Hi Eve and of course Slim

Congratulations to you Both, Slims Dr's and all the Nurses that has crossed you and Slim's Path a well done to you all.

Keep up the great work and you know that Slim and yourgoodself are an Inspiration to others.

Please see the attached Photo its your own Smily face for you Hope you like it.

Tom "Onwards and…[Read more]

Hi Sarah and Henry

Looking good that Henry is doing well on his 5th cycle 😀

And Sarah Honest it aint no good holding things back, as I tell my Youmg Bride Elaine I might have MM but I aint gonna break so if it needs saying say it 😀 and she now does (should realy tell her i dint mean her to be this loud lol)

Hope all goes well with…[Read more]

Hi Mavis sorry to hear you are feeling a bit down , I think its inevitable we all do from time to time . Hopefully the visit from your daughter and grandchildren tomorrow will put the sunshine back in the world. I treasure my time with my grandchildren especially George who is the eldest ( I so we are very close.was there when he was born) , he…[Read more]

Hi Penny welcome your wonderfully positive attitude to mm will get you through it !! Being young and fit will also be a big help Just be careful to rest when your body demands it as treatment takes it out of you But I have no doubt you will be running, cycling and mountain walking again before very long Good luck and if you need support there…[Read more]

Hi Abi,

Although the general treatment plans may seem quite uniform MM is a very individual disease. Although your Dad may seem to be in the 'later' stage it is surprising how well some people respond to treatment… kidney failure included. We have some people on this board who have started with similar symptoms to your Dad who have…[Read more]

My Dear Eve,

Wonderful news… at long last you have something tangible and long term to celebrate. I say long term because I know how worried you have been for such a long time without any real encouragement from treatments. Well now you have and it proves that Slim's body is fighting this d**ned disease… fighting and winning.

I…[Read more]

Hi Belles it must be awful seeing your mum suffer but at least you know its par for the course Hopefully it wont last long and then she will start to feel better Hang in there it will be worth it in the end when she gets a very long remission and you can both get back to normal life love to you both Bridget x

Hi Eve great news it was a long wait but bet it feels worth it now!! Hope you and Slim have got your mojo back today and go and celebrate and RELAX a bit love Bridget x

Way to go Caz

And I wish I kept some form of notes 🙁 cos i would love to see how I reacted with all my Tabs 😀

Keep it going strong.

Love
Tom "Onwards and Upwards" xxx

Hi Bridget

so glad you are manageing the treatment what sort of dose are you on for the thalidomide I found when on that and dex it was the only way to get a good sleep I say my prayers for you that this works and gives a you a long relief you certainly deserve it

Lots of love Jo x 🙂

Well Dia
Are you doing as you should and listening to your body!!!:-P

Bridget what is it with kids,that its always mums fault,I could write a book about all the things I am responsible for,even to them marrying men over 6ft!!.It seems because I married a small man,they have hated not being taller so I am to blame, LOL.:-S
Any way it,s…[Read more]

Hi Bridget
Good to see you posting,and glad to hear not many side effects from Bendamustine.Sue,s husband who is on it,is not bringing PP down,but again not going up.
As for the apology about inhalers I do not expect one,this is what this site is about information and discussion and we women can talk talk and talk.Eve

If you did swallow a dictionary you might need AROMATHERAPY to help with indigestion!! Leaving APY love Bridget x

Hi Eve apo;ogies I didnt know they had added different colours The brown ones were preventative in a different way in that you need a certain level in yoour system , often when people feel feel better they stop taking it and because there is not enough if they have an asthma type attack the inhalers dont work. I had to laugh about your daughters…[Read more]

Hi Caz good to hear you are doing well . Sounds like you have got it sorted, the tv days after steroids are essential!! It makes a world of difference if you have faith in the health professionals too , I trust mine as like yours they know my responses very well after five years and umpteen treatments Have they suggested a date for an sct yet, if…[Read more]

Hello Roz
The inhalers work,and you pay a price if you forget to use them!!,When i first started using them,many years ago, I fought it like h e l l big mistake realised it is very much a preventive medication.
My daughter blames me for all her ailments!! even to the point of having big breast,to drip gravy down.LOL. The woe,s of being a mum. love Eve

Hi Dai

Am Sorry you weren't well enough to attend the confrence but am pleased you listened to Janet, and I know that Janet knows best 😀

As for your Feeling Guilty for not attending well you can take a bit more of your Good advise on board for yourself "If need to Rest and dont go out"

Wishing you a speedy recovery and Thank Janet for…[Read more]

Hi Bridget
I have purple and blue one,s
Purple as soon as I get up and last thing of a night preventive
Blue to use any time,but if you use it before a walk or before going up hill,or any time before you do any movement it works far better than,when your chest restricts or a coughing fit starts.
If I forget I pay a price.So I am extra…[Read more]