Hi Jan

I wonder how many would take it up!!!
Everyone can do fact but it,s just paper work or if you like a survey .
The Myeloma world is hear on this forum,because it tells you about how people are living with it now,how family react. My daughters do not get involved with the medical side,if I asked for help I would get it from them, I…[Read more]

Hi Helen

Slims ok about BMB he has had at least 6 says its not pleasant ,but would rather know the situation with Myeloma.

Only because we have been hear before the symptoms are all there,fatigue big time,body aching all over,colouring not good,appetite small,going backward with health,Slims a stubborn man takes a lot to admit to pain,but…[Read more]

Hi Everyone

By the time Pat reads these post,cleaner hired plus making lots of arrangements,away from work!!!

We were lucky we had a good head start on all of you,over a short period a long time ago,we made big decisions completely changing are life's ,sold business kept a small flat to let,and off we went,dog as well,travelling everywhere…[Read more]

Hi Clare,

My first response to your opening post was to say that while the SCT route sounds terrifying, like most things in life the actuality is far better that the imagined… and I hold to that.

Then there is another part of the big question that I did not address… that of whether to actually have the transplant or not. You have had…[Read more]

Hi Dai

Well I must have read it wrong as well,Revidimide and Velcade had to be used before eligibility for Muks 5 .Which if only patients who were on CDR then Velcade then relapsing would be eligible,I would think they will be hard pushed to find patients!!!!

I would seriously question eligibility !!! Good luck Dai. Love Eve

Hi Everyone

Getting a cleaner is the best thing I did,only 2hrs but makes a difference,mind you she sought of hinted about my 20 year old dyson,and she did bring her own steamer,I went out and bought one the next week,no doggy smells to be found,when Slim has a moan about her moving things,I have to have words with him,he has old man syndrome…[Read more]

Hi Clare and Mum

Well know nowt about "Barts" but I went same rout as your Mum looks like she will be traveling Mine was 5 sessions of CTD then round the bend to SCT and that was in December 2009, I am now 57 and sat here in remission and Drug free.

Did I regret it Nope not once, a bit of a struggle but I knew it was going to work.

Love…[Read more]

Hi Pat

Well I for one don't blame you getting a cleaner in and I would take the glasses off till he/she starts then you wont see the dust Lol.
Keep taking the Tabs Girl you are moving the correct way.

Love from "Dusty" Tom Onwards and Upwards. xxxx

Hi Eve
been meaning to ask you how is slim doing is he well now did you manage to get his scan i know you were worried about it
Regards Jo x

Go for it Pat

If you can afford it why not I am not a great house wife if you dont move things you dont notice the dust we go out a lot if we can Your results sound good so perhaps not much longer for treatment I am on cycle5 get swollen ankles a bit but ok other wise the graduates sound fun they must have tsken you under their wing a surrgate…[Read more]

Hi Pat

Yes there is,I stand in amazement at people who do not get help in the house ,but if cleaning floats your husbands boat????,it's ok. I intend to spend as much time with Slim,not cleaning,less cooking and more going out.

As for depression it must come with the territory ,its the ability to recognise it,do something about it,and not…[Read more]

[quote]His feet are numb which is completely manageable but the tenderness in the soles of his feet are the killer. The worst thing you could take away from Chris is his fitness and it is this that is the hardest thing for him to cope with.

I feel we have had no luck at all along the way, drugs not working and now not recovering well from the…[Read more]

Hi Sandiex

Your mum should only get zometa side effects for a short while and it does work wonders with bones for a short period. Why Warfarin and not Claxane you could do them for mum they will do the same job but cost more, I would consider Claxane to be very important as chemo side effects are blood clots!!!,

Sandiex Osteo Cronosis of…[Read more]

Hi David

Have been told war horse is a wonderful stage production,my granddaughters loved it,might get to see it myself one day.

The new combo of drugs should see you through the paracetamol gives an extra dimention to any morphine drug,plus if you have liquid back up as well.Slims on combination ,just about keeps pain under control,he is…[Read more]

Hi Clare

my MM journey was diagnosis in Jan 2009 pneumonia' renal failure and MM had CDT which gave me 3 and a half years remission kidneys still only 20% but hanging on started Velcade at the end of last year hoping to get a good remission again this is very much a personal journy I think at your mums age she needs to take her time and take…[Read more]

Hi Clare

Welcome to the Myeloma club!!,patient,carer or family,I hope you get a good response to all questions.

My husband is 69 this year he had SCT after two courses of chemo,CDT plus Velcade., He only got 6 months remission. After the 100 days,he went to Kings I can assure you these top notch London hospitals,know there job,they do it all…[Read more]

Hi Clare,

I hope someone comes along soon that will direct you to all things Barts and that you are suitably impressed.

Two things:

1. Your Mum has been blessed with an excellent return from her CDT by getting her PP's down to 5… well done her. 😎

2. The SCT process (the end bit, after the stem cells are returned) is unpleasant, no…[Read more]

Have a good time on tour I hope the weather is kind to you
Regards Jo x

Hi Jean
aVERY HAPPY BIRTHDAY TO FRANK
i am so glad he is doing well what relief after all the worry all daughters dont like shopping I have two and they hate shopping so I have to go with my sister in law shes a shopaholic! by the time i have spent half a day with her it puts me off for weeks!!!! hope you are keeping well
Love Jo x