Hi Glenn
I originally am a scoucer,so I know that Clatterbridge from the start has all ways been a designated Cancer hospital,so you are in good hands.

Slims on the Velcade with Dex and Cyclophosphanide. VDC for short,as you progress with Zometa you will find you can do more things,iam all ways nagging Slim about doing to much,his answer is I…[Read more]

Great news eve
lets hope it lasts a real long time so yuou both can get on with your lives and enjoy your travelling again:-)
Love Jo

hello Glenn
I dont think we ever really get over the shock ''why me '' I am a bit older than you I retired early one day ok next day in hospital with renal failure double pnuemonia and MYELOMA that was three years ago I managed with the thalidmide and have been in remmission for nearly three years I didnt have an SCT( my choice )as my kidneys…[Read more]

Hi Glenn

As for pain? well I have a bit of pain but am sure it isn't down to the myeloma :-S might be just old age as all my bloods (well thats what the tell me) are Ok, only effects I had with the Zometa was a flu like symptom for a few days after getting it infused :-/

I also have a very supportive Family three grown up sons and soon to…[Read more]

What fantastic news for you both. Enjoy hearing the positive side of this illness. I had SCT in September and came through it really well. Out in two weeks and now I am back to work. Love Kay x

Me too Tom.. constipation is often treated as a joke but there is nothing funny about being on the receiving end. I have had several problems with it, a couple severe and one where I was so extended (stomach) that I ended up in hospital… luckily I had taken 6 (six) Movicol solutions that day and I ended up pooing for Wales (8 Caps).

I t…[Read more]

About time too… talk about dragging your feet. 😀

Well done to both of you… especially you Eve, you have fought tooth and nail to get to this point so enjoy every moment of the remission… as should Slim. 🙂 😎

Dai.

Hi Bridget and all.

Perhaps, like the new 'Life & Grief', there could be a 'Practical Support' section on the board. I see this section as a place for questions and advice on benefits (financial and practical) and general support issues.

I am sure that we could all benefit (excuse the pun) from the experiences of people like Bridget, people…[Read more]

Hi Nicola

I do hope your Dad is soon sorted I for one could not poo for some time when having treatment and its one of the worse things that hit me while under treatment, I hope its soon sorted.

Love and Hugs

Tom xxx

Hi Glen

I wish you well in this journey I was told in jan 09 I had MM went on 5 courses of CDT (done ok ish with it) and had to pack in work due to being tired and weak had SCT in December 09 went back to work on light dutie's and all the treatment i am having now is Zometa infusions every four weeks 😀 and when that stops (soon I hope) then…[Read more]

Hi Heather

For me staying employed and being on Sick was for me a Goal I had, to get better and back to work to show myself I can and will do it (am a stuborn cuss lol) it warked and I went back after a year off on Light dutie's still doing those "Light Dutie's" and to be honest am getting ready for giving work up 🙁 dont get me wrong the…[Read more]

Way To Go, way to go, wayyy to Goooo, that Slim and Eve, wayy to Goooo And a great BIG WELL DONE from me and the Young Bride (Elaine)

I know for you both its been an Uphill Strugle 🙁 but as I always say "Onwards and Upwards" and you two have proved it can be done 😀 well done to you and your Team 😎

As for the SCT Eve I had mine in…[Read more]

Hi Everyone
Thanks for your wishers,I know it,s just the start,but to us its a light at the end of a very long tunnel.
We will go to kings,and see what they offer on SCT but we know how the consultant feels,but as he said Kings do hundreds and they are the experts.

We are still piled up with appointments so no travelling yet,hope to be able…[Read more]

Hi Bridget

I think you would be good as our resident expert on financial matters on this site,at our hospital there is no information except a notice board note telling you to get in touch with macmillan office.I tried this when Slim was in hospital,never received a reply,made me so angry it put me off trying.
later applied for,some…[Read more]

Great news Eve you must both be on cloud nine!! Poor Slim has been through so much it must such a relief Get travelling and enjoy all the things you have been dreaming of love Bridget x

Hi Heather,
I have to ask where have you been,no insult,but people like you can be such a help on a site like this,we know from other people the NHS are not the best when it comes to there own staff.

If you want a honest answer from me,both of you retire as soon as possible,
I know what you are thinking,it,s not about money it,s your quality…[Read more]

Thank you all so much for your replies. Lorraine you have given me a lot of hope. Scan went ok. I believe they are thinking about putting me on revlimid but we shall see on Monday love Kay x

Hi Pilgrim
I would agree completly about banks,many many years ago,I was desperate,saw my female bank manager who had so much faith in me,these days its computers or the legal department full of kids out of uni who decide you fate.God Help US.

Its just having the energy to fight the battle,when you have enough to worry about without banks…[Read more]