Hi Paul
You must be so pleased,start 2012 on a high.Good luck with ever thing and let us know how you get on,we need lots of good news for people coming after you.
Pennine Way or Three peaks next.Love Eve

Hi David and all these lovely people replying
To David and everyone else I am sorry for your loss,when it comes so close to home it hits harder,It seems cancer becomes so much more to the front when it enters your world,you notice how many people have it.

I have lost close relatives and good friends ,some very young,these people fought hard to…[Read more]

Hello Jean
if yoy leave the curser at the end of your sentence and click on the smiley face:-) it will put a punctuation mark which when you post it will show a smiley face good luck
love jo x

Hi Gill

so glad stephen is fit enough to travel you must really be looking forward to it you both deserve a good holiday
love jo x

Scott
I will keep up the fight i was determind to do what it takes the first time as I will this time planning a trip tp Majorca next may so something to aim for:-)
Love Jo x

Dia Thanks for your lovely reply they are giving me a low dose as UCH now believe lower doses can be just as effective they will introduce a lower dose of cyclphomide later 250 mgs
Love Jo x

Hello everyone

thank you for all your encourageing words they really cheered me up
the BM was horrible as they had to have three digs as my bones are difficult to aspirate so I have a bit of a sore bum at the moment:-(
Love JO X;-)

Hi Gill it sounds like you are well organised so try not to worry too much( easier said than done I know!) Have a wonderful time it will recharge your batteries Whats a bit of frostbite anyway haha! Safe journey love Bridget x

Hi Paul,

Great news that your CDT treatment has done its job, great news indeed. 😎 😀

I had my CDT treatments over the summer of '09 and after a hitch or two I had my SCT in March '10. The hitches prevented a pre-Xmas SCT (I would have been due out on or around the 20th December)… which meant I was in remission for the Xmas…[Read more]

My condolences for the grief you must be feeling for your lovely niece David.

I had a cousin Mandy who was devastated to hear my news re: Myeloma… she sent me messages of support on Facebook and the occasional email whenever she heard of minor or major successes. I hadn't seen her for many years (25 or more) and yet she responded with…[Read more]

I wouldn't worry too much about the apparent 'cold shoulders' Eve. My nurses actively encourage complaints from long term patients… I believe that they are confident that their care is professional and generally A-OK and that the problems are almost exclusively those related to processes and procedures… if they are addressed then the overall…[Read more]

Hi Jo,

I am so sorry that your CDT remission has come to an end… but 2 years 8 months for a frontline treatment remission is wonderful and it shows what can be achieved. It is well documented here that I wish I had stuck to my guns in wanting to see how long I lasted on my CDT remission instead of diving into the SCT route… mainly because…[Read more]

Hi Roz you must be so frustrated at the lack of response when you asked for help , it doesnt seem right . I am sure Macmillan would be able to offer counselling , they have lots of experience that could help you as the partner of a cancer patient . I hope you can get some help very soon love Bridget x

Hi Sarah you are so right we should all create our own legacy and memories while we can You and Gordon together raised a family and built your farm so his legacy is yours as well, you must be very proud. Lots of love Bridget x

Hi Jo its lousy when it rears its ugly head again but you are in good hands at UCH so you have a good chance of beating the beast! Stay cheerful we are all with you lots of love Bridget x

Think you got mixed up with 0 and U Gill so heres UNDERNEATH leaves ATH Bridget x

Hi Sarah
Good to hear from you,no sign of the Ram!!!!!!
what you say is so true,Gordon loved his land and was privileged to die on it,and you have the comfort of your family around you.I consider grand kids your greatest asset,the future generation for the land you love so well,so his memory will always be there,you just have to decide were your…[Read more]

Hi Jo
I was thinking about you today,so sorry Jo you have been doing so well,Velcade has worked well for Slim,and they have caught you early,Let hope the BMB shows low results,I can only say its knocked Slims from 80% to 10% in bone marrow,that,s after 4 cycles twice a week,with no heavy side effects.
Ask away Jo,if we can help you we…[Read more]

Hello Dave and welcome
you have really been though the mill but you sound a very determined character so I think you will cope very well with SCT we are very aprehensive about all trearments will they work can I cope I think you need to have faith in your medical team they are only trying their best for you
So good luck and keep in touch

Love Jo