Oh Dia

what a lovely song Thank you:-)

Love Jo xx

Hi Bridget

that is spooky I always had a good sleep on thalidomide but not that good!!
sorry you are feeling sick I hate that. I have gone from long and curly hair to almost none and then thin and wispy now its short but quite thick and at the moment a fetching shade of golden brown until i change it!

Love and big (((hugs)) Jox8-)

Tom
wonderful news two years today lets hope for many many more as for crying join the club it started with Bambi and hasnt improved much since now we must just be big old softies:-)

Love and Hugs Jo;-) xxx

Hi Jet

Well explained 😀

Am pleased you are doing Ok, as for the tired bit well am Post Transplant two years today (happy birthday Stems) and still in remission but still get tired still get tearful BUT I think I was like that before I got MM lord I could cry at "Little House On Prairie" lol:-D

Good Luck and wish you a Long Remission…[Read more]

Day 1
Been to see dad this aft. He's managed to have a slice of toast and some rice pudding, but is still feeling really nauseaus and keeps having bouts of gaggin/retching but brings nothing up. Diarrhea has kicked and they gave him some Immodium, so fingers crossed that starts to work. They put him back on a drip, beacause of the diarrhea and…[Read more]

Hi Helen,

All things being equal I would prefer to stay on Clexane rather than switch back to Warfarin. With Warfarin the object is to get your blood to a consistent viscosity (thickness)… something like 3.0 to 3.8 for instance. To achieve this you are put on a strength of Warfarin and then your blood is measured after a week. Depending on…[Read more]

Hi Claudette
I am so glad you posted to Chrissie,and I am so glad I read your post,one because I hope your post gives Chrissie some strength,and two you have made me realise once Slims not on the trials any more we will be able to travel again in our campervan,go back to are way of life.I know I should just be grateful that he is still here ,but…[Read more]

Hi Bridget
Glad the treatment is not to harsh on you,how many cycles will you do before you have test to see if its working????
I agree with you about the blood test,the only thing that convincers us now is BMB,Slims blood results have always been good,and kappa lightchains do not show true readings. Slim does not mind BMB just finds it a little…[Read more]

Hi Shirley
Glad to hear you are managing to get out,have they given you a portable one,it makes all the difference being able to move about,out of the 4 walls.I have seen people on planes with the portable tanks,so there will be no stopping you soon.8-)

You sounded if you enjoyed your Christmas outing,turkey and all the trimmings?????.We do…[Read more]

3am and not sleeping, brain will now not turn off! Know i shouldn't dwell on it, but dad has suffered with depression for as long as i can remember. When he was first diagnosed my initial thought was his depression would return, and that scraed me more than the myelom. If this triggered his depression there was a strong possibility he would just…[Read more]

Hi Shirley sorry I must have missed your post till now Your christmas dinner sounds great and its always nice to forget about mm for a while. I am so glad you are starting to feel better but as Roz says dont overdo things , mind you it sounds as though Stephen will make sure you dont Will you need oxygen permanently now ? Or will your lungs…[Read more]

Hi Helen yes it was a bit confusing and spooky but later I saw the funny side ! It will be a while before I know if it is working, I have to rely on bmb and mri scans together with any physical symptoms such as pain because I am now a non-secretorBecause of my own experience ( initially my pp results were accurate) I am always a little uneasy…[Read more]

Hi Amelie sorry if I was over generalising I did remember John is your friend but I was just giving the patients perspective. He certainly is a very active man and his mum too , obviously good genes in their family ! I am glad you can come on here for answers to some of your questions but it is hard to be specific when we each have our own myeloma…[Read more]

Hi only me I really feel for you its horrible watching our parents go through it It is not really a case of someone being able to give you a time table as to when your dad will feel better as everyone is different but in a couple of weeks time you will look back and be surprised how much better he is Just take it one day at a time, I know you…[Read more]

Hi Jean what I didnt say is I could not have got through the last five years without Jeffs support The thing about not telling you everything might be male pride but come to think of it there are times I dont mention little niggles. I really feel for you Jean as now my mum is very frail I feel totally useless but even with her I try and let her…[Read more]

Hi Meera great to hear life is getting better for you now. I admire your strength especially having a toddler to look after as well , but its a lovely age though everything is new Heres hoping you get your energy back up quickly just remember to allow your body time to rest when you need to Good luxk love Bridget x

After a bath and tea, my brain has kicked in.

Roughly how will it go day by day? When will dad likely be at his worst and when roughly will he start to feel a bit better (or less s**t!)?

Dear Gina and Linda

I am so sorry to read that your Lovely Mum has passed away my thoughts and prayers are with you all at this sad time.

From the posts that you both put on I know your Mom was loved and cared for and also you all were loved.

Please keep in touch.

Love and Hugs

Tom xxxxx