Hi Peggy wow you had a lucky escape! It just shows we cant afford to ignore our symptoms for too long , which I am guilty of ! Hopefully you will never have to be in that position again though so take care and look after yourself love Bridget x

Hi Christine its good to hear from you and great to hear Velcade is doing a good job getting your dads pps down . I remember being very frustrated when on Velcade because I felt so awful for the first part of my week off and others have said the same As its worked so well has anyone suggested a lowerd dose? It might be possible to lower the dose…[Read more]

Hi Christin,

A few days to get my bearings quickly followed by a chill which has turned into an upper repiratory tract infection… out with the Velcade in with the Amoxicillin.

Ah well…:-)

Dai.

aww Dai thats such awesome news i'm so happy to hear good things are on your path! keep us posted on what you get up to on ur gallivanting!!

christin xx

At the moment I am only getting Gabapentin… I have reported all the new pain and the worsening of my PN throughout my Velcade treatment (on the monitoring/report sheets for that purpose) but I have never been offered anything. I know that I should/could be on some treatment so i will ask at my next consult. These patches sound good. 🙂

Dai.

Hi Nettie,

That is obviously a photo of you about to launch yourself into thin air… 😎 Are there any photos up yet… have I missed something?

Dai.

Hi Elaine

glad you have found us you will find this site so supportive full of kind words and advise you are not alone we all care here. When I had CDT they gave me an anti B which gave me a rash so they had to stop it the rash looked like German measles it was called ciprofloxin perhaps it is something like that causing your rash
Keep in…[Read more]

Hi Mal and Bruce
HAPPY ANNIVERSERY TO YOU BOTH AND MANY MORE TO COME

LOVE Jo

Hello Caz

welcome to the group sorry you have had to join but you will find so many new friends here ready to give you help and advise and dont forget Myeloma uk's help line they are so good. The eating bit is difficult I ate only what I fancied that way I at least ate something as a child when not well it was always lemonade and Hienz tomato…[Read more]

Hi Mal and Bruce I hope Bruce isnt feeling too awful Happy anniversary , sorry its late didnt see your post . I am sure you will be able to celebrate in style once all this is behind you and life can be fun again love to you both Bridget x

Hi Deedee and welcome now that you have found this site and all the lovely people on here you need never feel you are alone in living with myeloma At first its so hard to come to terms with myeloma and everything it means , let alone all the medical terms and treatments but in a short while it will all start to make sense Just take it a day at a…[Read more]

Hi Caz and welcometo club none of us wanted to join. I was diagnosed 5 years ago and I have had the full range of treatment so far! On being diagnosed I had to have spinal reconstruction as 3 vertebrae were destroyed This was followed by CDT and SCT , which gave me 18 months partial remissionWhen I relapsed with a new tumour on my spine I went on…[Read more]

Hi Only me
Think Susan has covered most of it (if not all) its amazing how much you forget about what and when after a few months down the line? or is that just me:-S

Good Luck with the transplant.

Love and Hugs

Tom "Onwards and Upwards" xxx

Hi Gina

Pleased your Mom is getting on better:-D and dont go doing stunts with that wheelchair, but if your Mom wants to get it on you tube he he.

Love to you all and (((Hugs)))

Tom "Onwards and Upwards" with one or two wheelie's xxxx

Hi Mal and Bruce

Happy Anniversary to you both 😎 the wine will save 😀

Good luck with the treatment and its dreaded side effects:-S

Love

Tom "Onwards and Upwards" xx

Hi Dai

I have had the "Swine flu that has two:-/ flu viruses added to it:-S and the Pneumonia jab, the latter No problem the former well it left me with a big lump and a bruise on my arm >:-( but hey if it keeps me well 😎

Good Luck to those that are due to have one 😎

Tom

Well you know I cant make it Debs but you all have a great time 😎 and not too much drink this time girls

Tom xxx

Hi Craig

Well done you 😀 Love the Kick A S S thing he he, pleased everything is starting to run smoother.

Tom "Onwards and Upwards"