Evening all I have now ordered the laptop from PC World who say I am saving £220 , well dont believe that but I am saving a £100 so very chuffed !! And it will arrive on Thursday yippee !What a difference a day makes love Bridget x

Hi Roberta lovely to hear from you and thankyou for your kind words. Sorry you have been unwell I hopethings start to get better for you very soonStay in touch when you are up to it love Bridget x

Hello Dia

glad you can stay positive although it must be hard. The rev and dex can be a regime its only low dex as i understand it there is a lady in my support group who has been on this regime for over four year and is still in plateau she could not take other meds thalidomide or velcade,fingers crossed for the 5%
Love and (((hugs)):-)
Jo x

Hi Geri

we all try to be brave on the surface but inside I dont always feel it, we have to fight this thing all the way never give in. I have had MM for three yearss went into hospital with pnuemonia and renal failure and as it turned out MM what a shock!! my kidneys are still only 20/25% so I chose not to have a Stem cell as it could of killed…[Read more]

Hi Dai sorry I havent got round to answering you yet Revlimid , Velcade and Bendamustine failed to make any impact over periods of more than 3 months Each time a new tumour developed the latest is not the most painfulbut seems to have become very large in a short space of time so a bit scary especially the risk of paralysis I will certainly enjoy…[Read more]

Hi Bridget,

Thanks for replying. I asked in your thread exactly what treatments you have had… I was wondering how you fared on Revlimid… but you have said that it didn't work for you – did they give a reason, or did it become obvious through tumours, new disease etc.

I hope that you find a suitable treatment soon… in the meantime…[Read more]

Hi Dai it is such a nuisance when you cant get the results when you need them! Like you I used to be very responsive to blood tests until after my first relapse , since then I have become a non-secretor This is likely to excludeme from some trials as they will be unable to measure performance It is so frustrating so I know how you feel although…[Read more]

Hi Bridget,

That is rough, tough news but at least they are looking at and discussing options. First step is the surgeon… hopefully he can get to the tumour and take it out… or at least enough of it to allow the radiographer a bit more leeway. If it is down to the radiographer then so be it. I appreciate the problem but these…[Read more]

Hi Jean I got a bad fit of the giggles reading your post I could just picture it!! The other thing that struck me is how innocent people were in the fifties, so different from now Roll on Sunday evening ! love Bridget x

Thankyou John, David and Min how good it is to have friends who care I am as calm as can be really Had to tell the kids in a very matter of fact way so that they dont panic which helps me get a grip As you say Min tomorrow is another day and there is no choice but to get on with it! Mind you there might be a bit of whinging after 4 days of the…[Read more]

Hi Glenn great news about your tumour Heres hoping you get your sct very soon and have a very lng remission love Bridget x

Hi Glenn

great news your tumour has gone what a relief you can now look forward to your SCT good luck with that I hope all goes well with your op Love Jo x 🙂

Hi Mal and Bruce good luck for tomorrow hope all goes well love Bridget x

hi Tina and Geraldine
welcome to this site so sorry you have to join but this is the best place ever for help and support and a shoulder to cry on if you need one
Love Jo x

14 lyrics by the 29th February – different genres depending on how I feel – hopefully I will find melodies and I will record (and post here) any that are completed.

If I end up with 14 lyrics, 7 melodies and 4 finished (recorded) versions I will be happy… with completion of others to follow.

Here is the first lyric… a little country…[Read more]

Hi Glenn

And a Well Done on getting rid of the Tumour

I will leave the info for your other op to some one else as i dont know anything about it? but good luck Anyways.

Tom "Onwards and Upwards"

Am Back, and the photo's look awesome you are doing a great Job David, and i wouldn't be adverse to that being my final restbox

Tina I aint made a choice yet? but am thinking of "Burning Ring Of Fire" as they close the curtain's lol but we will see.

Helen am sat here listening to Stairway to Heaven 😎 fairly loud as no one is in next door…[Read more]