Hi Andy good luck with your journey. It is an emotional roller coaster. But as It was said to me "it's not a walk in the park but you will get through it" and like others I did with the help and support of this site. People here have either been through it, are going through it or will be going to go through it. So stay close x

Thanks Kay and yes I do hope it helps to hear good news also I am sure more and More folks will be soon Joining me on the "Treatment Free" Regime.

Love Tom "Onwards and Upwards" xxxxx

Dia
i am so glad you can be positive about the drugs you it might not be so bad to have revlimid treatment I know a lady in my support group who has had revlimid for nearly four years on a low dose now tablets every other day and no steriods at the moment thalidomide and velcade were not any good for her she says that there have not really been…[Read more]

Such great news Tom. It will keep me going, positive and strong. Kay x

great news Eve

you have had such a struggle so it looks as if there is a bit of blue sky on the horizon I hope the tests prove to be good so that every thing is go for the SCT good luck and kind regards to Slim
Love Jo x

Hello Andy
welcome to this site you will find so much help and encouragement from so many people Myeloma uk is so good and the help line is a god send so many questions that need answers I hope they can sort out your back and give you sme relief from pain GOOD LUCK with your MM journey
Love Jo x

Hi Andy
A warm welcome to this warm Site and am sure as you have read a bit you will already know that we have some great folk on here.

Enjoy and ask and tell away, good luck with your road to remission

Tom "Onwards and Upwards"

Hi Dai
What a devil that is am sorry to hear that, wonder how Ill you need to be before ur "P" starts to show MM :-/ anyway Dai whatever they throw at you am sure you will cope with it and the bloody side effects.

Tom "Onwards and Upwards"

Hi Eve

Posted on my face book? cant find it dont know where you posteandnd av tried to find you and cant 🙁 wot name are you under ?
And I cant wait to be your Friend xxx
ps wot name do you go under and do you have a photo ?? xxx

Hi Bridget and Helen

Bridget I do not know if they do accomodation,but I will ask,I have been told its the main trauma hospital in London,deals with anything bad that,s going down,The easiest solution would be go in one day have test then come out after 2 days of test,I am lucky I have a daughter who lives in Sevenoaks,but last time she…[Read more]

Hi Dai what a bugger!! Rev and Dex have proved to get good results though and as you say the other advantage is freedom from hospital visits. I hope it does the trick but at least if you do need further treatment Carfilzomib would be an option and may be more readily available love Bridget x

Hi Andy welcome . Its sometimes funny when you find yourself doing mad things because of steroids!! There have been times when I found myself cleaning like a mad thing at 3 am !Like you I was diagnosed after about a year of back pain and they discovered 3 vertebrae had been destroyed completely After surgery to stabilise my spine with huge…[Read more]

Hi Kerry & Melvin,

I'm sorry but I missed your post for a while… it may sound strange, stupid even at this stage but while you will remain 'scared', hopefully at a much lower level than now, you will nor be 'frightened' for long.

It will not take long before things start settling down as you gain a better understanding of the what, why,…[Read more]

Hi Mavis you arent alone in having senior moments I have them all the time!! My grandson is 11 and at the moment he tries to appear like a cool teenager half the time , the other half he is the little boy who takes teddies to bed!! Bless him They are under so much pressure to grow up quickly these days its such a shame they cant keep their…[Read more]

Hi Eve I must admit London isnt my favourite place either too busy and too noisy , perhaps 30 years ago I would have had fun but not now . I dont drive into London luckily Jeff doesnt mind so he drives as I cant manage the walking and stairs when going by train. Most weeks I am there at least once and every fourth week I go twice a week not my…[Read more]

Hi Mavis and Tom
thank you for your good wishers.Tom I posted on your face book,don,t you want to be my friend:-( 🙁 🙁

Hi Bridget

Although I originally come from Liverpool,I am a country bumpkin at heart,so London was a bit daunting,Just cannot see Slim coping well with train,all though easier option,last time we went my daughter took…[Read more]

Hi Eve great news it always feels better when things get moving. Is Slim close to making a decision yet ? It is a scary decision to have to make but the benefits could be immense if all goes well , that just makes it harder to decide though. If you do drive into London there are disabled parking bays dotted around all over the place which you…[Read more]

Hellow Eve and Slim

Well am pleased (if you and Slim are pleased) for my Penny's worth for me I am pleased I did the SCT. Good Luck with it all cant offer advice re train or car sorry 🙁

Love to you Both

Tom "Onwards and Upwards" xxxxx