hello Eve

nice to hear from you we have a few days away this week in the New Forest I hope it stays dry.
I love the theatre but not in love with musicals but Geoff is so I treated him he does so much for me he deserved a treat, then I scratched the car and he didnt moan so another treat is due!!
I am still in Plateau only 5% mm cell in my…[Read more]

Gill
what wonderful news I cannot express how pleased I am for you and Stephen long may it last or even get better something to cheer us all up:-D
Big ((hugs))
Jo

Hi Gill what wonderful news after all the stress you have had recently Guess you will be off to France soon? Go and have fun, relax and enjoy life, put mm to the back of your minds Love to you and Stephen Bridget x

Hi Christine and welcome I am sure you will find this site as invaluable as I do. Sorry I cant be much help re collapsed vertebrae though. In my case I had 3 vertebrae completely dstroyed before being diagnosed, the doctors used to shake their heads in amazement because I was walking around , mind you the year of absolute agony was no fun Before I…[Read more]

Hi Jo

Good to see you have got over your food poisoning,and back to your old self.
I get up to London occasionally ,last time to see Mama Mia with my daughters,unfortunately Slims has no interest in the theatre .

One of my Christmas presents are tickets to see Calender Girls locally in Canterbury in February,So a nice evening out for…[Read more]

Hi Mandy so sorry to hear about your mums pain and also that she has this horrible illness. Treatment affects people differently, but I can understand her frustration with the PN. I was extremely active before treatment and now I have finished the only thing that is still with me is PN. Gabepentin is what I am on. It takes time to build up in the…[Read more]

Hi Eve,

Perhaps Slim has suffered from a few bouts of 'cold turkey' without realising it. I know that since being on morphine my short term memory has been shot to pieces… I dread forgetting my clexane injections but fingers crossed I haven't done so this far.:-) I collapsed at home with a pulmonary embolism once… and once is enough for…[Read more]

Thanks Dai
The penny has dropped.
Slims tried to come off his pain tablets a few times plus since not being on chemo he has forgotten to take his tablets going to bed a few times,specially when he was on ant-biotics ,because he had to take them on an empty stomach and his other tablets with food,he is the one that controls his tablets,as he…[Read more]

Hi Eve,

Some people manage quite good health when in remission periods, some even manage to return to work and travel freely. I think it is down to the amount of bone and other damage you accrue… that and the levels and types of medication needed each day.

I have quite extensive bone damage… and while I can walk unaided my back soon…[Read more]

Hi Phil
Thanks for the good wishers,cannot book a cruise yet,even though we were hoping for a last minute short cruise from Dover.Slim has not heard from Kings and we have a number of hospital appointments in line,if I could get some dates,we might be able to get away.we do need this break.

I am finding this remission is Like a new ball…[Read more]

Hi Dai
From the sounds of it i would agree with Janet,except Lee Marvin was tone deaf.
Think your self lucky you can sing,at family events after a few drinks,if I made any attempt to head for the stage to sing,it use to be a race to stop me getting to the mike,even singing in the bath is banned:-(
I think singing is an expression of happiness.…[Read more]

Hi Dai

Yep I and manymore know how you feel, but I intend to live long enough to see my youngest Grandchild get married 😀 and am sure My Sons will be having Kids for years to come Lol 😎 so I will never say never and long may My sons be fertile he he.

Good Luck with it all Dai and keep strong.

Tom "Onwards and Upwards" and waiting…[Read more]

Hi Mandy

A Warm welcome to the site and hope your Mum's Journy along the road is a good one and your Mum takes it one day at a time, dont expect great things as it takes time to find out what works.

Hope your Mum gets on the site as am sure it will be of a great help to her like it has and is to myself and all the others on here.

Love…[Read more]

Hi Eve and Slim

I know all about the one forward and two back 🙁 but hey take it from me its worth it 😀

And I am sure you will both be very welcome into the "Onwards and upwards" Gang as we have an Open House 😎

After My SCT I was not too well and thought it would never get better as it Seemed ages before I felt half normal, as I…[Read more]

Hello Eve
I totally agree with the the statement it a really good way to think
Love Jox

Hi Eve and Slim
sorry slim is not feeling so well I hope it is just a blip after coming off meds I felt a lot of withdrawal symptoms when I came off CDT I think the drugs have to work there way out of the system I havn't slept as well since not having Thalidomide. I am still lucky enough to be in Plateau I don't know how long for so fingers…[Read more]

Hi Eve,

That is a good question with a very good answer. It is difficult to reduce one's philosophies into words, never mind one answer…

My own ?

The one thing that lifts me above all difficulties is the knowledge and the certainty that I was loved.

Dai.