Hi Terry

Am pleased you got them little blighters out but am sure 6 wont be enough for two SCT? but hey ho you never know.

I found it strange that you had to make your own way to hospital?? I went into Scunthorpe General and had my Femoral Line fitted, stayed in Hospital over nite and was transported to Leeds (seacroft hospital) by Car and…[Read more]

Hi Cinzia ,

You don't say if you were given any anti-sickness tablets (Metracoclopide or something like) with your CDT meds. I took them and they worked … every time. They work best if you take them at the same time as your CDT or even an hour or so before.

Dai.

Hi terry. It is a shame they did not tell u about two day stint. Me and my friend stayed in the hostel over the road free of charge and it was really nice. They wanted 8 million from me for two transplants but got 4 which was enough for one transplant. I am at barts for last time on 19th march. Would be happy to pop in and say hello if u wish.…[Read more]

Hi Everyone

Thanks for the info Ellen,I know this is a complicated complaint,but hope you understand how lack of knowledge does not help the patient.
Good luck Dai with your bottle,!!!
Hi Min no holiday yet,as have had a number of hospital appointments,hoping to fit a cruise in before May,looking good.
Min believe it or not if Peter is like…[Read more]

Dear Min

Well I wish you Luck and i thank you for being My Online Friend for a long time, I loved your strenth I also loved your Compassion and care to us all I for one will miss you on here with your kind words of strenth and Care.

I understand your reason for needing to leave the site and I send you on your way with a great big Hug…[Read more]

Hi terry I'm assuming u had your harvest yesterday. Hope all went well. I was in barts too and they are fantastic. I was one of the lucky ones who breezed thru it. One bout of diarrhoea, one bout of sickness and no infection. They kept telling me I was boring:-) but even if you do have any side affects they are constantly monitoring you and give…[Read more]

Hi Vic
Welcome – glad to hear from you but sad that it is under these circumstances. I too have a problem with discs and they are monitoring to I will be interested to hear anything too about this procedure.At the minute I am managing with Tramadol with the occasional top up with a little bit of oramorph but even still I have pain.

Best…[Read more]

Hi Terry
I was on the machine for two days and with the needles in each arm and having been asked to lie flat ant to try not to move around and disturb things I couldn´t do much other than snooze and chat to lovely hubby in between.
The only difficulty I had was a lack of calcium but they gave me an injection and a couple of glasses of milk…[Read more]

Sorry to hear your unwell David. I was told that Kiwi fruit has lots of things in it that helps – anyway I eat one every day and since I started have escaped the usual winter colds etc.
Hope you feel better soon.
Love Carolxxxx

Lovely photo!
Love Carolxxx

Dear Min when I read your post it made me a little sad You have been a towethat you are able to move on , as you said r of stregth to so many of us , always good sensible advice tempered with kindness , even when things were really tough for you Thankyou for your kindness and wisdom . Whilst you will be missed by so many of us I am pleased for…[Read more]

Hi Jill
My husband has just finished a course of Velcade which he found ok,except for the hospital visits at your mums age they will only do it once a week,but first it,s blood then velcade and it can be combined with her Zometa so one less hospital visit. It does depend on what hospital you attend some can do the whole process under 2 hrs.some…[Read more]

Hi Dai
Min is right about less liquid needs to be day before 24 hr bottle.!!!!

If I am correct Dai you have Kappa Light Chain like Slim,so bloods do not detect it and urine is the marker,so as Min says how do they know you have it back,have you had a MRI scan or BMB,if its showing in light chain test it has to be going through the kidneys…[Read more]

Hi Vic
A warm welcome to the site.

Sory I cant add anything to your Q re Kyphoplasty as i have not had it, done the 5 cycles of CDT then Stem Transplant.

Good Luck in your road to remission, and some one will pop on and give you the information you ask

Keep strong

Tom "Onwards and Upwards"

Hi Jean

when i had shingles they came up as pustles that looked like chicken pox
and boy was it painful I am so sorry to hear about your brother i hope you get some good news soon I am ok at the moment this months bloods were just a check its next months which tell me what stage i am at uptil now i have been in a good partial remission so long…[Read more]

Hello Mavis
its a lovely photo you look really jolly
Love Jo x

Hi Dai I will cross fingers and toes that you get that 0.5% you need Good luck love Bridget x

Hi Mavis thankyou for posting your photo its lovely and so nice to see your smile love Bridget x

And may I say its a great photo, you look "Posh"

Love Tom xxx