Hi Helen

I am the carer,and cannot blame the dex8-)
Hospital waiting times,grrrrrr organise yourself s if I started,I would need more than this topic. I found it horrendous ,far easier to do a 60mile round trip,specially when Slim was not feeling to good,I have been known to take Slim home after Velcade and go back on my own for tablets…[Read more]

you are right Eve the bluebells are beautiful at the moment the woods near us are one carpet of blue and the smell is heavenly it gives you a lift just to see it I am glad Slim managed to get into the woods, any news on his scan! yet are you keeping well
Love Jo x

well Tom

I think a double is called for wonderful news for you and Elaine you will be able to sit back and relax for a couple of months
BIG (HUGS):-P
lOVE jO X

Hi Vicki and Colin
Yes I am ready for "the cure" ???? yes I am drug free but it's the same as always when it comes the the bloods,the worry and am sure the stress, but hey ho it has to be done.

Stay well you all.

Tom Onwards and Upwards x

Hi Tony and David

Spring might be late this year,but its worth waiting for after such a long time not being able to enjoy it.

Slim was in hospital for 22 days first time, I use to drive with windows open along the A2 on the way to hospital at 8am back at 9pm,so spring passed me by.the next time Slim was in Kings having SCT,good hospital,but…[Read more]

Hi Chris,

Superstar??? That's a new one to me… that's Tom's field…regular, yes but not as regular as I once was because I don't have as many contemporaries as I once had… people going through the sam things etc., – I am now quite ahead of the field… mind you, saying that I am on Velcade for the 2nd time, after a very successful 6…[Read more]

Hi Dan

That's wonderful news,give your self a pat on the back,you are doing wonderful. Please take time for your exams ,they are your future and very important,make sure the appropriate authorities know your problems,it,s important.

There is no magic formula ,the general feeling is your dad should get 1/2 the remission ,but lots of factors…[Read more]

Dai I have said that Many a time 😀 that I haven't and never did have it it was all a mix up Ha ha.

But I also feel that I am doing so well (drug free) is because I had enough Stem Cells for two transplants BUT they put them into three bags and not two :-S , so Saffy the consultant gave me the three bags, twice as much as I needed ? so do you…[Read more]

Hi Christine and Chris
Well I honestly cant add to that excellent post of Our Dai's its spot on, no rush nice and steady, you both will have to learn to change with the MM, but always always fight it.

Love tom Onwards and Upwards xx

Hi Tom,

I sometimes get the feeing that one day, out of the blue, you will get pulled in and your consultant will sit you down with a grave face and say.. sorry Tom but we made a mistake, way back when… 🙁

It seems that you don't actually have MM… in fact your complaint was linked to a blood disorder that affected your bones and showed…[Read more]

Hi Ann

Sorry in delay in reply :-0

I think my wait was because my Dr missed me and sent another patient when it should have been me (he got told off though 😛 )then I had to wait for a bed to be free at Hull, as you know it all worked and am still kicking though not as hard 😎

God Luck with all yours.

Love Tom Onwards and upwards xx

Hi Skyblue

I am sorry to read your Grandma has been told she has MM and I hope the treatment is kind to her.
I also think this MM stuff is passed on I have told my three sons if they have bone pain go to Dr and tell them about Me and Ask for Blood tests.

Good Luck to you and your Grandma.

Love Tom Onwards and upwards x

Hi Helen

Yes its work but not hard work to be fair as I have been looked after like a long lost Son at my workplace.
As for driving yes I did and still do after my SCT in 2009 I had to go back to hospital every week for bloods and a check up and I drove to and from Hull 😀 , even after my BMB at 100 days I took a Friend with me to drive home…[Read more]

Hi Sarah
Gosh you have your hands full I can see, and am sure its stressful for you all.

I hope you take some time out for yourself?? as you will need it.
Congrats on the New baby they always bring an extra sparkle to people don't they.

Keep well and say Hi to your mom for me.

Love Tom Onwards and upwards xx

Hi Skyblue…

I appreciate that this news must have been devastating for your family… devastating and frightening at the same same I imagine.

My 3 children have all voiced their concerns… but checks with their GPs have shown completely normal levels at this stage… I have told them to check in with their GPs as they grow older, every…[Read more]

Welcome Anne
Sorry to meet you this way way-it takes a while to sink in but I hope it encourages you to know that many of us have enjoyed some success in battling this stupid cancer.I myself was diagnosed in 2005 and although I'm not as active active and sporty as I was I'm still kicking!
This is a great site with lots of nice people who are…[Read more]

An interesting question indeed.

I was also trace for a while before being declared in 'complete remission', following my CDT. I was declared in 'complete remission' at my 100 day post SCT stage and then 'relapsed' after my 300 day stage… so, as my American friends are so fond of saying… 'Go Figure'.:-P

I can't.;-)…[Read more]

Hi Christine & Chris,

I have been following your thread with deep interest and keenest sympathy… 😐

The longest serving MP in the House Of Commons is called the 'Father Of The House', purely for his longevity as a member and some supposed wisdom or memory of events undertaken in his or her time there. I am not sure if I am the MUK's…[Read more]

Hi Helen

Slim had 6cycles he was much better in himself. On Velcade,hated the messing about between bloods and treatment,we did try to vary it as spent an awful lot of time just waiting round eg bloods 9am Velcade 3pm never,never on time,also once a month tablets late as usual by hours usually 6pm. Towards the end went in at 9am took slim…[Read more]