Hi Tom

Trials offer availability to drugs, that are many times not available under the NHS.
I do not know how researchers work, it would be nice to have some explanation on there work but I do not think that is the issue here.

The criteria for a lot of trials is based around new patients, patients who have not had treatment,as time goes…[Read more]

Hi Everyone
Well the patten is there failer in the GP. Surgeries,what can we do about it?? How can we change it??? Because it is costing lives and costing the NHS a lot of money to give the patient extra life. . I do not believe as individuals we can do anything about the GP.!!!
I tried and failed,lip service springs to mind.I took Myeloma…[Read more]

Hi Dai

Well you new I would not be able to resist your charms lol (no problems Janet)

I will do my best to put it in some form of order!!!

First Ali,s Revidimide ,the doctor answered her question " if it was your mother" I believe that doctor did the best for patient,but you have to ask yourselves how many doctors would be thinking the…[Read more]

Hi Everyone

Interesting reading different diagnosis,which makes the difference between damage and no damage!!!
Tom you surprise me,I thought you would think doctor know,s best ,learning new things about you,takes something to question a doctor or 2 doctors opinions.

Tom M. I agree completely with you ,you do have to be pro active,in many…[Read more]

Dear Hawkeye

I am so sorry your Mum has passed away, condolence to you and your Mums Family and friends.
Just remember the good time before MM came through the door.

Tom xx

Hi Maureen

Well I was told I had a pulled muscle or a bruised rib when I went to GP, and before I left her I had another Dr brought into the room as I wanted. Second opinion as I knew it want one of those.

And after a bit of a fall out with both Drs I was given a chest X-ray , and as they say the rest is history.

Good Luck with it all…[Read more]

Hi Maureen

I do not know how your husband was diagnosed!! So impossible to comment except to say it usually begins with GP, I wrote to my original GP,asking questions wanting answers and I stated clearly no further action would be taken as I understood in general they do not consider Myeloma they consider back problems.

My most important…[Read more]

Hi Everyone

On reading all comments about maintenance ,I would like to add mine.

As people know Slim only got six months after 100 daysSCT .he was randomised. No maintenance . He had complete remission ,I do wonder if he had maintenance would he have got longer????.his general health,cough colds infection is excellent,and his bloods have…[Read more]

I am so glad that Keith was surrounded by family and friends and that we were represented by you and Steph Andy.

Keith was a true friend to us and I hope we continue to remember his contribution to this board (old site and new).

Farewell Keith… Da Bo Chi, rest in peace.

Dai.

Andy and Steph

Am sure it was a great service, and am pleased He had a good send off.
Thanks for posting this Andy.

RIP Keith sadly missed

Hi Ali and you all

Well I had CTD then onto SCT and now sit here in remission so I cant help here Ali apart from saying, I have done and will do anything to kick this MM into remission, I also remember at the start of the MM discussions that I was told I Might Just Might get a secondary cancer 🙁 But I and my young bride Took it on the chin…[Read more]

Hi Nicki,

You say that Adrian and his Doctors were both positive after his first cycle of his frontline treatment… with a drop in his light chains from 327 to 37 he would have every reason to be positive. The fact that his Doctors were positive as well suggests that they were not too worried about his other problems, specifically his…[Read more]

Hi Mandy

Sorry for the late Poste re your first 🙁 I must have somehow missed it :-S

But I am pleased the Op went well, I understand the Kyphoplasty is pretty good and am pleased it works for you.

As for the hair loss well am a mere Male Mandy and nearly 58 so it didn't bother me in 2009, am sure you will look beautiful when you lose…[Read more]

Hi Dai

Well you are wrong about one thing,I am not sorry I asked!!! I hope you have a really good summer,I know how much I miss about our life before MM took its toll and living on memories is not the real thing,2. 1/2 years for us,with six months remission when Slim was not great is not enough. You are a lot longer and like us whole routine…[Read more]

Hi Eve,

First things first, yes I was deeply saddened by the news of Keith's passing. One moment you are exchanging views and information about treatments, plus a few wants and needs about life away from MM and the next the news comes in that they have suspended treatment while Keith was in hospital. :-/

It was no surprise from then on…[Read more]

Hi Dai

How are things going!!! 10 days is a long time when you are waiting to see what results you will get from GCSF,do you feel good in yourself !!! Are you able to enjoy some free time away from medication!!

Spring is late this year,but it is lovely to see the blossom and flowers in bloom,so looking forward to the heavy smell of the…[Read more]

Congratulations Peter… good news for you and good news for us… enjoy every single day and I hope it lasts for years.8-)

Dai.

Thanks for info Andy.
Hope it goes well

Tom x

Your welcome and I hope it soon heals.

Love Tom Onwards and Upwards xxx