Best wishes for you treatment Bridget – I hope it effect is both immediate and permanent. 😎 🙂

Dai.

Hi Debs,

I retract my earlier claim about having exactly the same problems as you. I certainly have bad PN… which has definitely got worse since I started Velcade, especially in my hands. My hands caused me the most distress as I am a guitarist and playing the guitar for pleasure and for songwriting… with its commercial aspects but……[Read more]

Hi Jo

Yep thats me am afraid a "Cheeky Chappie" 😎 And am pleased I make you laugh cos Laughter is the best medicine for us and it gives us less wrinkles Lol.
I have said before I can get into see my Consultant faster than I can my own GP 🙁 pleased you had a good trip to Scotland, its a beautiful place ( other places are also just as nice…[Read more]

Hi Helen

Well done and am plesed you were set up Top and bottom.:-D

Good Luck in your recovery and as for the hair well it will come back shirly temple'ish :-S and as for the long remission I wish you the same as i want for myself (21 months post sct so far and doing great) and some more years of MM free still to come;-) am sure we will do…[Read more]

Well Bridget

they say every cloud has a silver lining which seems to be the case here so glad it has helped you pain what a good result

Love and HUGS jo xx

Hello Scott
thanks we had a good holiday I hope you have a great time in Spain,8-)
I take the premidrinate for the Myeloma to strengthen my bones my sister in law calls it my bone food! I also take sodium bicarbonate tabs for the kidneys 9 500mgs a day also an alpha calcidol 0.25 three times a week kidneys seem stable at the moment When first…[Read more]

Good luck with your group chelle I attend one in Welwyn Garden City Hertfordshire with my husband who is my carer We have found it so helpfull
just to talk to other people in the same situation

Regards Jo

Tom

you are so cheeky you always make me laugh I agree about the Docs mine are the same its always" we can only make 48 hour apps, can I have one no we are full up phone back tomorrow its an emergency whats wrong with you thats my business and so it goes on. The road trip to scotland was good only two days rain which was in the highlands it…[Read more]

Hi Ted

Well am pleased you have got rid of that Cold it hung about for long enough:-S

As for the Dr's >:-( I have what I call a vetting Receptionist 🙁 who seems adamant that I dont need to see "Her" Dr:-0 once when I needed to see "Her" Dr, I have to phone after 8 am to get an appointment 🙁 and she says to me "May I ask why you need…[Read more]

Hi Sandra
Just to say welcome,come to the right place for advice and tips,lots of people ahead of you on this journey,so they will be all rooting for you. love Eve

Hi Nadine
Welcome to this site,I am sure you will find all the support and answers you need to help your mum with her illness.
As a carer and a mum,myself I try not to worry my children about my husband as my way of thinking is our lives have been put on hold,and i do not want my daughters lives to be put on hold,
I do not want them to be worry…[Read more]

Hi Everyone
What about a nice simply one

BLESSED

SED

PS.Gill daughter came yesterday evening forgot to ask how to do picture,i know I can do a web one,but I want one of Slim and me out of the file.
love Eve

Hi Bridget
Good luck for today,hope it takes all the pain away .Eve

Can´t add any advice but I did just want to wish you all well. I know what your saying about they don´t want to investigate because of her other issues but how does your Mum feel? I know when I was very very ill I was beginning to feel I was a huge long burden to my poor husband. It´s only now that I am much much better and life is returning to…[Read more]

Hi Debs
Just to let you know I have been on Reblimid for three months and like you, am exhausted and the nerve problems in my feet and hands are annoying and uncomfortable – also have tummy upsets etc. etc.
Just returned from a couple of days in Spain during which time I had to stop the tablets as I just felt so absolutely rotten. It wasn´t…[Read more]

Hi Nadine
Welcome – although like everyone else I´m sorry that you have had to join us. Do you think your mum would be able to manage joining the site now that you are finding your way around? I suppose we mums always want to be strong for our children and I know that I am guilty of that – but here on this site I can be honest about how I am…[Read more]

Hi Sandra
Welcome (but sorry you had to join us – Best of luck with the transplant. I had mine done at St Jame´s Leeds and they allowed me to take in both pillows and duvet (my husband also brought in a kettle which we kept discreetly tucked away in a cupboard but they knew I had it and understood as my room was so cold and the drinks were…[Read more]

Hi Roz I can only imagine how hard it must be for you ,Min and Sarah , none of us can really know until it happens to us Ido hope you get some counselling very soon as Mari said sometimes you have to nag your gp to get what you need Please dont ever hesitate to post on here about your feelings Roz , I very much doubt anyone could be offended by…[Read more]