 I had a total of 5 cycles of CDT and my stem cell transplant…[Read more]

I'm having a rough few days at the beginning of my Revlimid & Dexamethasone regime… not helped by a 'frozen shoulder' which in truth is a new area of mm. So, while I am feeling a bit sorry for myself I know that a couple of decent nights sleep, a bit of pain management and upkeep of my liquids will soon have me feeling much better.

The…[Read more]

Hi Tina
Fluid is a must,I have the same problem getting water down Slim,I bought 2 plastic jugs with lids,and fill them up with week juice,and put in fridge,Slim found it easier to have a small glass,so kept it filled up constantly,he went through a stage of fizzy drinks,my attitude was anything that goes down,you will find your taste alter all…[Read more]

Hi Sue

Am so sorry to read that Michael is not able to fit the criteria to help him? how bad do we have to be to fit the bloody criteria :-S because for all intent an purpose we are all dying this Bloomim MM is at the moment a Terminal Illness so we should fit the criteria or am I just too thick to understand it all:-S

I dont know what…[Read more]

Hi All

Well I love the Irish they are great people but I cant stand that black stuff they Make 🙁 but that said it might be better in dublin? who knows I just might try a trip to dublin and try a half?, hope you all are enjoying your 3 ltr of fluid ? lord knows how much vodka I had last nit lol

Love Tom "Onwards and Upwards" xxx

Hi Sue
So many years of fighting for drugs,again like Bridget it seems so unfair,I am amazed at these criteria they have,MM patients lay them selves out to become guinea pigs ,and they get choosy who they take,are MM patients part of the grand scheme or just a by product to be disposed off if you do not meet the criteria.
Sorry I sound so angry…[Read more]

hi Tina

I was told 2/3 ltrs a day the more the better and yes it can include tea squash not much coffee for me as i have damaged kidneys also the odd glass of wine is ok if you have some water along side kidney specialist told me this I prefer red myself!!:-) 😀
Good luck Jo x

Dear Jo I am sorry your dad lost his fight against this horrible illness No wonder you are all in shock but stay strong and together you will get through it Remember all the good times , your dad will always be with in your memories Bridget

Hi Joe

I am sory to read about the sad loss of your Dad, I send my condolances to you and your family.

Stay Strong and know that your Dad is no longer in pain, remeber the good times and put the bad days to the back of your mind.

Keep in touch and hope all goes well for the funeral.

Regards Tom x

And a lovely Photo it is 🙂

Tom "Onwards and Upwards" xx

Hi Tina

Yes it is hard to do but i was told 3 ltr a day :-0 and that can include tea, coffee and or fruit juice I myself have also added to that list "Vodka,red wine and of course beer" ha ha.

Good Luck and Happy Drinking 😎

Love Tom "Onwards and Upwards" xxx

Thank you all for your lovely wishes and kind words Its at times like this that we appreciate good friends who understand, I am so thankful that I found this site way back when !! I am less shell shocked now and I keep thinking of random things which leave poor Jeff rather puzzled But on the whole I am being a bit of an ostrich and burying my…[Read more]

Hi Amelie

There is alays a chance for a long remission with the 2 SCT yes I know that some dont last that long but we all differ in the way that the treatment works, I honestley cant answer the reason why some work and some dont :-S Lord I wish I could.

Please take care and I wish with all my heart that John has a long and trouble free…[Read more]